My brother, Kyle, was born with a very rare condition called Nablus Syndrome. There are less than 15 documented cases in the world. It is a microdeletion of the chromosome 8q22 and is characterized as a mask-like facial appearance along with other distinct malformations of the body. As Kyle’s older
SPOTLIGHTS
International Face Equality Week is May 17-24th
myFace is proud to be part of an alliance of 35 global NGO’s and nonprofits working to advocate acceptance for those withfacial differences. This May 17-24th, we come together for International Face Equality Week, a global annual campaign that celebrates the craniofacial community, highlights issues they face and advocates
myFace Star, Jasmine, Shares an Original Poem with an Inspiring Message
In case you missed our post for #WorldPoetryDay, myFace Star, Jasmine Stewart, shares a poem she wrote called “Fresh Eyes” on loving the skin you’re in. a message we actively promote at myFace. Jasmine was born with a cleft lip and palate and has had several surgeries throughout her childhood
Employee Spotlight: Dina Zuckerberg Receives Prestigious ACPA Leadership Award
myFace salutes Dina Zuckerberg, myFace’s Director of Family Programs, who received the Family Services Leadership Award from the American Cleft-Palate Craniofacial Association (ACPA) as part of their 2021 Virtual Annual Meeting. Dina has often said, “I bring my life experience of growing up with a craniofacial difference to the programs
myFace Virtual Craniofacial Support Groups Ensure that Individuals and Family Members Have a Place to Turn
Our myFace Parent, Adult, and Adolescent Support Groups are a cornerstone of the help myFace offers to the craniofacial community. These groups meet on Zoom regularly throughout the month, and are designed to provide guidance, counsel and community for those living with craniofacial conditions and their families. Because of our
The myFace Wonder Project Gains Momentum: 10,000 Students Reached
The myFace Wonder Project re-launched in February and gained quick momentum and rapid recognition as schools all over the country – California, Iowa, Texas, Oklahoma, Florida, and New York – have registered to choose kindness. While myFace is continuing to recruit schools to participate, New York City Public schools were
myFace Star, high-school junior, award-winning photographer with an important message of resilience and hope
My name is Lizzie, and I was born with grade 3 microtia and aural atresia, which means I do not have an inner or outer ear. I had my first surgery at 3 to widen my right ear canal, followed by ear reconstruction on my left side at age 10
“The myFace Apartment Has Become Our Home Away From Home”
Providing complimentary accommodations to out-of-town families seeking craniofacial treatment in NYC is one of the many important services myFace offers to families. We work directly with our families on securing the reservations and making sure they have everything they need once they arrive to make their stay as comfortable, and
myFace Star, Lily, Pursues Her Passion and Dream While Always Giving Back
Lily is a very talented, passionate and determined young woman. She doesn’t just reach for the moon, but for the stars and galaxies beyond! However, since she’s also quite modest, we felt we needed to showcase just who this special high school senior is. Lily was born with a unilateral
myFace Adult Support Group to Launch a Podcast Series
Dina Zuckerberg, myFace Director of Family Programs, is working closely with members of the Adult Support Group to create and launch a unique Podcast Series in 2021. This series will inform and educate the general public about craniofacial differences and address the issues those with facial differences deal with as
