Don’t miss your last chance to donate by midnight on May 17 to our Match Grant Challenge and double your impact. But first, please read this special story from one of our cleft patients’ moms. It will inspire you, warm your heart, and show you the impact YOUR gift can have!
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The myFace Blog
Families in Crisis Need Your Help Today.
With the world turned upside down in just a few weeks, I need to ask you for your support. Many of the myFace craniofacial families have been hit hard by the COVID-19 crisis and are experiencing tremendous financial stress. Some have recently lost their jobs. Two-thirds of the families we
2nd Annual myFace Talent Show Brings the House Down!
On Sunday, March 1st, myFace hosted its 2nd Annual Talent Show – this year at Merkin Concert Hall in NYC. This show, made possible in part by generous support from The Warner Fund, provided a wonderful opportunity for a dozen of our myFace Stars – all impacted by craniofacial challenges
A Special Panel Discussion on Helping Parents to Advocate for Their School-Age Child
“Feed the attention of the child… Starve the attention of the bully…” – Lilliana Díaz-Pedrosa, Esq. Advocates for Children of NY Director, AFC Parent Center In January 2020, we held our first panel discussion on a very important topic: “Advocating for Your School-Age Children.” It was an invaluable program we put
It’s a new world… and myFace is always here for you.
Only a few short weeks after taking on the role of Executive Director with myFace in January, we find ourselves faced with an unprecedented pandemic. Each day we ask ourselves, “Where is the good in all this? How do we cope? When will it end?” We are deeply grateful to
Kyle’s Story
As told by Betsy, Kyles’s Mom: “Our son has a rare condition (we don’t like to use the word “disease”) called Nablus Syndrome. It is a micro deletion of the chromosome at 8q22 and is characterized as a mask-like facial appearance along with other distinct malformations of the body. As
Logan’s Story
As told by Leah, Logan’s Mom: “Logan as I named him was born with a bilateral cleft lip and aneterior palate. Ear pits. Anal stenosis. Oh and a very rare condition called microphthalmia / anophthalmia. This is the medical term for the absence of one or both eyes. Both the
Self Care for Caregivers workshop
By: Rosemarie Barbalace, Social Work Intern, NYU Langone Health Self care refers to any activities and practices that we engage in on a regular basis to reduce stress, maintain, and enhance our health and well-being. Self care can be any intentional actions that you take to care for your own physical,
Cameron Underwood – Face Transplant Patient
NYU Langone Health patient and myFace Star, Cameron, had a face transplant in January, under the leadership of Dr. Eduardo D Rodriguez, MD, DDS. myFace supported Cameron throughout this journey by providing travel and housing for his many trips back and forth between CA and NYC and more than 150
myFace Star: Gospel
Meet Gospel. Gospel is a beautiful, vibrant and determined 13-year-old – wise beyond her years. Her home is in Kingston, Jamaica, but she has spent the last couple of years in the US living with a host family so that she could undergo the special reconstructive surgeries she desperately needed
