myFace: Supporting the Craniofacial Difference Community

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myFace partners with craniofacial centers all across the U.S., and will work with you to find the right fit. Please reach out to Sandy Gilbert, Senior Program Director, at Sandy@myFace.org for further assistance.

Additionally, myFace provides a variety of resources on this topic which might be helpful. For more information, please explore:

A webinar from our Transforming Lives Series: “The Difference a Craniofacial Care Team Can Make.”
A guide for assembling a Craniofacial Care Team, which can be found at: https://www.myface.org/parent-guides/craniofacial-care-teams/
A Q&A about Craniofacial Care Centers, which can be found at: https://www.myface.org/parent-guides/craniofacial-care-centers/

At myFace, we aim to provide guidance for patients’ surgical experiences by providing in-depth information on some of the most common craniofacial surgeries, including Bilateral Sagittal Split Osteotomy (BSSO), Fronto Orbital Advancement (FOA), Le Fort I, Le Fort III, and Monobloc surgery. Please explore our “Guide to Craniofacial Surgeries” at www.myface.org/surgeries/.

We also offer a webinar that you may find helpful, on the topic of:
Preparing Teenagers for Orthognathic (Jaw) Surgery https://www.myface.org/events-page/surgerywebinar/

If you have additional questions, please reach out to Sandy Gilbert, Senior Program Director, at Sandy@myFace.org.

Yes, myFace provides convenient housing for out-of-town patients and families receiving care at any of the craniofacial centers in New York City.

We also provide complimentary, roundtrip tickets to patients and families through the Southwest Airlines Medical Transportation Grant Program for patients being treated at the myFace Center for Craniofacial Care at NYU Langone Health.

For more information on either of these resources, please visit www.myface.org/travel-housing/ to find contact information and how to apply.

myFace offers information on 27 craniofacial conditions, which can be found at www.myface.org/craniofacial-conditions/. If you have any additional questions, please reach out to Sandy Gilbert, Senior Program Director, at Sandy@myFace.org.

myFace is here to support you. We offer Support Groups for Adults, Parents (in both English and Spanish), Adolescents,, and prenatal parents who have received a craniofacial diagnosis. Please explore our Support Group options at www.myface.org/online-groups/.

We have some related resources which might be helpful, including:

A myFace, myStory podcast episode on bullying which can be found at www.myface.org/events-page/myface-mystory-bullying-at-any-age/
A guide to self-esteem which can be found at https://www.myface.org/parent-guides/self-esteem/
Creating Building Blocks for Home, School, and Social Connections for Children with Craniofacial Diagnoses
https://www.myface.org/events-page/transforming-lives-creating-building-blocks-for-home-school-and-social-connections-for-children-with-craniofacial-diagnoses/

myFace offers guides to help you explore nutrition, genetics, tips for healthcare appointments, craniofacial care teams, craniofacial care centers, self-esteem, and more. Please explore our resources at www.myface.org/parent-guides/.

We also offer webinars that cover a variety of topics related to the everyday management of craniofacial conditions and surgeries which you may find helpful, including:

Navigating Health Insurance for People with Cleft Lip, Cleft Palate, and Other Craniofacial Conditions
https://www.myface.org/events-page/transforming-lives-navigating-health-insurance-for-people-with-cleft-lip-cleft-palate-and-other-craniofacial-conditions/

If you need resources on additional topics, please reach out to Sandy Gilbert, Senior Program Director, for assistance at Sandy@myFace.org.

While myFace focuses primarily on assisting individuals with facial differences located within the United States – and is not familiar with medical teams and resources outside of the U.S. – international families are welcome to access the many educational resources available on our website. If you have additional questions, please reach out to Sandy Gilbert, Senior Program Director, at Sandy@myFace.org.

At myFace, we believe there is power in the shared story, and that by sharing our stories, we feel less alone. Please reach out to Katie Bazyluk, Communications Manager, at Katie@myFace.org to share details about your or your family’s journey with a craniofacial condition or facial difference.

Please send your name, craniofacial condition, and details about your question/comment to Sandy Gilbert, Senior Program Director, at sandy@myface.org.

myFace partners with craniofacial centers all across the U.S., and will work with you to find the right fit. Please reach out to Sandy Gilbert, Senior Program Director, at Sandy@myFace.org for further assistance.

Additionally, myFace provides a variety of resources on this topic which might be helpful. For more information, please explore:

A webinar from our Transforming Lives Series: “The Difference a Craniofacial Care Team Can Make.”
A guide for assembling a Craniofacial Care Team, which can be found at: https://www.myface.org/parent-guides/craniofacial-care-teams/
A Q&A about Craniofacial Care Centers, which can be found at: https://www.myface.org/parent-guides/craniofacial-care-centers/