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Meet Emily – A SPIRITED “WARRIOR” AND PASSIONATE ADVOCATE FOR THE CRANIOFACIAL COMMUNITY

Emily is not your ordinary 24-year-old. In fact, she’s quite extraordinary. Emily was born with a rare craniofacial condition called Apert Syndrome causing her facial, skull bones and digits to fuse together too early in development. She’s had so many surgeries to date she doesn’t even remember all of them.

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Download TodayCraniofacial Care Guide for Parents

Downloadable content to help parents and families navigate the everyday issues that can accompany life with a craniofacial condition.

Information includes:

  • nutrition needs
  • building self-esteem
  • finding a care team
  • tips for healthcare appointments
  • and more!

Download the myFace Parent Worksheet

Enter your email address below to receive your copy of our Parent Worksheet to help prepare for your child’s medical appointment.

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