To download a PDF of the Spring 2022 Newsletter, click here. Dear Reader, As Spring approaches – the season of growth and renewal – we reflect on how much our organization and community have evolved, thanks to your continued generosity and support. Our mission to be a safe haven that
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The myFace Blog
myFace and Random House Children’s Books Celebrate 10 Years of WONDER
See the full PRWeb Release Here MYFACE IN PARTNERSHIP WITH RANDOM HOUSE CHILDREN’S BOOKS CELEBRATES THE DECADE LONG IMPACT OF R.J. PALACIO’S WONDER ON THE CRANIOFACIAL COMMUNITY AND READERS WORLDWIDE New York, NY (February 14, 2022) — Over the past ten years, since its original publication on February 14, 2012,
Become a myFace Star!
myFace’s annual myFace Celebrates… event will be held on Monday, May 2, 2022, giving members of the myFace Family and the wider craniofacial community an opportunity to come together to share stories of hope, resilience, and healing through musical performances and storytelling. And we’d like YOU to be one of our STARS! Singers,
myFace on KTU Cares
On Sunday, September 5, 2021, Steve Bartel of KTU Cares interviewed Stephanie Paul (Executive Director, myFace), Dina Zuckerberg (Director of Family Programs, myFace), Patricia Chibbaro RN, MS, CPNP (Pediatric Nurse Practitioner at the myFace Center for Craniofacial Care at NYU Langone Health), Lenica Bruce (proud mother and craniofacial advocate), and
MYFACE, MYSTORY: A CONVERSATION WITH SISTERS
myFace launched a new monthly podcast in June 2021 hosted by Dina Zuckerberg, Director of Family Programs. The series – myFace, myStory: Voices from the Craniofacial Community – aims to inform and educate the general public about craniofacial differences and the issues that individuals and families of the community face;
AN IMPORTANT LESSON ON GETTING YOUR CHILD’S CONFIDENCE TO SHINE THROUGH
Kelly Vurinaris is an international, bestselling children’s book author. But first and foremost, she is mom to beautiful 6-year-old daughter, Zoe, who was born with Treacher Collins Syndrome, a rare craniofacial syndrome that affects the formation of the ears, eyelids, cheek bones, and jawbones. Because Zoe was also born with
ASK THE EXPERTS
On August 10, 2021, myFace presented a free educational webinar as part of our Transforming Lives series focused on helping parents create the building blocks for a successful school year, home life, and social interactions for children with craniofacial diagnoses. Below are some of the questions posed during the live
THE MYFACE APARTMENTS: A SAFE HAVEN FOR PATIENTS AND FAMILIES
Laura and Malcolm Beeler are so grateful to myFace for being able to stay in the myFace Apartments over the years while they’ve sought treatment for their daughter, Ava. Now 18, Ava was born with Pfeiffer Syndrome and a cloverleaf skull, a rare and complex craniofacial condition which presented a
Meet Emily – A SPIRITED “WARRIOR” AND PASSIONATE ADVOCATE FOR THE CRANIOFACIAL COMMUNITY
Emily is not your ordinary 24-year-old. In fact, she’s quite extraordinary. Emily was born with a rare craniofacial condition called Apert Syndrome causing her facial, skull bones and digits to fuse together too early in development. She’s had so many surgeries to date she doesn’t even remember all of them.
Fall 2021 Newsletter
Dear Reader, As the autumn changes the colors around us, we contemplate how myFace has changed the lives of those who are navigating a craniofacial journey. On September 1, 2021, myFace officially celebrated 70 years of our work and a legacy that has changed faces and transformed lives for seven
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