My sweet, beautiful, feisty 14-year-old son Brandon started his life with a lot of love – but also complications, and a multitude of surgeries. Not only was Brandon born premature at 30 weeks, weighing just 2lbs, 10ozs – but he also had a rare genetic condition called MED13L. This condition
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See full PRWeb Release Here NEW YORK, August 31 2022 The mission of Handcraft Burgers & Brew goes beyond providing New York City with delicious, hand-crafted, and fresh gourmet burgers and craft beers – one of their core values is also giving back to the community. Each month, they feature a different
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myFace community member Charmaine Cooper was featured in the Future of Personal Health, a Mediaplanet site focusing on health insights and news, patient stories, and the latest in diagnostic and treatment options. In this interview, Charmaine opens up about her experience growing up with Treacher Collins Syndrome and how that
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myFace community member Naomi Hadar (Levenshtein) was featured in the Future of Personal Health, a Mediaplanet site focusing on health insights and news, patient stories, and the latest in diagnostic and treatment options. In this interview, Naomi opens up about her experiences with Van der Woude Syndrome, cleft lip, and
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myFace Star Nicholas Zollo wrote a piece for the Future of Personal Health, a Mediaplanet site focusing on health insights and news, patient stories, and the latest in diagnostic and treatment options. In his piece, Nicholos writes about his experience of living with a cleft lip and palate, and the
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myFace Star Ava Beeler was featured in the Future of Personal Health, a Mediaplanet site focusing on health insights and news, patient stories, and the latest in diagnostic and treatment options. In this article, Ava opens up about her experience living with Pfeiffer Syndrome and maintaining a positive outlook despite
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Click here to download a PDF version of the Summer 2022 Newsletter Dear Reader, As we approach the end of summer, I am so excited to share all that we have been able to accomplish, thanks to your generosity. I hope you enjoy reading this issue of the YOUR
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myFace Executive Director Stephanie Paul sat down with the Great.com Podcast to spread the word about the comprehensive work we do to support and uplift members of the craniofacial community. Read more about the interview here, listen to the podcast on your favorite platform, and/or
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Every year, myFace helps hundreds of children born with craniofacial disorders, and supports thousands of procedures and consultations. It can be incredibly difficult for everyone: the parents, the medical team, and of course, the children themselves. Meet Flossy, one of our myFace Heroes. Her bravery and resilience are an inspiration
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Every year, myFace helps hundreds of children born with craniofacial disorders, and supports thousands of procedures and consultations. It can be incredibly difficult for everyone: the parents, the medical team, and of course, the children themselves. Meet Jahzara, one of our myFace Heroes. Her bravery and resilience are an inspiration
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By making a donation to myFace, you enable us to continue our mission of providing quality comprehensive craniofacial care and support, as well as education and information that empower patients, families and the greater craniofacial community, enabling them to lead full and productive lives.
Downloadable content to help parents and families navigate the everyday issues that can accompany life with a craniofacial condition.
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