Stories | myFace

Summer 2023 Camp Opportunities for the Craniofacial Community

Camp Opportunity for Children with Craniofacial Conditions and Their Siblings Camp Reflections (New Hampshire; August 13 – 19) Harbor Camps/Camp Reflections in New Hampshire offers a weeklong program designed for youth ages 8-16 living with a craniofacial difference and their siblings, providing them with a safe, non-judgmental environment where they

myFace Provides Assurance and Comfort To Families When They Need It Most

Providing complimentary accommodations to out-of-town families seeking craniofacial treatment in NYC is one of the many important services myFace offers to families. We work directly with our families on securing the reservations and making sure they have everything they need once they arrive to make their stay as comfortable, and

Cameradery! 📸 Brings True Camaraderie To Those With Facial Differences

Cameradery is a student-run program at Cornell University that brings young people together to appreciate – and enjoy – the art of photography through creative expression and interaction. In this safe and imaginative space, Cornell students partner with youth of all backgrounds where they collaborate and work to reveal the

myFace Joins Leading Nonprofits and Medical Organizations To Request Critical Government Funding for the NIDCR and NIH

myFace, along with 47 leading nonprofits and medical organizations, signed on to a letter from the Friends of the National Institute of Dental and Craniofacial Research (NIDCR) to the House Appropriations Committee requesting funding for the NIDCR and National Institutes of Health (NIH). The NIDCR is the largest institution dedicated

myFace Star, Ezra, Shows Us that to be a Good Gymnast, You Need Strength on the Outside and Inside

Ezra Kahn is not just any typical 15-year-old. He has a unique sense of empathy, patience and compassion for a young man his age. He also plays the cello, sings, and dances, and is a star gymnast to boot. His experience growing up with Pierre Robin Sequence has helped him

My Brother, Kyle: A Sibling Perspective

My brother, Kyle, was born with a very rare condition called Nablus Syndrome. There are less than 15 documented cases in the world. It is a microdeletion of the chromosome 8q22 and is characterized as a mask-like facial appearance along with other distinct malformations of the body. As Kyle’s older

International Face Equality Week is May 17-24th

myFace is proud to be part of an alliance of 35 global NGO’s and nonprofits working to advocate acceptance for those withfacial differences. This May 17-24th, we come together for International Face Equality Week, a global annual campaign that celebrates the craniofacial community, highlights issues they face and advocates

myFace Star, Jasmine, Shares an Original Poem with an Inspiring Message

In case you missed our post for #WorldPoetryDay, myFace Star, Jasmine Stewart, shares a poem she wrote called “Fresh Eyes” on loving the skin you’re in. a message we actively promote at myFace. Jasmine was born with a cleft lip and palate and has had several surgeries throughout her childhood

Employee Spotlight: Dina Zuckerberg Receives Prestigious ACPA Leadership Award

myFace salutes Dina Zuckerberg, myFace’s Director of Family Programs, who received the Family Services Leadership Award from the American Cleft-Palate Craniofacial Association (ACPA) as part of their 2021 Virtual Annual Meeting. Dina has often said, “I bring my life experience of growing up with a craniofacial difference to the programs

myFace Virtual Craniofacial Support Groups Ensure that Individuals and Family Members Have a Place to Turn

Our myFace Parent, Adult, and Adolescent Support Groups are a cornerstone of the help myFace offers to the craniofacial community. These groups meet on Zoom regularly throughout the month, and are designed to provide guidance, counsel and community for those living with craniofacial conditions and their families. Because of our