Representation matters, and allows members of the craniofacial community to feel seen, heard, and accepted. To that end, we are pleased to share that on March 10th, 2023, Disney Junior released a new Firebuds episode entitled “Cleft Hood.” “Cleft Hood” introduces Castor, a vehicle character born with a cleft hood. The episode was
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Summer 2023 Camp Opportunities for the Craniofacial Community
Camp Opportunity for Children with Craniofacial Conditions and Their Siblings Camp Reflections (New Hampshire; August 13 – 19) Harbor Camps/Camp Reflections in New Hampshire offers a weeklong program designed for youth ages 8-16 living with a craniofacial difference and their siblings, providing them with a safe, non-judgmental environment where they
Ask The Expert: Dina Zuckerberg, Director of Family Programs, myFace
Dina leads the myFace Wonder Project, an anti-bullying campaign educating students in schools across the country on the importance of celebrating uniqueness, being an upstander and always choosing to be kind. During her virtual school assemblies, she is often asked some very thoughtful and perceptive questions about living with a
Ask The Expert: Dr. Thomas Imahiyerobo
Expert cleft and craniofacial surgeon, Thomas Imahiyerobo, MD, FAAP, FACS of Morgan Stanley Children’s Hospital in NYC sat down with us to answer some important questions on what an expectant parent can learn through prenatal counseling if they are expecting a child with a cleft lip and/or palate. What is
Ask The Expert: Patricia Chibbaro
Patricia Chibbaro, RN, MS, CPNP, Pediatric Nurse Practitioner myFace Center for Craniofacial Care at NYU Langone Health, New York, NY., sat down with us to answer some important questions about choosing a craniofacial care team, when to choose your team, how important the psychosocial aspects of the team are and
Families in Crisis Need Your Help Today.
With the world turned upside down in just a few weeks, I need to ask you for your support. Many of the myFace craniofacial families have been hit hard by the COVID-19 crisis and are experiencing tremendous financial stress. Some have recently lost their jobs. Two-thirds of the families we
A Special Panel Discussion on Helping Parents to Advocate for Their School-Age Child
“Feed the attention of the child… Starve the attention of the bully…” – Lilliana Díaz-Pedrosa, Esq. Advocates for Children of NY Director, AFC Parent Center In January 2020, we held our first panel discussion on a very important topic: “Advocating for Your School-Age Children.” It was an invaluable program we put
Self Care for Caregivers workshop
By: Rosemarie Barbalace, Social Work Intern, NYU Langone Health Self care refers to any activities and practices that we engage in on a regular basis to reduce stress, maintain, and enhance our health and well-being. Self care can be any intentional actions that you take to care for your own physical,
Staring isn’t staring if you smile
When I first started working at myFace, one of the things I was most afraid of was hurting someone’s feelings. I had no experience with craniofacial difference prior to working here, and I know going in that I was going to be meeting new people, people who looked very different
Better Hearing and Speech Month
My name is Shelley Cohen, I am the cleft and craniofacial teams’ speech-language pathologist (SLP) and the cleft team and ear, nose and throat clinic coordinator. May is Better Hearing and Speech Month. It’s a great time to remind you about the importance of an annual hearing test with a visit to a pediatric Otorhinolaryngologist or Ear, Nose and Throat (ENT) specialist.
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