With the world turned upside down in just a few weeks, I need to ask you for your support. Many of the myFace craniofacial families have been hit hard by the COVID-19 crisis and are experiencing tremendous financial stress. Some have recently lost their jobs. Two-thirds of the families we
RESOURCES
A Special Panel Discussion on Helping Parents to Advocate for Their School-Age Child
“Feed the attention of the child… Starve the attention of the bully…” – Lilliana Díaz-Pedrosa, Esq. Advocates for Children of NY Director, AFC Parent Center In January 2020, we held our first panel discussion on a very important topic: “Advocating for Your School-Age Children.” It was an invaluable program we put
Self Care for Caregivers workshop
By: Rosemarie Barbalace, Social Work Intern, NYU Langone Health Self care refers to any activities and practices that we engage in on a regular basis to reduce stress, maintain, and enhance our health and well-being. Self care can be any intentional actions that you take to care for your own physical,
Staring isn’t staring if you smile
When I first started working at myFace, one of the things I was most afraid of was hurting someone’s feelings. I had no experience with craniofacial difference prior to working here, and I know going in that I was going to be meeting new people, people who looked very different
Better Hearing and Speech Month
My name is Shelley Cohen, I am the cleft and craniofacial teams’ speech-language pathologist (SLP) and the cleft team and ear, nose and throat clinic coordinator. May is Better Hearing and Speech Month. It’s a great time to remind you about the importance of an annual hearing test with a visit to a pediatric Otorhinolaryngologist or Ear, Nose and Throat (ENT) specialist.
Oral Care Tips For Children With Craniofacial Conditions
Craniofacial conditions can affect the teeth thus making home care and dental treatment difficult. A small mouth, difficulty opening wide, crooked teeth, and soft or irregularly shaped teeth can all contribute to a challenging situation. Starting tooth care early can prevent a lot of difficulties later on.
The Dos and Don’ts Of Nutrition And Mealtime With Small Children
Establishing healthy eating habits and proper nutrition in your children is essential from a very young age, as these will impact their overall health and relationship with food for their entire lives. A well-balanced diet is vital for your child to develop both physically and cognitively, and what you teach your children about healthy eating habits can affect their body image in the future.
9 Ways To Boost Your Child’s Self-esteem
Every year, thousands of the children born with facial difference. Living with a craniofacial difference may create pressures and challenges that can affect one’s self-esteem. Here’s how you should know about these challenges so you can help empower your child to thrive in school. Be prepared for transitions. Visit your
The Thing about Wonder
By: Eloise Diaries So I finally did it… I finally read Wonder. I just sat down on Sunday morning while Landon nuzzled next to me on the couch and read it. For years now, when folks hear about Landon’s syndrome, most people offer “have you heard about the book Wonder?!”.
Zen and the Art of Cleft Discovery Part 2
In my last piece, I wrote about the different feelings that we experience as parents after finding out our child will be born with a cleft. I mentioned that doing research and coming up with a plan was a crucial part of getting to that place where you can be
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