Parent Guides

Family Resources

myFace is pleased to offer these resources to help families and parents navigate the everyday issues that can accompany life with a craniofacial condition.

myFace our story crouzon syndrome photo


Many children with facial conditions experience trouble feeding, gaining weight, maintaining weight and maintaining overall good nutrition. Learn age-specific nutrition concerns and find out how to get a nutrition plan that’s right for your child.

Read our Nutrition Parent Guide →

myFace Akemi Family photo


Learn about the genetics of craniofacial differences — are they inherited, is there a risk to future pregnancies, will your child’s development be affected — and find out more about getting a genetics evaluation for your child.

Read our Genetics Parent Guide →

myFace patient Nathaniel Newman and his family

Tips for Healthcare Appointments

To make the best decisions for your child’s craniofacial care, you need to understand all the options available to you and your child. The following guide is intended to prepare you to make informed decisions as you interact with your child’s healthcare professionals.

Read our Tips for Healthcare Appointments →

myFace Center Administrative Manager, Margy Maroutsis

Craniofacial Care Teams

A craniofacial care team is the group of medical professionals who collaborate and cooperate to give a child the best possible care. Learn more about the types of specialists that can make up a craniofacial care team.

Read our Craniofacial Care Teams Guide →

The Institute of Reconstructive Plastic Surgery, NYU Langone Medical Center

Craniofacial Care Centers

Craniofacial care usually requires the expertise of an interdisciplinary care team to ensure that all problems are addressed and that your child’s care is coordinated. Such interdisciplinary care is often provided at a craniofacial center. This guide features some common questions and answers related to craniofacial centers.

Read our Craniofacial Care Centers Guide →



Although parents and caregivers strive to foster positive self-esteem in their children, this can be especially challenging for parents of children with facial differences. This guide is designed to help parents and caregivers of children with facial differences recognize, understand, and address the common issues they may encounter so that they can foster a healthy sense of self-esteem in their children.

Read our Self-Esteem Parent Guide

Additional Family Resources from ACPA

Our partners at The American Cleft Palate-Craniofacial Association (ACPA) offer information about cleft and craniofacial care. ACPA’s educational materials are written for affected individuals and families by cleft and craniofacial experts. Explore them here:

Educational Materials→


Treatment for Adults with Cleft

It is not unusual for functional problems related to the cleft to remain into adulthood. These may include speech problems, hearing problems, fistulas (small holes in the palate), dental problems, or breathing problems due to nasal obstruction.

Click here for more information and to download the ACPA Patient Guide →

Family Read Alongs

During the height of the pandemic, families would gather virtually for family read alongs, led by authors in the craniofacial community. While this program is no longer active, the recordings of the family read alongs are still available for you to enjoy.

Read Alongs →

Download the myFace Parent Worksheet

Enter your email address below to receive your copy of our Parent Worksheet to help prepare for your child’s medical appointment.