myFace is pleased to offer these resources to help families and parents navigate the everyday issues that can accompany life with a craniofacial condition.
To make the best decisions for your child’s craniofacial care, you need to understand all the options available to you and your child. The following guide is intended to prepare you to make informed decisions as you interact with your child’s healthcare professionals.
Craniofacial care usually requires the expertise of an interdisciplinary care team to ensure that all problems are addressed and that your child’s care is coordinated. Such interdisciplinary care is often provided at a craniofacial center. This guide features some common questions and answers related to craniofacial centers.
Although parents and caregivers strive to foster positive self-esteem in their children, this can be especially challenging for parents of children with facial differences. This guide is designed to help parents and caregivers of children with facial differences recognize, understand, and address the common issues they may encounter so that they can foster a healthy sense of self-esteem in their children.
Additional Family Resources from ACPA
Our partners at The American Cleft Palate-Craniofacial Association (ACPA) offer information about cleft and craniofacial care. ACPA’s educational materials are written for affected individuals and families by cleft and craniofacial experts. Explore them here:
Family Read Alongs
During the height of the pandemic, families would gather virtually for family read alongs, led by authors in the craniofacial community. While this program is no longer active, the recordings of the family read alongs are still available for you to enjoy.