The day after I was born, a geneticist was able to inform my parents that I had a rare congenital birth defect, though they were unsure how to proceed. The condition caused the bones of my skull, mid-face and spinal column to be malformed, causing a multitude of other medical problems.
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The myFace Blog
9 Ways To Boost Your Child’s Self-Esteem
Every year, thousands of the children born with facial difference. Living with a craniofacial difference may create pressures and challenges that can affect one’s self-esteem. Here’s how you should know about these challenges so you can help empower your child to thrive in school. 1.Be prepared for transitions. Visit your
Why We Give
Several years ago, Nick O’Neill and Mary Valiante found themselves in the happy position of being able to increase their charitable donations. After researching myFace and the work the organization does, Nick and Mary felt myFace would fit perfectly with their desire to support patients in need of facial reconstruction.
A Father’s Reflection
I have a quick reflection about fatherhood and love that I’ve been meaning to write about for awhile. As a father one of the biggest things I learned about parenthood from my dad was to love and sacrifice. For different people those things manifest in an infinite number of ways.
Face-transplant recipient meets dead donor’s sister
myFace is honored to provide critical psychosocial services to Richard Lee Norris on an ongoing basis including speech therapy, nutritional support and psychological counseling. myFace additionally provides airline transportation and housing to Richard when he travels to NYC for his medical appointments. He has become an integral member of the
The Thing about Wonder
By: Eloise Diaries So I finally did it… I finally read Wonder. I just sat down on Sunday morning while Landon nuzzled next to me on the couch and read it. For years now, when folks hear about Landon’s syndrome, most people offer “have you heard about the book Wonder?!”.
Posada Delivers in Clutch
By: William Montgomery for Times Herald-Record NEWBURGH — A few hundred Yankees fans gathered at Orange County Choppers on Sunday to wait for an autograph and handshake from Jorge Posada. They brought bats and balls and posters. And it was all for a good cause. Posada was joined by his
Zen and the Art of Cleft Discovery Part 2
In my last piece, I wrote about the different feelings that we experience as parents after finding out our child will be born with a cleft. I mentioned that doing research and coming up with a plan was a crucial part of getting to that place where you can be
Zen and the Art of Cleft Discovery Part I
By: Shawn Sadjatumwadee Jan 10, 2014. This same date exactly a year ago, I barely had any idea what a cleft lip was and certainly didn’t know what a cleft palate was. We had just found out my wife, Tene, was pregnant with our second child, and started the long
I am Ellie
By Ellie My name is Ellie, I’m 16 years old and I was born with a craniofacial syndrome called Pfeiffer Syndrome. Because of this, I’ve had multiple surgeries on my skull and face, I had a trach for 6 years and I’ve worn a hearing-aid my entire life. At exactly
Sea cual sea la forma de donar, su ayuda tiene un impacto directo y duradero.
Al hacer un donativo a myFace, nos permite continuar con nuestra misión de proporcionar atención y apoyo craneofaciales integrales de calidad, así como educación e información que capaciten a los pacientes, las familias y la comunidad craneofacial en general, permitiéndoles llevar una vida plena y productiva.
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