myFace Annual Appeal

In a year where uncertainty has been at the forefront, myFace has nimbly pivoted to continue to provide critical assistance to the craniofacial community. We are delighted to share stories of impact from myFace Stars Taina, Jasmine, AngelJayce, Riley, and their families who have participated in and benefited from myFace initiatives. These stories all illustrate how your generous partnership with us has made a difference in their lives.

myFace COVID19 Gift Card Program

In response to the COVID19 pandemic, the myFace team successfully launched the COVID19 Gift Card program to provide a $100 Amazon gift card for craniofacial families hit financially by the crisis. The gift cards allowed recipients to purchase groceries and basic household supplies they may not otherwise have been able to afford. For many of these vulnerable families, the situation became dire, and this extra monetary assistance was a lifesaver.

This is bringing me to tears that you even thought to remember me. This situation is so tough and frightening. I’ve been trying to show a strong front for the kids, but it’s scary. Thank you for having us in your thoughts. I always feel so indebted and frustrated that I can’t physically show my gratitude.

– A grateful Mom

This is bringing me to tears that you even thought to remember me. This situation is so tough and frightening. I’ve been trying to show a strong front for the kids, but it’s scary. Thank you for having us in your thoughts. I always feel so indebted and frustrated that I can’t physically show my gratitude.

– A grateful Mom

myFace Virtual Summer Series

myFace offered a nationwide Virtual Summer Series featuring 6 author Read Alouds, 4 Family-Hour Events, and concluded with a recital featuring our myFace Stars. This series helped to provide compelling educational, creative, and community-building content for patients, families, and the greater craniofacial community focused on kindness, diversity, and inclusion.

THIS SERIES REACHED:

myFace offered a nationwide Virtual Summer Series featuring 6 author Read Alouds, 4 Family-Hour Events, and concluded with a recital featuring our myFace Stars. This series helped to provide compelling educational, creative, and community-building content for patients, families, and the greater craniofacial community focused on kindness, diversity, and inclusion.

THIS SERIES REACHED:

myFace Talent Show

In March, myFace held a live, in-person Talent Show in New York City. The program was a hit and inspired us to deliver a virtual Talent Show in May. Both shows featured children with a range of craniofacial conditions, backgrounds, and talents. Most importantly, they provided an opportunity for more than a dozen myFace Stars to showcase their skills, passion, and courage in front of a live (and virtual!) audience, and gain a sense of empowerment, mastery, and confidence, knowing that they can do anything they set their mind to.

In March, myFace held a live, in-person Talent Show in New York City. The program was a hit and inspired us to deliver a virtual Talent Show in May. Both shows featured children with a range of craniofacial conditions, backgrounds, and talents. Most importantly, they provided an opportunity for more than a dozen myFace Stars to showcase their skills, passion, and courage in front of a live (and virtual!) audience, and gain a sense of empowerment, mastery, and confidence, knowing that they can do anything they set their mind to.

taina-radhika-chalasani-talentshow

Taina (born with cleft lip and palate), performing at the myFace Talent Show in March 2020.

“Taina is a warrior, as many who know her say the same.” – Rosa, Taina’s mother

Taina is 17 years old, a senior in high school and an honors student to boot. But unlike most other high school seniors, Taina was born with a unilateral cleft lip and palate, and though she wasn’t officially diagnosed with Crouzon Syndrome, she expresses features of the syndrome. She’s already had 13 surgeries to date. For Taina and her family, myFace has been there for them during their journey of treatment and care since day 1, whether it’s through The myFace Center for Craniofacial Care, monthly support groups, workshops or community events. Showing her tremendous inner strength and confidence, Taina took the stage in our myFace Talent Show where she gave a beautiful and moving performance on the piano, putting all fears aside.

myFace is a part of my life that I will always be grateful for. Ever since I can remember, myFace has served as one of my safe spaces where I can express myself without worrying about hurtful judgment and make friends with incredible people whom I can relate to. – Taina

myFace is a part of my life that I will always be grateful for. Ever since I can remember, myFace has served as one of my safe spaces where I can express myself without worrying about hurtful judgment and make friends with incredible people whom I can relate to. – Taina

Virtual Support Groups

Our Parent, Adult, and Adolescent support groups are a cornerstone of the help myFace offers to the craniofacial community. These support groups meet regularly throughout the month and are designed to provide guidance, counsel, and community for those living with craniofacial conditions and their families.

A highlight this year has been the adult group which has expanded its reach across the country and internationally as a result of our new virtual world. It now boasts participants from more than ten states, as well as, Canada and Australia.

Jasmine (Jas – born with cleft lip and palate), Adult Support Group participant.

“My advice to anyone who has a craniofacial condition and the people who love them is to find a community of people who normalize craniofacial conditions.” – Jas

Jas found myFace at the age of 39. Born with a cleft lip and palate, she had several surgeries as a young child, and recently fully “repaired her smile” at The myFace Center for Craniofacial Care. Jas wasn’t only searching for the medical care to improve her smile, she was also searching for a community.

“I needed a place to unpack the issues and thoughts that kept me bound, victimized, and misunderstood with people who could hear and see me.”

The community she found at myFace has had a significant impact on her growth and transformation. For the past two years, she has been an active member in the adult support group. She is now thrilled to be helping to create a special podcast series the group plans to launch in 2021. In fact, she will be the host of the second episode which will delve into the topic of face masks and the feelings of vulnerability for those with facial differences.

For Jas, this group is her refuge, and she refers to it as her family. Being on the inside of conversations with other people living with craniofacial conditions has helped her to “silence the negative and fall madly in love with myself unapologetically and with confidence.”

I want everyone with a facial difference to feel empowered to love themselves completely without disruption and not based on how someone else may define them. – Jas

I want everyone with a facial difference to feel empowered to love themselves completely without disruption and not based on how someone else may define them. – Jas

myFace Apartments

The myFace apartments are truly a lifesaver for out-of-town families who would otherwise have to spend hundreds of dollars a night on a hotel room in NYC. Our staff works directly with the families on securing the reservations and making sure they have everything they need. This way they can focus on what’s most important: getting the care for their loved ones.  Our goal is to make sure families know they are not alone in their journey.

Riley (born with cleft lip and palate) and her family have been coming from Maryland for treatment for the past 4 years. Riley’s most recent trip to NYC in October 2020 was last minute, as she needed some urgent surgical care. Luckily, myFace was able to be there for her family and provide them with the assurance and comfort they needed to get through this challenging time.

I can’t tell you what a relief this is for our family as we navigate this next chapter in Riley’s journey. While this has been a stressful time for us navigating this unexpected need for surgery so soon, you have eased a major burden that was hanging heavy on my mind. Thanks so much to you and the rest of the myFace team. You may not realize it, but you are true heroes to so many, especially families like ours. Please don’t ever forget that! We certainly won’t! – Angela, Riley’s Mom

I can’t tell you what a relief this is for our family as we navigate this next chapter in Riley’s journey. While this has been a stressful time for us navigating this unexpected need for surgery so soon, you have eased a major burden that was hanging heavy on my mind. Thanks so much to you and the rest of the myFace team. You may not realize it, but you are true heroes to so many, especially families like ours. Please don’t ever forget that! We certainly won’t! – Angela, Riley’s Mom

The myFace Center for Craniofacial Care

The myFace Center for Craniofacial Care at NYU Langone Health embraces a team approach with specialists who meet weekly to evaluate patients with complex problems and formulate comprehensive treatment plans.

Located within The myFace Center, The Newman Family Support Center includes the most comprehensive psychosocial team of any craniofacial center in the US.  Complementing the medical and dental care we provide to patients, our psychosocial services include: speech therapy sessions and consultations, nutrition consultations, psychosocial assessments, and psychological evaluations.

It is this holistic comprehensive approach that makes The myFace Center one-of-a-kind and the gold standard for craniofacial care.

The Institute of Reconstructive Plastic Surgery, NYU Langone Medical Center

From left to right: Dr. Pradip R. Shetye, DDS, BDS, MDS, Director, Craniofacial Orthodontics & David A. Staffenberg, MD, DSc (Hon) Vice Chair for Pediatric Plastic Surgery, Hansjörg Wyss Department of Plastic Surgery, NYU Langone Health

angeljayce-beforeandafter

AngelJayce (born with cleft lip and palate)

CarlaMarie calls AngelJayce her “miracle baby,” and no one can get enough of his beautiful “forever smile” which illuminates everyone’s world – along with his charismatic and gregarious personality.

At only 2 years of age, AngelJayce has already had two surgeries to repair his cleft lip and palate and a surgery to replace his ear tube to help him hear. He’s just started speech therapy to hone his speech and language articulation.

“myFace is an army on the frontlines that protects and guides all craniofacial  families.”

CarlaMarie says her biggest fear right now is for AngelJayce to lose his confidence due to bullying. Even with the strong support system and love he has at home, she recognizes that it can take just one bully at school or outside the home to shatter one’s self-love and self-worth. Luckily myFace seeks to educate and inform students, teachers, adults – everyone in the community – about living with a facial difference and the importance of acceptance, choosing kind and celebrating uniqueness at every turn. We remind people that just because someone may look different on the outside, it does not mean they are different on the inside.

For CarlaMarie and her family, myFace and our community will always be there for our craniofacial patients and their families, offering the care, emotional support, guidance, and resources for them to lead full and productive lives.

myFace is our second family and our pillar of support. It is a loving community that has created a safe haven for us. – CarlaMarie, AngelJayce’s mother

myFace is our second family and our pillar of support. It is a loving community that has created a safe haven for us. – CarlaMarie, AngelJayce’s mother

myFace Races for Faces

On Saturday, September 26th, hundreds of individuals came together in solidarity for our 8th Annual Races for Faces event, celebrating differences, promoting acceptance and bringing awareness to the craniofacial community.

The day kicked off with a Virtual Celebration Event with NY’s Channel 7 Eyewitness News meteorologist, Jeff Smith, as our emcee. People joined from across the country and as far away as Hungary!

NASCAR driver, Joe Graf, Jr. spoke of his personal connection to myFace through his sister. To support us, he completed 200 laps at the Xfinity Series Alsco 300 in Las Vegas and rallied the racing community around Races for Faces.

Comedian and author, Sarah Cooper, shared a heartfelt message about her sister who was born with Treacher Collins Syndrome. And radio personality, Cousin Brucie, spoke passionately of why he has supported myFace
for over 2 decades.

Our extraordinary Grand Marshal families, the Murillos, the Kahns and the Ruckers, took the spotlight. Each family had a story of inspiration, and by sharing it, they helped us amplify the important work we do for the entire craniofacial community and beyond!

On Saturday, September 26th, hundreds of individuals came together in solidarity for our 8th Annual Races for Faces event, celebrating differences, promoting acceptance and bringing awareness to the craniofacial community.

The day kicked off with a Virtual Celebration Event with NY’s Channel 7 Eyewitness News meteorologist, Jeff Smith, as our emcee. People joined from across the country and as far away as Hungary!

NASCAR driver, Joe Graf, Jr. spoke of his personal connection to myFace through his sister. To support us, he completed 200 laps at the Xfinity Series Alsco 300 in Las Vegas and rallied the racing community around Races for Faces.

Comedian and author, Sarah Cooper, shared a heartfelt message about her sister who was born with Treacher Collins Syndrome. And radio personality, Cousin Brucie, spoke passionately of why he has supported myFace
for over 2 decades.

Our extraordinary Grand Marshal families, the Murillos, the Kahns and the Ruckers, took the spotlight. Each family had a story of inspiration, and by sharing it, they helped us amplify the important work we do for the entire craniofacial community and beyond!

RACES FOR FACES IMPACT:

We invite you to join us in making your annual gift today.

Your contribution enables us to expand our capacity to reach across the country with the conviction that we can impact even more families who need us, and raise critical public awareness about craniofacial differences.

As we all look toward 2021, the new year marks an important myFace milestone where we will  commemorate 70 years since our work began. Of course, we will celebrate what has been accomplished. But more importantly, we will point the compass toward all that we know we can achieve in the future and the legacy we can build over the next 70 years. With a child born every hour with a craniofacial difference in this country, we have so much work to do and so many individuals to serve.

myFace is laser focused on broadening our horizons and actively launching innovative programs across the nation that will pave the way for better outcomes. We aim to provide families with the tools and roadmap they need to successfully navigate their journey.

With generous donors like you by our side, we know we can do it.

Through our commitment to providing access to holistic comprehensive care, we can truly change outcomes and allow each individual to live their best life possible.

myFace is keenly aware of the many choices donors have in how they direct their charitable giving.

At the core of myFace’s fiduciary responsibility is the commitment to be outstanding stewards of donors’ trust and ensure that administrative and fundraising costs are kept to a minimum. And that our programs have a direct impact on the people we serve.

  • Programs
  • Fundraising
  • Administration

We invite you to join us in making your annual gift today.

Your contribution enables us to expand our capacity to reach across the country with the conviction that we can impact even more families who need us, and raise critical public awareness about craniofacial differences.

As we all look toward 2021, the new year marks an important myFace milestone where we will  commemorate 70 years since our work began. Of course, we will celebrate what has been accomplished. But more importantly, we will point the compass toward all that we know we can achieve in the future and the legacy we can build over the next 70 years. With a child born every hour with a craniofacial difference in this country, we have so much work to do and so many individuals to serve.

myFace is laser focused on broadening our horizons and actively launching innovative programs across the nation that will pave the way for better outcomes. We aim to provide families with the tools and roadmap they need to successfully navigate their journey.

With generous donors like you by our side, we know we can do it.

Through our commitment to providing access to holistic comprehensive care, we can truly change outcomes and allow each individual to live their best life possible.

myFace is keenly aware of the many choices donors have in how they direct their charitable giving.

At the core of myFace’s fiduciary responsibility is the commitment to be outstanding stewards of donors’ trust and ensure that administrative and fundraising costs are kept to a minimum. And that our programs have a direct impact on the people we serve.

  • Programs
  • Fundraising
  • Administration

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