defect birth Archives | MyFace

Tagged as: defect birth

The Face of Life

The world offers us lessons that we can choose to either grasp tightly or hold onto loosely. Some define us, while others might be mistakenly overlooked. Over the last couple of years, I realized that my younger, free spirited, high energy and above all, smiling self was just a dream.

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family spotlight father's day post

Family Spotlight: Father’s Day Edition 2016

In honor of Father’s Day, we want to recognize awesome fathers everywhere; in particular we would like to highlight Russel Newman, proud and dedicated father of Nathaniel. Nathaniel was born with Treacher Collins syndrome 12 years ago and has so far undergone 56 surgeries.

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Family Spotlight: The Pleasants-Smith Family

We are a family of five, with three terrific kids: McLaine, Jaimeson and Andy. McLaine is our 21-year-old college student. She was born without a facial difference. Our 18-year-old daughter, Jaimeson, was born with a severe expression of Treacher Collins Syndrome. Two years after Jaimeson was born, we adopted our

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myFace patient pia

A life Changing Experience

The day after I was born, a geneticist was able to inform my parents that I had a rare congenital birth defect, though they were unsure how to proceed. The condition caused the bones of my skull, mid-face and spinal column to be malformed, causing a multitude of other medical problems.

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Why We Give

Several years ago, Nick O’Neill and Mary Valiante found themselves in the happy position of being able to increase their charitable donations. After researching myFace and the work the organization does, Nick and Mary felt myFace would fit perfectly with their desire to support patients in need of facial reconstruction.

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Zen and the Art of Cleft Discovery Part I

By: Shawn Sadjatumwadee Jan 10, 2014. This same date exactly a year ago, I barely had any idea what a cleft lip was and certainly didn’t know what a cleft palate was. We had just found out my wife, Tene, was pregnant with our second child, and started the long

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myFace patient Kyle and his family

The O’Reillys

Kyle came into our lives 16 years ago on a beautiful, sunny day. Twelve hours later, at midnight, the doc-tors wheeled his incubator into my room so my husband and I could finally see him before they transported him via ambulance to the NICU @ NYU. I cried, thinking “he

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Hakuna Matata: Elijah and the Evans Family

Have you ever looked back and thought, “Wow, my life looks so different than it did this time last year!”? That’s us…the Evans Family. My husband Nate and I were trying to finish up our homestudy for domestic adoption this time last year. Fast forward to September, and we were

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myFace patient Kenny

Patient Spotlight: Kenny

As Superstorm Sandy battered New York City on October 29, 2012, Kenny, diagnosed in utero with a bilateral cleft lip and palate and Mosaic Trisomy 16, was delivered via emergency C-section. At 2.1 pounds, Kenny was one of the four newborn babies born that day who relied on respirators to

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