Summer 2023 Camp Opportunities for the Craniofacial Community

Camp Opportunity for Children with Craniofacial Conditions and Their Siblings Camp Reflections (New Hampshire; August 13 – 19) Harbor Camps/Camp Reflections in New Hampshire offers a weeklong program designed for youth ages 8-16 living with a craniofacial difference and their siblings, providing them with a safe, non-judgmental environment where they

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My Brother, Kyle: A Sibling Perspective

My brother, Kyle, was born with a very rare condition called Nablus Syndrome. There are less than 15 documented cases in the world. It is a microdeletion of the chromosome 8q22 and is characterized as a mask-like facial appearance along with other distinct malformations of the body. As Kyle’s older

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International Face Equality Week is May 17-24th

  myFace is proud to be part of an alliance of 35 global NGO’s and nonprofits working to advocate acceptance for those withfacial differences. This May 17-24th, we come together for International Face Equality Week, a global annual campaign that celebrates the craniofacial community, highlights issues they face and advocates

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