On Sunday, September 5, 2021, Steve Bartel of KTU Cares interviewed Stephanie Paul (Executive Director, myFace), Dina Zuckerberg (Director of Family Programs, myFace), Patricia Chibbaro RN, MS, CPNP (Pediatric Nurse Practitioner at the myFace Center for Craniofacial Care at NYU Langone Health), Lenica Bruce (proud mother and craniofacial advocate), and
Blog
The myFace Blog
MYFACE, MYSTORY: A CONVERSATION WITH SISTERS
myFace launched a new monthly podcast in June 2021 hosted by Dina Zuckerberg, Director of Family Programs. The series – myFace, myStory: Voices from the Craniofacial Community – aims to inform and educate the general public about craniofacial differences and the issues that individuals and families of the community face;
CAMP REFLECTIONS GIVES KIDS WITH DIFFERENCES A SUMMER THEY WON’T FORGET
myFace is delighted to have joined forces once again with Harbor Camps/Camp Reflections in New Hampshire, led by founder Nick Teich. The weeklong program is designed for youth, ages 8-16, living with a craniofacial difference and their siblings, providing them a safe, non-judgmental environment where they can simply be themselves.
AN IMPORTANT LESSON ON GETTING YOUR CHILD’S CONFIDENCE TO SHINE THROUGH
Kelly Vurinaris is an international, bestselling children’s book author. But first and foremost, she is mom to beautiful 6-year-old daughter, Zoe, who was born with Treacher Collins Syndrome, a rare craniofacial syndrome that affects the formation of the ears, eyelids, cheek bones, and jawbones. Because Zoe was also born with
ASK THE EXPERTS
On August 10, 2021, myFace presented a free educational webinar as part of our Transforming Lives series focused on helping parents create the building blocks for a successful school year, home life, and social interactions for children with craniofacial diagnoses. Below are some of the questions posed during the live
THE MYFACE APARTMENTS: A SAFE HAVEN FOR PATIENTS AND FAMILIES
Laura and Malcolm Beeler are so grateful to myFace for being able to stay in the myFace Apartments over the years while they’ve sought treatment for their daughter, Ava. Now 18, Ava was born with Pfeiffer Syndrome and a cloverleaf skull, a rare and complex craniofacial condition which presented a
Meet Emily – A SPIRITED “WARRIOR” AND PASSIONATE ADVOCATE FOR THE CRANIOFACIAL COMMUNITY
Emily is not your ordinary 24-year-old. In fact, she’s quite extraordinary. Emily was born with a rare craniofacial condition called Apert Syndrome causing her facial, skull bones and digits to fuse together too early in development. She’s had so many surgeries to date she doesn’t even remember all of them.
Fall 2021 Newsletter
Dear Reader, As the autumn changes the colors around us, we contemplate how myFace has changed the lives of those who are navigating a craniofacial journey. On September 1, 2021, myFace officially celebrated 70 years of our work and a legacy that has changed faces and transformed lives for seven
Transforming Lives: Creating Building Blocks for Home, School, and Social Connections for Children With Craniofacial Diagnoses
Original Broadcast Date: Tuesday, August 10 The latest program in our Transforming Lives Webinar Series: Creating Building Blocks for Home, School, and Social Connections for Children With Craniofacial Diagnoses. Preparing for a new school year is stressful under normal circumstances, and even more so now during the COVID-19 pandemic. In this
Transforming Lives: Navigating Health Insurance for People with Cleft Lip, Cleft Palate, and other Craniofacial Conditions
Join us as myFace and Matt Mortier, MSEL, MIRM, discuss the Health Insurance Market and everything you need to know when choosing a plan, obtaining approvals, and dealing with denials. Learn how to work with your Healthcare Provider, Insurance Company, and State Insurance Regulators to receive the best coverage and
Download the myFace Parent Worksheet
Enter your email address below to receive your copy of our Parent Worksheet to help prepare for your child’s medical appointment.
