RESOURCES

Summer 2024 Camps for the Craniofacial Community

FREE Summer Camps  1) Flying Horse Farms (Ohio; June 17-22) Flying Horse Farms Flying Horse Farms is a medical specialty camp that provides healing, transformative experiences for children with serious illnesses and their families – free of charge. Campers range from 7-21 and have diagnoses including cancer, heart conditions, rheumatologic

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Craniofacial Representation in Media

Representation matters, and allows members of the craniofacial community to feel seen, heard, and accepted. To that end, we are pleased to share that on March 10th, 2023, Disney Junior released a new Firebuds episode entitled “Cleft Hood.” “Cleft Hood” introduces Castor, a vehicle character born with a cleft hood. The episode was

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Ask The Expert: Dr. Thomas Imahiyerobo

Expert cleft and craniofacial surgeon, Thomas Imahiyerobo, MD, FAAP, FACS of Morgan Stanley Children’s Hospital in NYC sat down with us to answer some important questions on what an expectant parent can learn through prenatal counseling if they are expecting a child with a cleft lip and/or palate. What is

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Ask The Expert: Patricia Chibbaro

Patricia Chibbaro, RN, MS, CPNP, Pediatric Nurse Practitioner myFace Center for Craniofacial Care at NYU Langone Health, New York, NY., sat down with us to answer some important questions about choosing a craniofacial care team, when to choose your team, how important the psychosocial aspects of the team are and

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Families in Crisis Need Your Help Today.

With the world turned upside down in just a few weeks, I need to ask you for your support. Many of the myFace craniofacial families have been hit hard by the COVID-19 crisis and are experiencing tremendous financial stress. Some have recently lost their jobs. Two-thirds of the families we

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Self Care for Caregivers workshop

By: Rosemarie Barbalace, Social Work Intern, NYU Langone Health Self care refers to any activities and practices that we engage in on a regular basis to reduce stress, maintain, and enhance our health and well-being. Self care can be any intentional actions that you take to care for your own physical,

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Staring isn’t staring if you smile

When I first started working at myFace, one of the things I was most afraid of was hurting someone’s feelings. I had no experience with craniofacial difference prior to working here, and I know going in that I was going to be meeting new people, people who looked very different

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better hearing speech month blog

Better Hearing and Speech Month

My name is Shelley Cohen, I am the cleft and craniofacial teams’ speech-language pathologist (SLP) and the cleft team and ear, nose and throat clinic coordinator. May is Better Hearing and Speech Month. It’s a great time to remind you about the importance of an annual hearing test with a visit to a pediatric Otorhinolaryngologist or Ear, Nose and Throat (ENT) specialist.

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