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The myFace Blog

Summer 2020 Newsletter

You can download  a digital version of our summer newsletter here.  Thank you for bringing Alonso’s smile to life. Alonso is the youngest of a loving, close knit family of 5 who came to the US from the Dominican Republic in 2015 when he was just a baby. Born with

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Families in Crisis Need Your Help Today.

With the world turned upside down in just a few weeks, I need to ask you for your support. Many of the myFace craniofacial families have been hit hard by the COVID-19 crisis and are experiencing tremendous financial stress. Some have recently lost their jobs. Two-thirds of the families we

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2nd Annual myFace Talent Show Brings the House Down!

On Sunday, March 1st, myFace hosted its 2nd Annual Talent Show – this year at Merkin Concert Hall in NYC. This show, made possible in part by generous support from The Warner Fund, provided a wonderful opportunity for a dozen of our myFace Stars – all impacted by craniofacial challenges

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Kyle's Story - Rare Disease Day

Kyle’s Story

As told by Betsy, Kyles’s Mom: “Our son has a rare condition (we don’t like to use the word “disease”) called Nablus Syndrome. It is a micro deletion of the chromosome at 8q22 and is characterized as a mask-like facial appearance along with other distinct malformations of the body. As

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Logan’s Story

As told by Leah, Logan’s Mom: “Logan as I named him was born with a bilateral cleft lip and aneterior palate. Ear pits. Anal stenosis. Oh and a very rare condition called microphthalmia / anophthalmia. This is the medical term for the absence of one or both eyes. Both the

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Self Care for Caregivers workshop

By: Rosemarie Barbalace, Social Work Intern, NYU Langone Health Self care refers to any activities and practices that we engage in on a regular basis to reduce stress, maintain, and enhance our health and well-being. Self care can be any intentional actions that you take to care for your own physical,

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Cameron Underwood – Face Transplant Patient

NYU Langone Health patient and myFace Star, Cameron, had a face transplant in January, under the leadership of Dr. Eduardo D Rodriguez, MD, DDS. myFace supported Cameron throughout this journey by providing travel and housing for his many trips back and forth between CA and NYC and more than 150

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