This webinar aired on March 5, 2025

Transforming Lives: Diagnosis and Management of the Individual With Cleft Lip and Palate

In this one-hour program, you will hear expert perspectives to help you better understand how to navigate the diagnosis and management of individuals with cleft lip and palate.

LEARNING OBJECTIVES

• Define cleft lip and palate (including when it can be prenatally diagnosed) 
• Describe the presurgical orthodontic management options 
• Outline the possible surgical procedures required during the life of a child with a cleft lip/palate 
• Identify the possible feeding and speech challenges for children with a cleft palate 

Meg Lico, MS, CCC-SLP
Speech Language Pathologist
myFace Center for Craniofacial Care at NYU Langone Health
New York, NY

Roberto Flores, MD
Joseph G. McCarthy Associate Professor of Reconstructive Plastic Surgery
Director Cleft Lip and Palate
Director Craniofacial Surgery Fellowship
Hansjorg Wyss Department of Plastic Surgery
NYU Langone Medical Center
New York, NY

Webinar Summary: Diagnosis and Management of Cleft Lip and Palate

Key Learning Objectives

Attendees gained insights into:

• When to seek prenatal consultation if cleft is detected
• Understanding the surgical timeline and treatment options
• Identifying essential team members for comprehensive care
• Recognizing feeding and speech challenges and solutions

Treatment Timeline Overview

Early Infancy (0-6 months)

• Feeding support and specialized bottles
• Nasoalveolar molding (NAM) or PLANA treatment to prepare for surgery
• Team coordination for optimal outcomes

Primary Surgeries

• Cleft lip repair: 3-5 months of age
• Cleft palate repair: Around 1 year of age
• Single-stage approach preferred to minimize multiple procedures

School Age

• Alveolar bone grafting: 8-9 years of age when needed
• Speech therapy evaluation and treatment
• Orthodontic intervention as required

Adult Care

• Final jaw surgery if needed (after growth completion)
• Rhinoplasty and final touch-up procedures
• Long-term dental care considerations

The Importance of Team-Based Care

Dr. Flores emphasized that successful cleft care requires an interdisciplinary team including:

• Plastic surgeon
• Speech-language pathologist
• Ortodoncista
• Dietitian
• Nurse practitioner
• Social worker
• Audiologist/ENT specialist

Patient Success Story

The webinar featured Abby Rucker (now Pexton), a patient who underwent her cleft lip repair on September 11, 2001. Her family shared their journey, emphasizing the importance of:

• Early prenatal consultation and preparation
• Building trust with the care team
• Open communication throughout treatment
• Patience and family support during challenges

Abby spoke candidly about social challenges she faced, including difficulties with eating in public during school years, while highlighting how the comprehensive care and family support helped her develop confidence and resilience.

Key Takeaways for Families

For New Parents:

• Prenatal detection occurs in 75-80% of cases, allowing for early preparation
• Each child’s journey is personalized based on their specific needs
• Modern treatment protocols aim for minimal surgeries and maximum function

For Ongoing Care:

• Early intervention in speech therapy yields better outcomes
• Feeding challenges are manageable with proper support and equipment
• Building patient autonomy and self-advocacy skills is crucial

For Team Selection:

• Look for experienced, dedicated specialists who work together regularly
• Review before/after photos and speak with other families
• Ensure access to comprehensive services in one location when possible

Resources Available

myFace offers ongoing support through:

• Virtual support groups for patients and families
• Educational webinars and resources
• Wonder Project school presentations to promote understanding and prevent bullying
• myFace, myStory podcast for community connections and advocacy

This webinar recording and additional resources are available on the myFace website. For questions about cleft care or to connect with support services, contact info@myface.org.