As told by Betsy, Kyles’s Mom: “Our son has a rare condition (we don’t like to use the word “disease”) called Nablus Syndrome. It is a micro deletion of the chromosome at 8q22 and is characterized as a mask-like facial appearance along with other distinct malformations of the body. As
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As told by Leah, Logan’s Mom: “Logan as I named him was born with a bilateral cleft lip and aneterior palate. Ear pits. Anal stenosis. Oh and a very rare condition called microphthalmia / anophthalmia. This is the medical term for the absence of one or both eyes. Both the
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By: Rosemarie Barbalace, Social Work Intern, NYU Langone Health Self care refers to any activities and practices that we engage in on a regular basis to reduce stress, maintain, and enhance our health and well-being. Self care can be any intentional actions that you take to care for your own physical,
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NYU Langone Health patient and myFace Star, Cameron, had a face transplant in January, under the leadership of Dr. Eduardo D Rodriguez, MD, DDS. myFace supported Cameron throughout this journey by providing travel and housing for his many trips back and forth between CA and NYC and more than 150
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Meet Gospel. Gospel is a beautiful, vibrant and determined 13-year-old – wise beyond her years. Her home is in Kingston, Jamaica, but she has spent the last couple of years in the US living with a host family so that she could undergo the special reconstructive surgeries she desperately needed
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Hello, My name is Christopher Stadulis and I was born with a cleft lip and palate. Like so many of the kids that myFace helps, I know all too well the difficulty one can have growing up with a birth defect, disability or some sort of physical difference. Within the
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Last weekend, myFace Star, Billy Duthie went for the gold at the Special Olympics in New Jersey when he competed in the mini javelin and 400 meter run competitions. Billy emerged the champion of the mini javelin with a throw of 28.5 meters and took home the silver for the
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Contact: Alexis Thomas alexis.m.thomas@gmail.com NEW YORK, NY, May 2, 2018 – myFace, a leading non-profit organization dedicated to transforming the lives of patients with craniofacial conditions, is pleased to announce that Jacob Tremblay will be this year’s recipient of the Ramey-Ross award for his role in the film WONDER and
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When I first started working at myFace, one of the things I was most afraid of was hurting someone’s feelings. I had no experience with craniofacial difference prior to working here, and I know going in that I was going to be meeting new people, people who looked very different
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There are a lot of amazing young myFace patients, but did you know myFace helps adult craniofacial patients as well? Earlier this year we hosted Juan Carlos, a native of Ecuador, in our apartments while he was having surgery. We wanted to share this email we recently received from him,
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