My brother, Kyle, was born with a very rare condition called Nablus Syndrome. There are less than 15 documented cases in the world. It is a microdeletion of the chromosome 8q22 and is characterized as a mask-like facial appearance along with other distinct malformations of the body. As Kyle’s older
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Ask The Expert: Dina Zuckerberg, Director of Family Programs, myFace
Dina leads the myFace Wonder Project, an anti-bullying campaign educating students in schools across the country on the importance of celebrating uniqueness, being an upstander and always choosing to be kind. During her virtual school assemblies, she is often asked some very thoughtful and perceptive questions about living with a
Summer 2021 Newsletter
Dear reader, I am excited to share this issue of Your Impact, where we highlight myFace stories of hope, creativity and camaraderie. You’ll read about Ezra, a 15-year-old who shares his journey of strength and commitment as a gymnast. You’ll hear from Erin and what it’s like to be a
ANNOUNCING MYFACE CELEBRATES…
Announcing myFace Celebrates… A virtual experience on June 17, 2021 in recognition of 70 years of myFace providing comprehensive care, education, and support to the craniofacial community myFace Brings Messages of Resilience And Hope Expressed Through Musical Performance and Storytelling To Raise Critical Funds Supporting Those With Facial Differences. New
International Face Equality Week is May 17-24th
myFace is proud to be part of an alliance of 35 global NGO’s and nonprofits working to advocate acceptance for those withfacial differences. This May 17-24th, we come together for International Face Equality Week, a global annual campaign that celebrates the craniofacial community, highlights issues they face and advocates
myFace Star, Jasmine, Shares an Original Poem with an Inspiring Message
In case you missed our post for #WorldPoetryDay, myFace Star, Jasmine Stewart, shares a poem she wrote called “Fresh Eyes” on loving the skin you’re in. a message we actively promote at myFace. Jasmine was born with a cleft lip and palate and has had several surgeries throughout her childhood
Employee Spotlight: Dina Zuckerberg Receives Prestigious ACPA Leadership Award
myFace salutes Dina Zuckerberg, myFace’s Director of Family Programs, who received the Family Services Leadership Award from the American Cleft-Palate Craniofacial Association (ACPA) as part of their 2021 Virtual Annual Meeting. Dina has often said, “I bring my life experience of growing up with a craniofacial difference to the programs
myFace Virtual Craniofacial Support Groups Ensure that Individuals and Family Members Have a Place to Turn
Our myFace Parent, Adult, and Adolescent Support Groups are a cornerstone of the help myFace offers to the craniofacial community. These groups meet on Zoom regularly throughout the month, and are designed to provide guidance, counsel and community for those living with craniofacial conditions and their families. Because of our
The myFace Wonder Project Gains Momentum: 10,000 Students Reached
The myFace Wonder Project re-launched in February and gained quick momentum and rapid recognition as schools all over the country – California, Iowa, Texas, Oklahoma, Florida, and New York – have registered to choose kindness. While myFace is continuing to recruit schools to participate, New York City Public schools were
Free Webinars Available to All Addressing the Needs of the Craniofacial Community
In November 2020, myFace launched its Transforming Lives Webinar Series on The Difference a Craniofacial Care Team Can Make, helping families effectively navigate the selection of medical, surgical, and psychosocial specialists involved in team care and understand the questions to ask. On March 11th, we presented a new topic directed
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By making a donation to myFace, you enable us to continue our mission of providing quality comprehensive craniofacial care and support, as well as education and information that empower patients, families and the greater craniofacial community, enabling them to lead full and productive lives.
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