myFace’s Dina Zuckerberg spoke with teenage disability advocate and TikTok sensation, Grace Nova. This episode shed light on Grace’s journey of growing up with Escobar Syndrome and how her unique experiences inspired her to use social media platforms to advocate for those in the disability and the craniofacial communities by providing an inside look on the challenges that those with differences face every day from a first-hand perspective.
Read about our guest below the video:
Grace Novacheck is a free-spirited, kind-hearted, 15 year old. She was born with a rare genetic disorder called Escobar Syndrome. To date, she has had over 30 surgeries, both orthopedic or craniofacial in nature, to improve function. Grace enjoys music, reading and hanging out with her younger sister, Iris, and her parents. Born in New York City, she now lives in Texas. She’s held on to her roots, and remains a New Yorker at heart. Grace plays the cello and piano and loves to perform. She doesn’t let her challenges stop her. Her positive mental attitude is inspiring. She has over 85,000 followers on TikTok and her videos have been viewed over 20 million times. As a disability advocate, she uses this platform to raise awareness and educate people about differences.
SHARING IS CARING
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