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2nd Annual myFace Talent Show Brings the House Down!

On Sunday, March 1st, myFace hosted its 2nd Annual Talent Show – this year at Merkin Concert Hall in NYC. This show, made possible in part by generous support from The Warner Fund, provided a wonderful opportunity for a dozen of our myFace Stars – all impacted by craniofacial challenges

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Kyle's Story - Rare Disease Day

Kyle’s Story

As told by Betsy, Kyles’s Mom: “Our son has a rare condition (we don’t like to use the word “disease”) called Nablus Syndrome. It is a micro deletion of the chromosome at 8q22 and is characterized as a mask-like facial appearance along with other distinct malformations of the body. As

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Logan’s Story

As told by Leah, Logan’s Mom: “Logan as I named him was born with a bilateral cleft lip and aneterior palate. Ear pits. Anal stenosis. Oh and a very rare condition called microphthalmia / anophthalmia. This is the medical term for the absence of one or both eyes. Both the

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Self Care for Caregivers workshop

By: Rosemarie Barbalace, Social Work Intern, NYU Langone Health Self care refers to any activities and practices that we engage in on a regular basis to reduce stress, maintain, and enhance our health and well-being. Self care can be any intentional actions that you take to care for your own physical,

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Cameron Underwood – Face Transplant Patient

NYU Langone Health patient and myFace Star, Cameron, had a face transplant in January, under the leadership of Dr. Eduardo D Rodriguez, MD, DDS. myFace supported Cameron throughout this journey by providing travel and housing for his many trips back and forth between CA and NYC and more than 150

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myFace Star: Gospel

Meet Gospel. Gospel is a beautiful, vibrant and determined  13-year-old – wise beyond her years. Her home is in Kingston, Jamaica, but she has spent the last couple of years in the US living with a host family so that she could undergo the special reconstructive surgeries she desperately needed

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myFace Star Wins Gold at Special Olympics!

Last weekend, myFace Star, Billy Duthie went for the gold at the Special Olympics in New Jersey when he competed in the mini javelin and 400 meter run competitions. Billy emerged the champion of the mini javelin with a throw of 28.5 meters and took home the silver for the

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