Press | myFace

Press

The word of myFace’s mission is spreading! Here, stay up-to-date with all press appearances of/by the faces of myFace.

TV

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CBS New York

A REAL LIFE WONDER FAMILY

It’s an uplifting story of a family dealing with a serious birth defect. CBS2’s Dr. Max Gomez has more.

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ABC Eyewitness News

LONG ISALND GIRL WITH TREACHER COLLINS HOPES ‘WONDER’ RAISES AWARENESS

One middle school student from Long Island is hoping “Wonder” can raise awareness and understanding for children living with disabilities.

Hannah is 12-years-old and like Auggie in the book and movie, Hannah has the genetic condition known as Treacher Collins Syndrome, affecting her tissue, her muscles and bones in her face.

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ABC 20/20

“20/20” FOLLOWS AN INSPIRATIONAL FAMILY AS THEY ADJUST TO LIFE WITH SON’S RARE FACIAL CONDITION

13-Year-Old Nathaniel Newman Has Been Called the Real Life Story of a Character from Best-Selling Book and Forthcoming Movie, “Wonder”.

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ABC Eyewitness News

HELPING CHILDREN BORN WITH FACIAL DEFORMITIES

A local family in New Jersey is celebrating the relief and hope given to them by the National Foundation for Facial Surgery. Defects that might shame a child – a crooked smile, bulging eyes or a missing ear – are all conditions that one in 700 children in America are born with. It happened to the Fernando Family, but instead of hiding their challenges, they are inspiring others.

WEB

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PEOPLE

REAL-LIFE WONDER KIDS TALK ABOUT THEIR LIVES AND HOW THEY ‘SHAKE OFF’ BULLYING

People Now sat down with five “myFace kids” who have Treachers Collins syndrome, Van der Woode syndrome, Nager Syndrome, Goldenhar Syndrome and cleft lip and palate — to discuss their lives and how they deal with adversity. The kids, who age from 9 to 13, have all learned to deal with often rude questions from strangers about their condition. Often, they have to cope with bullying, but they have remained resilient through it all.

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NEW YORK POST

‘WONDER’ IS REAL LIFE FOR THESE TWO FAMILIES

All in all, “Wonder” might shed light on how for children with craniofacial conditions and their families, social and emotional support have become an important part of medical treatment.
It’s become so important that Dr. Roberto Flores, a pediatric reconstructive surgeon at NYU Langone Health, said that a psychologist sits within his medical unit to provide those services to patients with facial differences. The nonprofit organization called myFace provides the support for that psychological expertise, he said…

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NEW YORK POST

WHAT IT’S REALLY LIKE TO HAVE THE RARE DISEASE IN ‘WONDER’

If there’s anyone who can weigh in on “Wonder,” the Julia Roberts and Owen Wilson film out Friday, it’s 12-year-old Hannah.
The spunky Long Islander was born with the same facial disfigurement as 10-year-old Auggie of the film, adapted from R.J. Palacio’s best-selling children’s novel. Wearing prosthetics, “Room” star Jacob Tremblay plays Auggie, who, after years of home-schooling, enters fifth grade wearing an astronaut’s helmet. When he finally does show his face, he relies on family, friends and his sense of humor to ward off bullying and rejection…

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GAP Kids + Lionsgate

LIONSGATE & GAPKIDS LAUNCH THE “WONDER #CHOOSEKIND T-SHIRT COLLECTION” IN HONOR OF WORLD KINDNESS DAY

Proceeds benefit Children’s Craniofacial Association and myFace
T-Shirts Available for Purchase at Gap.com and select North American flagship stores.

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Good Housekeeping

The Author of “Wonder” (Soon to Be a Movie!) Answers Questions From a 5th Grade Class

R.J. Palacio, the best-selling author of Wonder, breaks down the inspiration behind it — and how she really feels about collaborating with Hollywood. In anticipation of the film adaptation’s release on November 17, Palacio answers questions from the fifth grade class of teacher Shannon Lekas’ fifth grade classroom. She talked all about her choices in the book, and why it means so much to her — and millions of readers at home.

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L.I. Herald

‘Choosing kind’ at South Side Middle School

Students learn about facial abnormalities and the meaning of empathy… Sixth- and seventh-graders gazed quietly at a glowing screen in South Side Middle School’s dark auditorium on Oct. 12 as children with craniofacial abnormalities explained the bullying and hurtful stares from others that they endure daily because of their appearance.

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Newsday

National Bullying Prevention month focuses on kindness

The importance of kindness is a critical topic in classrooms across Long Island throughout October. In recognition of National Bullying Prevention Month, dozens of schools have been hosting programs and activities designed to help children look out for one another and reject bullying.

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Merrick Union Free School District

Lakeside Sets an Example by Choosing Kinder Words

The valuable messages of empathy, acceptance and understanding differences were supported with an important assembly recently conducted at Levy Lakeside Elementary School by the myFace organization. Representatives from myFace, a nonprofit organization that creates awareness and helps improve the lives of people living with craniofacial conditions focused on celebrating uniqueness and always choosing to be kind.

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Society of Actuaries

How My Daughter’s Health Condition Influenced Me as an Actuary

My daughter Samara, whom we affectionately call Sami, was born in April 2016 with a bilateral cleft lip and palate. Having a child with a medical condition is difficult for any parent, but for me, as a health actuary, the experience was also fascinating, as I got a firsthand look at navigating the complicated world of health insurance.

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NYU Langone Medical Center

Grant Establishes myFace Center for Craniofacial Care at the Hansjörg Wyss Department of Plastic Surgery at NYU Langone

NYU School of Medicine announced a $2 million grant from myFace, a nonprofit organization founded to assist those with facial disfigurement and a longtime benefactor of the Hansjörg Wyss Department of Plastic Surgery.

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Bloomberg

SCENE LAST NIGHT: MyFace, WOMEN & SCIENCE, FOOD and DRINK GALAS

On Thursday night, guests lined up to watch 3-D animations of craniofacial surgeries. The demo was part of the annual gala for myFace, which supports patients at the Institute of Reconstructive Plastic Surgery at NYU Langone.

Youth Elixirs on the Gala Circuit Rival Warren Buffett’s Coke

Guests at the benefit for myFace on Wednesday had a lesson in empathy when Broadway starlet Emerson Steele read the story of a girl with facial deformities who benefited from the non-profit’s support services. “I do eat some stuff with my mouth, but with my jaw being so small, it’s hard to eat like everyone else,” Steele read at Pier 60.

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The Huffington Post

How One Organization Transformed a Family and Gives Hope to Thousands of Others

“Dealing with a child with such complex medical needs, and a rare condition to boot, leaves you feeling scared, lost, sad, frustrated, overwhelmed and alone,” says Fernando who adds that many times critical intervention was needed after surgeries to ensure Kiran lived. And she credits this to his team of doctors at the The myFace Center (formerly known as the IRPS) who expertly know how to deal with all phases of Kiran’s care.

Changing Faces and Transforming Lives: Why the National Foundation for Facial Reconstruction (NFFR) Is So Cool

myFace provided patients with facial differences with the most state-of-the-art medical treatment while also offering excellent educational, family and psychological support. There’s even a rich psychosocial component. The Newman Family Support Center offers a wide range of family programs which greatly complement the medical treatment patients’ receive.

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The Wall Street Journal

Reconstruction Aid Gives Hope to Families

Laura Posada, the wife of former Yankees catcher Jorge Posada, is stepping up to the plate to raise money for children in need of facial-reconstruction surgery.

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Times Herald-Record

Posada delivers in clutch

Proceeds from the event went to myFace, a charity organization formerly known as the National Foundation for Facial Reconstruction. Jorge Jr., 15, suffered from craniosynostosis, a condition affecting the growth of the skull in infants. He underwent numerous surgeries over the years, but has started playing baseball in Miami, where the Posadas reside.

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Parade Magazine

Read This Unforgettable Letter from a Boy with Treacher-Collins Syndrome

11-year-old Nathaniel has a good solution. Each year, the Reno Nevada sixth-grader and his family write a start-of-the-school-year letter to his peers and teachers. It’s now a yearly tradition. “We include a picture of Nathaniel,” explains Nathaniel’s father. “It takes away some of the shock factor but more importantly affords parents an opportunity to discuss Nathaniel’s differences.”

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The NY Daily News

3-year-old boy from India has life-changing facial reconstruction at NYU

A 3-year-old boy has a new face — and lease on life — after surgery for a rare genetic condition that caused him pain and humiliation. MyFace brought Maan and his parents to New York in May for his initial six-hour surgery with Staffenberg on June 4. The surgeon and his team had to move the bones in Maan’s forehead, eye sockets, nose and upper jaw all together as one unit. It’s a very dangerous surgery to begin with — made even more complicated by the fact that Maan is just 3 years old.

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Everyday Health

From India to New York: A Toddler Gets a New Face

Days later I received a call from Dr. David Staffenberg, a craniofacial surgeon there, informing me that The myFace Center (formerly known as the IRPS) would do Maan’s surgery for free. I began looking for an organization that could help us, which is when I found MyFace, a non-profit organization that helps families whose children have facial deformities. MyFace helped us with everything from airfare to visas – they even helped us with our living arrangements. The only thing left was to leave India.

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