Laura and Malcolm Beeler are so grateful to myFace for being able to stay in the myFace Apartments over the years while they’ve sought treatment for their daughter, Ava. Now 18, Ava was born with Pfeiffer Syndrome and a cloverleaf skull, a rare and complex craniofacial condition which presented a
SPOTLIGHTS
Meet Emily – A SPIRITED “WARRIOR” AND PASSIONATE ADVOCATE FOR THE CRANIOFACIAL COMMUNITY
Emily is not your ordinary 24-year-old. In fact, she’s quite extraordinary. Emily was born with a rare craniofacial condition called Apert Syndrome causing her facial, skull bones and digits to fuse together too early in development. She’s had so many surgeries to date she doesn’t even remember all of them.
myFace Provides Assurance and Comfort To Families When They Need It Most
Providing complimentary accommodations to out-of-town families seeking craniofacial treatment in NYC is one of the many important services myFace offers to families. We work directly with our families on securing the reservations and making sure they have everything they need once they arrive to make their stay as comfortable, and
Cameradery! 📸 Brings True Camaraderie To Those With Facial Differences
Cameradery is a student-run program at Cornell University that brings young people together to appreciate – and enjoy – the art of photography through creative expression and interaction. In this safe and imaginative space, Cornell students partner with youth of all backgrounds where they collaborate and work to reveal the
myFace Joins Leading Nonprofits and Medical Organizations To Request Critical Government Funding for the NIDCR and NIH
myFace, along with 47 leading nonprofits and medical organizations, signed on to a letter from the Friends of the National Institute of Dental and Craniofacial Research (NIDCR) to the House Appropriations Committee requesting funding for the NIDCR and National Institutes of Health (NIH). The NIDCR is the largest institution dedicated
myFace Star, Ezra, Shows Us that to be a Good Gymnast, You Need Strength on the Outside and Inside
Ezra Kahn is not just any typical 15-year-old. He has a unique sense of empathy, patience and compassion for a young man his age. He also plays the cello, sings, and dances, and is a star gymnast to boot. His experience growing up with Pierre Robin Sequence has helped him
My Brother, Kyle: A Sibling Perspective
My brother, Kyle, was born with a very rare condition called Nablus Syndrome. There are less than 15 documented cases in the world. It is a microdeletion of the chromosome 8q22 and is characterized as a mask-like facial appearance along with other distinct malformations of the body. As Kyle’s older
International Face Equality Week is May 17-24th
myFace is proud to be part of an alliance of 35 global NGO’s and nonprofits working to advocate acceptance for those withfacial differences. This May 17-24th, we come together for International Face Equality Week, a global annual campaign that celebrates the craniofacial community, highlights issues they face and advocates
myFace Star, Jasmine, Shares an Original Poem with an Inspiring Message
In case you missed our post for #WorldPoetryDay, myFace Star, Jasmine Stewart, shares a poem she wrote called “Fresh Eyes” on loving the skin you’re in. a message we actively promote at myFace. Jasmine was born with a cleft lip and palate and has had several surgeries throughout her childhood
Employee Spotlight: Dina Zuckerberg Receives Prestigious ACPA Leadership Award
myFace salutes Dina Zuckerberg, myFace’s Director of Family Programs, who received the Family Services Leadership Award from the American Cleft-Palate Craniofacial Association (ACPA) as part of their 2021 Virtual Annual Meeting. Dina has often said, “I bring my life experience of growing up with a craniofacial difference to the programs
