Blog

3-year-old boy from India has life-changing facial reconstruction at NYU

By Meredith Engel for The New York Daily News A 3-year-old boy has a new face — and lease on life — after surgery for a rare genetic condition that caused him pain and humiliation. Maan Singh was born in India with Pfeiffer syndrome, which causes his skull and facial

myFace patient Nathaniel Newman and his family

Navigation Tools for Back-to-School

Since I started last year as Director of Family Programs at myFace and as a former patient myself, I have had parents reach out to me expressing concern for their child entering school for the first time. How will they handle the stares, the teasing, and the bullying? Will they

Reconstruction Aid Gives Hope to Families

By Melanie Gracye West for The Wall Street Journal Laura Posada, the wife of former Yankees catcher Jorge Posada, is stepping up to the plate to raise money for children in need of facial-reconstruction surgery. It is a cause particularly close to the Posadas. Their oldest child, Jorge Jr., was

From India to New York: A Toddler Gets a New Face

By Priya Singh, as told to Jordan Davidson, Everyday Health When my son, Maan, was born we noticed his eyes seemed swollen. The doctor told me some swelling was normal after natural childbirth, especially considering how heavy Maan was – 4 kilograms (almost 9 pounds). My pregnancy had been uneventful.

Helping Children born with Facial Deformities

Exactly one year ago WABC meteorologist Amy Freeze shared the following: NEW JERSEY — A local family in New Jersey is celebrating the relief and hope given to them by the National Foundation for Facial Reconstruction. Defects that might shame a child – a crooked smile, bulging eyes or a

Inner Faces

Let’s Face the Music by Dina Zuckerberg Over 20 years ago, I was invited to attend a support group for Teen/Adults by an adult patient at The myFace Center (formerly known as the IRPS) who I met at a party. Adamant that I attend, she even offered to meet me

Violet and myFace on Broadway

myFace was invited to Broadway to participate in the Round about production of Violet on Sunday, June 1, 2014. Starring two-time Tony Award® winner Sutton Foster, Violet the musical is about a young woman with a facial difference and her journey to self-acceptance. my-Face staff, Board Members, patients and families

Hakuna Matata: Elijah and the Evans Family

Have you ever looked back and thought, “Wow, my life looks so different than it did this time last year!”? That’s us…the Evans Family. My husband Nate and I were trying to finish up our homestudy for domestic adoption this time last year. Fast forward to September, and we were

Patient Spotlight: Kenny

As Superstorm Sandy battered New York City on October 29, 2012, Kenny, diagnosed in utero with a bilateral cleft lip and palate and Mosaic Trisomy 16, was delivered via emergency C-section. At 2.1 pounds, Kenny was one of the four newborn babies born that day who relied on respirators to

Patient Spotlight: Nathaniel

A decade! An entire decade has passed since Nathaniel joined us on February 7th, 2004. With no in utero diagnosis, Nathaniel’s birth was both a joyous moment and a moment of utter fear and panic. Born at a New York area hospital not quite equipped to handle what was later