SPOTLIGHTS

My Brother, Kyle: A Sibling Perspective

My brother, Kyle, was born with a very rare condition called Nablus Syndrome. There are less than 15 documented cases in the world. It is a microdeletion of the chromosome 8q22 and is characterized as a mask-like facial appearance along with other distinct malformations of the body. As Kyle’s older

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International Face Equality Week is May 17-24th

  myFace is proud to be part of an alliance of 35 global NGO’s and nonprofits working to advocate acceptance for those withfacial differences. This May 17-24th, we come together for International Face Equality Week, a global annual campaign that celebrates the craniofacial community, highlights issues they face and advocates

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“The myFace Apartment Has Become Our Home Away From Home”

Providing complimentary accommodations to out-of-town families seeking craniofacial treatment in NYC is one of the many important services myFace offers to families. We work directly with our families on securing the reservations and making sure they have everything they need once they arrive to make their stay as comfortable, and

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myFace Adult Support Group to Launch a Podcast Series

Dina Zuckerberg, myFace Director of Family Programs, is working closely with members of the Adult Support Group to create and launch a unique Podcast Series in 2021. This series will inform and educate the general public about craniofacial differences and address the issues those with facial differences deal with as

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