My husband Nate and I feel like we are the luckiest parents in the world. A year ago, we found out that a birthmother had picked us to be the parents of a sweet little boy. We had just over three weeks to prepare for Elijah’s birth and to learn
Blog
The myFace Blog
Little Miss Sunshine: Scarlett’s Story
We knew something was different about our daughter Scarlett almost immediately, but it was not until she was 3 months old that she was first diagnosed with right coronal craniosynostosis. In May 2005, she had her first surgery in Jacksonville, Florida and it was deemed successful. One lingering concern was
The O’Reillys
Kyle came into our lives 16 years ago on a beautiful, sunny day. Twelve hours later, at midnight, the doc-tors wheeled his incubator into my room so my husband and I could finally see him before they transported him via ambulance to the NICU @ NYU. I cried, thinking “he
Volunteer Spotlights
Olivia I am a myFace volunteer because I believe in the life-changing opportunities that the organization provides each and every one of its patients. myFace is defined by passion, support, and love and I am fortunate to have filled my college break with such posi-tivity. I will forever cherish Races
More Than Meets the Eye
Lauren Sharaby shares her story Unlike most children, I was unable to commit to dance classes, gymnastic lessons, or the cheerleading squad. Instead, I was committed to being a patient. 16 years ago, my parents and I left our home at 5am for my first major surgery at NYU. I
3-year-old boy from India has life-changing facial reconstruction at NYU
By Meredith Engel for The New York Daily News A 3-year-old boy has a new face — and lease on life — after surgery for a rare genetic condition that caused him pain and humiliation. Maan Singh was born in India with Pfeiffer syndrome, which causes his skull and facial
Navigation Tools for Back-to-School
Since I started last year as Director of Family Programs at myFace and as a former patient myself, I have had parents reach out to me expressing concern for their child entering school for the first time. How will they handle the stares, the teasing, and the bullying? Will they
Reconstruction Aid Gives Hope to Families
By Melanie Gracye West for The Wall Street Journal Laura Posada, the wife of former Yankees catcher Jorge Posada, is stepping up to the plate to raise money for children in need of facial-reconstruction surgery. It is a cause particularly close to the Posadas. Their oldest child, Jorge Jr., was
From India to New York: A Toddler Gets a New Face
By Priya Singh, as told to Jordan Davidson, Everyday Health When my son, Maan, was born we noticed his eyes seemed swollen. The doctor told me some swelling was normal after natural childbirth, especially considering how heavy Maan was – 4 kilograms (almost 9 pounds). My pregnancy had been uneventful.
Helping Children born with Facial Deformities
Exactly one year ago WABC meteorologist Amy Freeze shared the following: NEW JERSEY — A local family in New Jersey is celebrating the relief and hope given to them by the National Foundation for Facial Reconstruction. Defects that might shame a child – a crooked smile, bulging eyes or a
