{"id":8823,"date":"2019-07-23T12:56:45","date_gmt":"2019-07-23T16:56:45","guid":{"rendered":"http:\/\/www.myface.org\/?p=8823"},"modified":"2019-07-31T16:16:02","modified_gmt":"2019-07-31T20:16:02","slug":"logans-story","status":"publish","type":"post","link":"https:\/\/www.myface.org\/es\/logans-story\/","title":{"rendered":"Logan’s Story"},"content":{"rendered":"

As told by Leah, Logan’s Mom:<\/em><\/p>\n

“Logan as I named him was born with a bilateral cleft lip and aneterior palate. Ear pits. Anal stenosis. Oh and a very rare condition called microphthalmia \/ anophthalmia. This is the medical term for the absence of one or both eyes. Both the globe (human eye) and the ocular tissue that are missing from the orbit. For us it was both. I\u2019ll never forget the doctor telling me, your son has no eyes. He\u2019s never going to see. He\u2019s blind. I felt like someone stabbed me in the heart. I said take my eyes. Right there and then. When can we schedule a transplant? Sadly that wasn\u2019t and isn\u2019t an option. I didn\u2019t know what to concentrate on first. The lip. The palate. The eyes. Where do I start? What does this mean? I was so scared. I felt like such a failure.\u00a0 They didn\u2019t know if he had a functioning brain. If he would walk. If he would talk. If he could ever feed himself. If he would even survive. Does he have a syndrome? What\u2019s life expectancy and quality with Syndrome A or Syndrome B, if he even has either of them. I was afraid to ask the doctors any questions because each question would have an answer. And for now all I was getting were answers that I didn\u2019t want and couldn\u2019t believe. This can\u2019t be my new reality. Every decision was solely on my shoulders. What if I made the wrong one?”<\/p>\n

“One of the first people I met was Shelley Cohen from The Craniofacial and Reconstructive Surgical Team at NYU<\/a>. Patiently teaching a first time mom how to feed her newborn. This was so far from the experience I imagined. I was there going through the motions, but I wasn\u2019t present. Explaining our treatment options and the steps we were to take with something called a nasoalveolar molding, something that would expand the tissue in preparation for Logans cleft lip and plate repair. Kind of like an orthodontic retainer that would also improve the shape of his nose. That molding dictated our lives for the next seven months. Weekly appointments to alter the molding as Logans tissue was evolving. Seven plus hours in surgery, But the outcome was nothing short of perfection. I did initially miss his cleft face as it was the only Logan I knew. It was almost like I had a new baby now with a completely different face. I\u2019m forever grateful to the entire team for the care and compassion they have and continue to show us. For holding my hand and making sure I didn\u2019t pass out \u00a0while watching him scream as he was having his stitches removed. How unfair I thought it all was. Other babies are out for a stroll or on the swings while he\u2019s in therapy or in the hospital. I do not even notice his scars anymore but I don\u2019t think I really ever did. Others do. Extensive dental work both past and future are still on the agenda. Possible future surgeries depending on how his bone grows and changes. And can\u2019t forget the mandated daily speech therapy that I have to fight so hard to obtain for him.”<\/p>\n

“Amid all the hardships, setbacks, observations, evaluations, doctors appointments, therapies and bullying that we, and I say we, because it probably hurts me more than Logan, we discovered that he has a great musical ability. We\u2019ve learned that \u201cWhere words fail, music speaks\u201d a quote by Hans Christian Andersen, couldn\u2019t be truer for Logan. He\u2019s been playing piano since he was two but we recognized his love for music almost immediately. A classical pianist dabbling in the world of today\u2019s more trendy pop songs if you will. He takes requests. Everything is taken on as the challenge that it is. He\u2019s just like the other kids his age walking down the hall, but with such strength and resilience that others simply can\u2019t fathom. Myself included. Always smiling with that beautiful smile that wasn\u2019t naturally even \u00a0meant for him. You would never know what he endured. With all that said, we\u2019re actually one of the lucky ones. I\u2019ve met a lot of kids and a lot of families and all I can say is thank you for giving me Logan. My best explanation of Logan is that he’s my greatest joy, my deepest pain and every emotion in between. I know he\u2019s destined for greatness and the world will one day know his name. I\u2019ve often read that Some people never get to meet their superhero, I gave birth to mine. And that\u2019s the truth!!”<\/p>","protected":false},"excerpt":{"rendered":"

As told by Leah, Logan’s Mom: “Logan as I named him was born with a bilateral cleft lip and aneterior palate. Ear pits. Anal stenosis. Oh and a very rare condition called microphthalmia \/ anophthalmia. This is the medical term for the absence of one or both eyes. Both the<\/p>\n

Leer m\u00e1s<\/a><\/p>","protected":false},"author":2,"featured_media":8824,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"video","meta":{"footnotes":""},"categories":[30],"tags":[163,300,55,269,202,301,302,180],"class_list":["post-8823","post","type-post","status-publish","format-video","has-post-thumbnail","hentry","category-spotlights","tag-inspiring-stories","tag-logan-riman","tag-myface","tag-myface-stars","tag-nyu-langone-medical-center","tag-pianist","tag-talent-show","tag-wyss-department-of-plastic-surgery","post_format-post-format-video"],"yoast_head":"\nLogan's Story - myFace<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.myface.org\/es\/logans-story\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Logan's Story - myFace\" \/>\n<meta property=\"og:description\" content=\"As told by Leah, Logan’s Mom: “Logan as I named him was born with a bilateral cleft lip and aneterior palate. 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