SPOTLIGHTS

Little Miss Sunshine: Scarlett’s Story

We knew something was different about our daughter Scarlett almost immediately, but it was not until she was 3 months old that she was first diagnosed with right coronal craniosynostosis. In May 2005, she had her first surgery in Jacksonville, Florida and it was deemed successful. One lingering concern was

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myFace patient Kyle and his family

The O’Reillys

Kyle came into our lives 16 years ago on a beautiful, sunny day. Twelve hours later, at midnight, the doc-tors wheeled his incubator into my room so my husband and I could finally see him before they transported him via ambulance to the NICU @ NYU. I cried, thinking “he

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Volunteer Spotlights

Olivia I am a myFace volunteer because I believe in the life-changing opportunities that the organization provides each and every one of its patients. myFace is defined by passion, support, and love and I am fortunate to have filled my college break with such posi-tivity. I will forever cherish Races

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myFace blog more than meets the eye

More Than Meets the Eye

Lauren Sharaby shares her story Unlike most children, I was unable to commit to dance classes, gymnastic lessons, or the cheerleading squad. Instead, I was committed to being a patient. 16 years ago, my parents and I left our home at 5am for my first major surgery at NYU. I

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Reconstruction Aid Gives Hope to Families

By Melanie Gracye West for The Wall Street Journal Laura Posada, the wife of former Yankees catcher Jorge Posada, is stepping up to the plate to raise money for children in need of facial-reconstruction surgery. It is a cause particularly close to the Posadas. Their oldest child, Jorge Jr., was

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myFace blog Priya Singh Delhi

From India to New York: A Toddler Gets a New Face

By Priya Singh, as told to Jordan Davidson, Everyday Health When my son, Maan, was born we noticed his eyes seemed swollen. The doctor told me some swelling was normal after natural childbirth, especially considering how heavy Maan was – 4 kilograms (almost 9 pounds). My pregnancy had been uneventful.

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Helping Children born with Facial Deformities

Exactly one year ago WABC meteorologist Amy Freeze shared the following: NEW JERSEY — A local family in New Jersey is celebrating the relief and hope given to them by the National Foundation for Facial Reconstruction. Defects that might shame a child – a crooked smile, bulging eyes or a

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Inner Faces

Let’s Face the Music by Dina Zuckerberg Over 20 years ago, I was invited to attend a support group for Teen/Adults by an adult patient at The myFace Center (formerly known as the IRPS) who I met at a party. Adamant that I attend, she even offered to meet me

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myFace violet on broadway

Violet and myFace on Broadway

myFace was invited to Broadway to participate in the Round about production of Violet on Sunday, June 1, 2014. Starring two-time Tony Award® winner Sutton Foster, Violet the musical is about a young woman with a facial difference and her journey to self-acceptance. my-Face staff, Board Members, patients and families

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