{"id":19152,"date":"2023-09-05T22:40:38","date_gmt":"2023-09-06T02:40:38","guid":{"rendered":"https:\/\/www.myface.org\/?p=19152"},"modified":"2023-09-26T23:30:58","modified_gmt":"2023-09-27T03:30:58","slug":"summer23newsletter","status":"publish","type":"post","link":"https:\/\/www.myface.org\/es\/summer23newsletter\/","title":{"rendered":"Summer 2023 Newsletter"},"content":{"rendered":"<p class=\"has-medium-font-size\"><span style=\"text-decoration: underline;\"><strong><span style=\"color: #eb2b94;\"><a style=\"color: #eb2b94; text-decoration: underline;\" href=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/myFace-summer2023-newsletter-web.pdf\">Click here to download the PDF version of the newsletter.<\/a><\/span><\/strong><\/span><\/p>\r\n<p>&nbsp;<\/p>\r\n\r\n<h2 class=\"wp-block-heading\"><span style=\"color: #2fbed0;\"><strong>Dear Reader,<\/strong><\/span><\/h2>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">We are excited to commemorate September\u2019s Craniofacial Acceptance Month through this issue of the <em><strong>myFace | YOUR IMPACT<\/strong><\/em> newsletter! This newsletter is an important opportunity for us to illustrate not only the resilience, strength, and beauty of the craniofacial community, but also the impact that your generous support has on the lives of those with facial differences everyday. Some highlights &#8211; made possible by people like you &#8211; include:<\/p>\r\n\r\n\r\n\r\n<ul class=\"wp-block-list\">\r\n<li class=\"has-black-color has-text-color has-medium-font-size\">Board of Trustee member, David Santiago, helps myFace Star, Anibel, pursue her interior design dreams.<\/li>\r\n\r\n\r\n\r\n<li class=\"has-black-color has-text-color has-medium-font-size\">High school student, Hayley, conducts a science research project &#8211; combining her loves of singing and speech therapy &#8211; to benefit the craniofacial community.<\/li>\r\n\r\n\r\n\r\n<li class=\"has-black-color has-text-color has-medium-font-size\"><strong><em>Spanish Speaking Parent Support Group<\/em><\/strong> grows in its second year to reach more families.<\/li>\r\n\r\n\r\n\r\n<li class=\"has-black-color has-text-color has-medium-font-size\">From NICU newborn to thriving 1-year-old, &#8220;One Florida Family\u2019s Story.&#8221;<\/li>\r\n\r\n\r\n\r\n<li class=\"has-black-color has-text-color has-medium-font-size\">Questions and answers can be seen from the experts featured in June\u2019s <strong><em>Transforming Lives<\/em><\/strong> webinar that explored Navigating Adolescence with a Craniofacial Condition: Strategies for Empowerment and Success.<\/li>\r\n<\/ul>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">Thank you for all you do to help myFace transform lives. Every podcast episode you listen to, every webinar you participate in, every event you attend, every social media post you like, and every dollar you donate, helps us to raise awareness, fight stigma, spread kindness, and provide access to medical care, resources and community for individuals with facial differences and their families.<\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\"><strong>We could not do this critical work without you!<\/strong><\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">If you are looking for more ways to celebrate <strong>Craniofacial Acceptance Month<\/strong>, please join us at the <strong>11th Annual <em>Carreras de caras<\/em><\/strong> on Saturday, September 23rd at Pier 62 in New York City (or virtually)! <span style=\"color: #eb2b94;\"><a style=\"color: #eb2b94;\" href=\"https:\/\/racesforfaces.funraise.org\/\"><strong><em>Carreras de caras<\/em><\/strong><\/a><\/span> is our annual 5k walk and community outreach event &#8211; with music, performances by our myFace Stars, carnival games, a raffle, great prizes, and more. See you there!<\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\"><span style=\"color: #000000;\"><em><span style=\"font-weight: 400;\">Stephanie Paul<br \/>Executive Director, myFace\u00a0<\/span><\/em><\/span><\/p>\r\n\r\n\r\n\r\n<figure class=\"wp-block-image size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-9421\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2020\/01\/stephanie-headshot-myFace-e1686948122216-1014x1024.jpg\" alt=\"\" width=\"148\" height=\"149\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2020\/01\/stephanie-headshot-myFace-e1686948122216-1014x1024.jpg 1014w, https:\/\/www.myface.org\/wp-content\/uploads\/2020\/01\/stephanie-headshot-myFace-e1686948122216-150x150.jpg 150w, https:\/\/www.myface.org\/wp-content\/uploads\/2020\/01\/stephanie-headshot-myFace-e1686948122216-297x300.jpg 297w, https:\/\/www.myface.org\/wp-content\/uploads\/2020\/01\/stephanie-headshot-myFace-e1686948122216-768x776.jpg 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2020\/01\/stephanie-headshot-myFace-e1686948122216-189x189.jpg 189w, https:\/\/www.myface.org\/wp-content\/uploads\/2020\/01\/stephanie-headshot-myFace-e1686948122216-85x85.jpg 85w, https:\/\/www.myface.org\/wp-content\/uploads\/2020\/01\/stephanie-headshot-myFace-e1686948122216-12x12.jpg 12w, https:\/\/www.myface.org\/wp-content\/uploads\/2020\/01\/stephanie-headshot-myFace-e1686948122216.jpg 1484w\" sizes=\"auto, (max-width: 148px) 100vw, 148px\" \/><\/figure>\r\n<p><span style=\"color: #000000;\">P.S. If you can,<\/span> <strong><span style=\"color: #eb2b94;\"><a style=\"color: #eb2b94;\" href=\"https:\/\/www.myface.org\/es\/yourimpactsummer2023\/\">please consider giving a gift to myFace<\/a><\/span><\/strong> <span style=\"color: #000000;\">to provide education, support, and access to holistic comprehensive care for individuals with facial differences and their families. With my appreciation!<\/span><\/p>\r\n\r\n\r\n<hr class=\"wp-block-separator has-alpha-channel-opacity\" \/>\r\n\r\n\r\n<h3 class=\"wp-block-heading\"><span style=\"color: #2fbed0;\">GOING BEYOND THE CRANIOFACIAL JOURNEY: Helping One Teen Pursue Her Dreams<\/span><\/h3>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">Anibel, now 17, has been passionate about interior design since she was a freshman in high school. She believes in helping people express themselves through their spaces, and wants to help people feel as comfortable and as happy in their environments as possible.<\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">Anibel was born with Nager Syndrome, a rare condition that mainly affects the development of the face, hands, and arms. At birth, her cheekbones and lower jaw were underdeveloped, which also affected her hearing, speech, breathing and feeding abilities. myFace has been Anibel\u2019s second family, providing her and her family access to state-of-the-art care and support over the past 15 years. Thirty nine surgeries later, she\u2019s a young adult ready to tackle the world.<\/p>\r\n\r\n\r\n<div class=\"wp-block-image wp-image-19153 size-medium\">\r\n<figure class=\"alignleft\"><img loading=\"lazy\" decoding=\"async\" width=\"298\" height=\"300\" class=\"wp-image-19153\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/David-and-Anibel-298x300.png\" alt=\"\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/David-and-Anibel-298x300.png 298w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/David-and-Anibel-1018x1024.png 1018w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/David-and-Anibel-150x150.png 150w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/David-and-Anibel-768x773.png 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/David-and-Anibel-12x12.png 12w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/David-and-Anibel-189x189.png 189w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/David-and-Anibel-85x85.png 85w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/David-and-Anibel.png 1340w\" sizes=\"auto, (max-width: 298px) 100vw, 298px\" \/>\r\n<figcaption class=\"wp-element-caption\"><em>Anibel &amp; David at myFace Celebrates&#8230;<\/em><\/figcaption>\r\n<\/figure>\r\n<\/div>\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">It was at last year\u2019s <strong><em>myFace celebra<\/em><\/strong>&#8230; event where Anibel met myFace Trustee, David Santiago, a talented tenor opera singer and interior designer with his own firm, Casa Santi. As a junior in high school, Anibel was starting to think about college, and how to pursue her own interior design dreams. Anibel took matters into her own hands, and reached out to David for guidance.<\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">Over the course of the next year, the two had several Zoom calls where they discussed Anibel\u2019s interests in interior design, and David shared some of his own work to give Anibel ideas and inspiration, in addition to teaching her basic sketching. David has taken an interest in Anibel\u2019s talent and uniqueness, and wrote her a beautiful letter of recommendation to the New York School of Interior Design (NYSID), where he is also a member of the board.\u00a0<\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">David shares, &#8220;<em>Anibel is so enthusiastic &#8211; she takes it all in like a sponge. I believe in her and will continue to support in any way I can. She has bright stars on her horizon!<\/em>&#8221; Even though the two haven\u2019t known each other for long, Anibel says\u00a0 David &#8220;feels like family&#8221; and has taught her to &#8220;<em>trust myself and persevere, no matter what comes my way.<\/em>&#8221; Anibel is starting NYSID in September &#8211; along with an internship with David\u2019s design firm, Casa Santi, where she will be shadowing David on various projects and learning the ropes of the business.<\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">We can\u2019t wait to see all that you\u2019ll accomplish, Anibel!<\/p>\r\n\r\n\r\n<hr class=\"wp-block-separator has-alpha-channel-opacity\" \/>\r\n\r\n\r\n<h3 class=\"wp-block-heading\"><span style=\"color: #2fbed0;\"><b>CREATIVELY BENEFITING THE CRANIOFACIAL COMMUNITY: Through Singing and Speech Therapy<\/b><\/span><\/h3>\r\n\r\n\r\n<div class=\"wp-block-image\">\r\n<figure class=\"alignleft\"><img loading=\"lazy\" decoding=\"async\" width=\"200\" height=\"300\" class=\"wp-image-19155\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/HayleyHeadshots-35-JeanMarie-Craane-200x300.jpg\" alt=\"\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/HayleyHeadshots-35-JeanMarie-Craane-200x300.jpg 200w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/HayleyHeadshots-35-JeanMarie-Craane-683x1024.jpg 683w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/HayleyHeadshots-35-JeanMarie-Craane-768x1152.jpg 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/HayleyHeadshots-35-JeanMarie-Craane-1024x1536.jpg 1024w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/HayleyHeadshots-35-JeanMarie-Craane-1365x2048.jpg 1365w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/HayleyHeadshots-35-JeanMarie-Craane-8x12.jpg 8w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/HayleyHeadshots-35-JeanMarie-Craane-scaled.jpg 1707w\" sizes=\"auto, (max-width: 200px) 100vw, 200px\" \/><\/figure>\r\n<\/div>\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">Hayley, 16, has been dancing and singing since she was 4, and has participated in over 30 productions, including our signature myFace Celebrates&#8230; event in May 2023.<\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">Hayley is also a diligent student, and participates in her school\u2019s 3-year Science Research Program. Born with a unilateral cleft lip and palate, her research project combines two of her passions: singing and speech pathology. Her study, &#8220;The Effect of Different Singing Techniques on the Nasality of Speech with Individuals with Cleft Lip and Palate,&#8221; was inspired by her own experience of working with her parents &#8211; both trained singers &#8211; on her vocal phrasing, tonality, and nasality. Hayley wanted to see if she could replicate her own positive results with other individuals with cleft lip and palate. Hayley has had six study participants so far &#8211; all fellow performers that she met through myFace.<\/p>\r\n\r\n\r\n\r\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\r\n<h5 class=\"wp-block-heading has-text-color has-medium-font-size\" style=\"color: #2fbed0;\"><strong>\u201cBefore myFace Celebrates&#8230; I never spent much time with people with facial differences just like mine. Even though we started off as strangers, they all agreed to help me with my research project. We all had fun, and it was so cool to know that I was helping them, too. It meant a lot to me!<\/strong><\/h5>\r\n<\/blockquote>\r\n\r\n\r\n<div class=\"wp-block-image size-medium wp-image-19157\">\r\n<figure class=\"alignright\"><img loading=\"lazy\" decoding=\"async\" width=\"216\" height=\"300\" class=\"wp-image-19157\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/Hayley-and-Grace-216x300.png\" alt=\"\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/Hayley-and-Grace-216x300.png 216w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/Hayley-and-Grace-9x12.png 9w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/Hayley-and-Grace.png 712w\" sizes=\"auto, (max-width: 216px) 100vw, 216px\" \/>\r\n<figcaption class=\"wp-element-caption\"><em>Hayley (left), performing with Grace at myFace Celebrates&#8230;<\/em><\/figcaption>\r\n<\/figure>\r\n<\/div>\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">For the study, Hayley briefly records participants singing and speaking several phrases. She then works with them on vocal techniques, after which she records participants singing and speaking the same phrases again. Hayley then compares the &#8220;before&#8221; and &#8220;after&#8221; recordings to see if there are any differences in hypernasality. Study participants also fill out a survey at the end of their experience to help assess the impact of the intervention.<\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">Over the course of the next year, Hayley will continue to collect data, and then eventually present her findings in regional competitions. Hayley\u2019s ultimate vision is to create an app where users can access the recorded singing and speaking techniques whenever and wherever they want, and practice on their own time.<\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">Thank you, Hayley, for pursuing your interests while simultaneously &#8211; and creatively &#8211; benefiting the craniofacial community. Hayley is hoping to recruit a total of 200 participants for her study. If you are interested in participating, please reach out to us at <span style=\"color: #eb2b94;\"><a style=\"color: #eb2b94;\" href=\"mailto:info@myFace.org\">info@myFace.org<\/a><\/span>, and we will connect you.<\/p>\r\n\r\n\r\n<hr class=\"wp-block-separator has-alpha-channel-opacity\" \/>\r\n\r\n\r\n<h3 class=\"wp-block-heading\"><span style=\"color: #2fbed0;\">MYFACE SPANISH PARENT SUPPORT GROUP: Helping Parents for Their Children and Themselves<\/span><\/h3>\r\n\r\n\r\n<div class=\"wp-block-image wp-image-19163\">\r\n<figure class=\"alignleft\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-19163\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/Ana-Gloria-282x300.png\" alt=\"\" width=\"282\" height=\"300\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/Ana-Gloria-282x300.png 282w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/Ana-Gloria-11x12.png 11w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/Ana-Gloria.png 566w\" sizes=\"auto, (max-width: 282px) 100vw, 282px\" \/>\r\n<figcaption class=\"wp-element-caption\"><em>Gloria (right), pictured with her daughter, Ana, born with cleft lip and palate<\/em><\/figcaption>\r\n<\/figure>\r\n<\/div>\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">myFace debuted a new support group in March 2022 to serve the Spanish-speaking parents in our community. The <strong><em>Spanish Parent Support Group<\/em><\/strong> quickly grew and now has participants from across the country, as well as one international participant from Peru. The group is led by bilingual social worker Anastatia Fabris, and meets virtually every other Thursday. Members describe this close-knit group as &#8220;like a family.&#8221;<\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">The support group gives parents a space to explore how they can better support their children who are living with a facial difference, especially if their child has been the subject of teasing, bullying, or exclusion. They also discuss any concerns they may have about their child\u2019s academic performance, and what types of resources may be available to help. They also discuss how to ensure that siblings don\u2019t feel neglected, so that ALL of their children are receiving the support and attention they need to thrive. Importantly, the group also discusses the need for parental self-care. The parents report that \u2013 by further developing their own emotional awareness and stress management skills \u2013 they are able to be more present for their children, and to have more satisfying relationships in general.<\/p>\r\n\r\n\r\n\r\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\r\n<h5 class=\"wp-block-heading has-text-color has-medium-font-size\" style=\"color: #2fbed0;\"><strong>As a mom, I always try to be strong for my daughter. But I was really worried and nervous about her most recent surgery&#8230; I realized that I, too, need emotional help. Thanks to this Support Group, I\u2019ve been able to find a better way to help my daughter and to talk about my own feelings.\u201d &#8211; Group Member Gloria Perez<\/strong><\/h5>\r\n<\/blockquote>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\"><span style=\"color: #000000;\">For more information visit <span style=\"color: #eb2b94;\"><a style=\"color: #eb2b94;\" href=\"https:\/\/www.myface.org\/es\/online-groups\/\">myface.org\/online-groups<\/a><\/span> or to join this group, please contact Sandy Gilbert at: <span style=\"color: #eb2b94;\"><a style=\"color: #eb2b94;\" href=\"mailto:sandy@myFace.org\">sandy@myFace.org<\/a><\/span>. <em>(Para obtener m\u00e1s informaci\u00f3n, o para unirse a este grupo, comun\u00edquese con Sandy Gilbert en: <span style=\"color: #eb2b94;\"><a style=\"color: #eb2b94;\" href=\"mailto:sandy@myFace.org\">sandy@myFace.org<\/a><\/span>.)<\/em><\/span><\/p>\r\n\r\n\r\n<hr class=\"wp-block-separator has-alpha-channel-opacity\" \/>\r\n\r\n\r\n<h3 class=\"wp-block-heading\"><span style=\"color: #2fbed0;\"><b>ASK THE EXPERTS: Q &amp; A<\/b><\/span><\/h3>\r\n\r\n\r\n<div class=\"wp-block-image wp-image-19170\">\r\n<figure class=\"alignright\"><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"93\" class=\"wp-image-19170\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/Navigating-Adolescence-guest-speakers-300x93.png\" alt=\"\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/Navigating-Adolescence-guest-speakers-300x93.png 300w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/Navigating-Adolescence-guest-speakers-1024x319.png 1024w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/Navigating-Adolescence-guest-speakers-768x239.png 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/Navigating-Adolescence-guest-speakers-18x6.png 18w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/08\/Navigating-Adolescence-guest-speakers.png 1408w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/>\r\n<figcaption class=\"wp-element-caption\"><em>From left to right: Canice E. Crerand, PhD, Nationwide Children\u2019s Hospital, OH; Meredith Albert, PhD, Shriners Children\u2019s Chicago; and Jackson Doane and Hailey Dore, who provided the adolescent perspective.<\/em><\/figcaption>\r\n<\/figure>\r\n<\/div>\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">On June 15th, myFace presented a free educational webinar as part of our <em><strong>Transforming Lives<\/strong><\/em> series entitled:&#8221;<span style=\"color: #eb2b94;\"><a style=\"color: #eb2b94;\" href=\"https:\/\/www.myface.org\/es\/events-page\/navigatingadolescence\/\">Navigating Adolescence with a Craniofacial Condition: Strategies for Empowerment and Success<\/a><\/span>.&#8221; Below are some of the questions posed to our speakers during the webinar:<\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\"><strong>How much autonomy do you recommend giving teens about the decision to undergo surgery?<\/strong><\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\"><strong>Dr. Albert:<\/strong> It\u2019s extremely important that the parent and child be collaborative in surgical decision- making once a child reaches adolescence, because the teen is the one undergoing the surgery. If a teen is not interested in undergoing a particular surgery, we practice active listening to understand the reasons why they are choosing not to pursue surgery. We also make sure that they have all the information necessary to make an informed decision \u2013 including the fact that, as they get older, they may age out of care with a craniofacial team and may be subject to insurance restrictions.<\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\"><strong>How are male and female patients treated differently, based on their gender?<\/strong><\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\"><strong>Dr. Crerand:<\/strong> We try to take an individualized approach to care, regardless of whether an adoles- cent identifies as male, female, or another gender. There is an assumption that appearance is more important to girls, but there is actually a lot of pressure on boys, as well, to look a certain way and to &#8220;be&#8221; a certain way. Instead of assuming that we don\u2019t have to worry about how boys feel about their appearance, and instead of being overly focused on how girls feel about their appearance, we try to understand how each individual patient is actually feeling \u2013 and then try to tailor our support accordingly.<\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\"><strong>How do you prepare yourself mentally for an upcoming surgery?<\/strong><\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\"><strong>Jackson Doane:<\/strong> For me, being in the proper head- space is very important. So I try to structure my thinking in a positive manner, and remind myself that I may have to go through some difficult experiences \u2013 like surgery \u2013 to get the results I want. It really helps to work with your parents and your craniofacial team to outline a plan in advance of how everything will take place, to remove any doubts from your mind. It also helps me to have my home environment prepared in advance, so that I can come home and fully relax after the surgery.<\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\"><strong>What strategies have you used to navigate bullying, and how did you not let it get you down when it happened?<\/strong><\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\"><strong>Hailey Dore:<\/strong> When I got bullied at school, I told myself that my bullies probably had something going on in their lives that was making them unhappy \u2013 because there\u2019s no reason someone should make fun of another human being just because they look different. I also tried to keep in mind that, as teenagers, we\u2019re all struggling with a lot of emotions (including the bullies).<\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">All Transforming Lives webinars are archived and available to view on <strong><span style=\"color: #eb2b94;\"><a style=\"color: #eb2b94;\" href=\"https:\/\/www.myface.org\/es\/event-category\/webinars\/\">myFace.org\/transforminglives<\/a><\/span><\/strong>.<\/p>\r\n\r\n\r\n<hr class=\"wp-block-separator has-alpha-channel-opacity\" \/>\r\n\r\n\r\n<h3><span style=\"color: #2fbed0;\">THE MYFACE FAMILY APARTMENTS: One Florida Family&#8217;s Story<\/span><\/h3>\r\n\r\n\r\n<div class=\"wp-block-image size-medium wp-image-19182\">\r\n<figure class=\"alignleft\"><img loading=\"lazy\" decoding=\"async\" width=\"225\" height=\"300\" class=\"wp-image-19182\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Caylani-as-baby-225x300.jpg\" alt=\"\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Caylani-as-baby-225x300.jpg 225w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Caylani-as-baby-768x1024.jpg 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Caylani-as-baby-1152x1536.jpg 1152w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Caylani-as-baby-1536x2048.jpg 1536w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Caylani-as-baby-9x12.jpg 9w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Caylani-as-baby-scaled.jpg 1920w\" sizes=\"auto, (max-width: 225px) 100vw, 225px\" \/>\r\n<figcaption class=\"wp-element-caption\">Caylani, before surgery<\/figcaption>\r\n<\/figure>\r\n<\/div>\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">Meet little Caylani, who at not even 2 years old, has already undergone four surgeries to treat her congenital venous malformation (VM), a birthmark that occurs when the veins do not develop normally.<\/p>\r\n\r\n\r\n\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">In March 2023, Caylani and her moms, Chrissy and Caylee, traveled from Florida to New York City so Caylani could under- go surgery at Lenox Hill Hospital to treat her VM, which had started to block the vision in her left eye. The trio then came back for another stay in July for follow-up care for Caylani.<\/p>\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">In the beginning, Chrissy and Caylee had no idea what was going to happen. They spent the first few weeks of Caylani&#8217;s life in the NICU, trying to get answers and be brave for their daughter. Today, they reflect on what an amazing journey it has been, watching Caylani &#8220;grow from a 5 pound NICU baby to a thriving and happy 1-year-old!&#8221;<\/p>\r\n\r\n\r\n\r\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\r\n<h5 class=\"wp-block-heading has-text-color has-medium-font-size\" style=\"color: #2fbed0;\"><strong>\u201cAfter the long days in the hospital and figuring out the subway, the apartment was a cozy and relaxing home away from home. We can\u2019t thank myFace enough for everything!\u201d &#8211; Chrissy<\/strong><\/h5>\r\n<\/blockquote>\r\n\r\n\r\n<div class=\"wp-block-image size-medium wp-image-19183\">\r\n<figure class=\"alignright\">\r\n<p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-19183\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Caylani-300x225.jpg\" alt=\"\" width=\"300\" height=\"225\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Caylani-300x225.jpg 300w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Caylani-1024x768.jpg 1024w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Caylani-768x576.jpg 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Caylani-1536x1152.jpg 1536w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Caylani-2048x1536.jpg 2048w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Caylani-16x12.jpg 16w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/p>\r\n<\/figure>\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">The pair has advice for other families going through similar situations: &#8220;Don\u2019t give up. Not on yourself, or your child. Some days are harder than others&#8230; but always remember &#8211; you\u2019re important, you\u2019re loved, and <em>you\u2019re never alone<\/em>.&#8221;<\/p>\r\n<p class=\"has-black-color has-text-color has-medium-font-size\">To support the myFace Family Apartments and\/or learn more, visit <strong><span style=\"color: #eb3b94;\"><a style=\"color: #eb3b94;\" href=\"https:\/\/www.myface.org\/es\/travel-housing\/\">myFace.org\/travel-housing<\/a><\/span><\/strong>.<\/p>\r\n<p>&nbsp;<\/p>\r\n<p>&nbsp;<\/p>\r\n<\/div>\r\n\r\n\r\n\r\n<hr class=\"wp-block-separator has-alpha-channel-opacity\" \/>\r\n\r\n\r\n<h3><span style=\"color: #2fbed0;\">September is Craniofacial Acceptance Month<\/span><\/h3>\r\n<blockquote>\r\n<h5 class=\"wp-block-heading has-text-color has-medium-font-size\" style=\"color: #2fbed0;\"><span style=\"color: #eb2b94;\">\u201cA facial difference isn\u2019t something to be ashamed of or to be \u201cfixed.\u201d <img loading=\"lazy\" decoding=\"async\" class=\"alignright wp-image-19204 size-medium\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/taina-martinez-200x300.jpeg\" alt=\"\" width=\"200\" height=\"300\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/taina-martinez-200x300.jpeg 200w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/taina-martinez-8x12.jpeg 8w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/taina-martinez.jpeg 427w\" sizes=\"auto, (max-width: 200px) 100vw, 200px\" \/>Rather, it should be seen as something that someone can take pride in having, since it is a form of beauty, despite the medical challenges that come with it.\u201d -Taina<\/span><\/h5>\r\n<\/blockquote>\r\n<hr class=\"wp-block-separator has-alpha-channel-opacity\" \/>\r\n\r\n\r\n\r\n\r\n<h3 class=\"wp-block-heading\"><span style=\"color: #2fbed0;\"><b>UPCOMING EVENTS: Mark your Calendars<\/b><\/span><\/h3>\r\n\r\n\r\n\r\n<p><span style=\"color: #000000;\">Don&#8217;t miss our 11th Annual Races for Faces &#8211; it&#8217;s shaping up to be the best one yet! Visit<\/span> <strong><span style=\"color: #eb2b94;\"><a style=\"color: #eb2b94;\" href=\"https:\/\/racesforfaces.funraise.org\/\">www.RacesforFaces.org<\/a><\/span><\/strong> <span style=\"color: #000000;\">to learn more.<\/span><\/p>\r\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-19222\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Races-for-Faces-2023-1024x372.png\" alt=\"\" width=\"591\" height=\"215\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Races-for-Faces-2023-1024x372.png 1024w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Races-for-Faces-2023-300x109.png 300w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Races-for-Faces-2023-768x279.png 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Races-for-Faces-2023-18x7.png 18w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Races-for-Faces-2023.png 1498w\" sizes=\"auto, (max-width: 591px) 100vw, 591px\" \/><\/p>\r\n<p>&nbsp;<\/p>\r\n<p>&nbsp;<\/p>\r\n<p>&nbsp;<\/p>\r\n<p>&nbsp;<\/p>\r\n<p>&nbsp;<\/p>\r\n<p>&nbsp;<\/p>\r\n<p><span style=\"color: #000000;\">To learn more about the upcoming webinar on October 24th, 2023, visit<\/span> <strong><span style=\"color: #eb2b94;\"><a style=\"color: #eb2b94;\" href=\"https:\/\/www.myface.org\/es\/events-page\/orthodonticwebinar\/\">myFace.org\/orthodonticwebinar\u00a0<\/a><\/span><\/strong><span style=\"color: #000000;\">and register today!<\/span><\/p>\r\n<p><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-19223 alignleft\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/October-2023-webinar-300x300.png\" alt=\"\" width=\"300\" height=\"300\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/October-2023-webinar-300x300.png 300w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/October-2023-webinar-1022x1024.png 1022w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/October-2023-webinar-150x150.png 150w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/October-2023-webinar-768x769.png 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/October-2023-webinar-12x12.png 12w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/October-2023-webinar-189x189.png 189w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/October-2023-webinar-85x85.png 85w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/October-2023-webinar.png 1062w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/p>\r\n\r\n\r\n<\/p>\r\n<p>&nbsp;<\/p>\r\n<p>&nbsp;<\/p>\r\n<p>&nbsp;<\/p>\r\n<p>&nbsp;<\/p>\r\n<p>&nbsp;<\/p>\r\n<p>&nbsp;<\/p>\r\n<p>&nbsp;<\/p>\r\n<p>&nbsp;<\/p>\r\n<p><span style=\"color: #000000;\">October is <strong>National Bullying Prevention Month<\/strong>. To learn how to bring the <em><strong>myFace Wonder Projec<\/strong><\/em>t to your school, visit<\/span> <span style=\"color: #eb2b94;\"><a style=\"color: #eb2b94;\" href=\"https:\/\/www.myface.org\/es\/wonder\/\"><strong>myFace.org\/Wonder<\/strong><\/a><\/span>!\u00a0<\/p>\r\n<p><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-19224 alignleft\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Teacher-quote-300x300.png\" alt=\"\" width=\"300\" height=\"300\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Teacher-quote-300x300.png 300w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Teacher-quote-1024x1024.png 1024w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Teacher-quote-150x150.png 150w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Teacher-quote-768x768.png 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Teacher-quote-12x12.png 12w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Teacher-quote-189x189.png 189w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Teacher-quote-85x85.png 85w, https:\/\/www.myface.org\/wp-content\/uploads\/2023\/09\/Teacher-quote.png 1080w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/p>","protected":false},"excerpt":{"rendered":"<p>Click here to download the PDF version of the newsletter. &nbsp; Dear Reader, We are excited to commemorate September\u2019s Craniofacial Acceptance Month through this issue of the myFace | YOUR IMPACT newsletter! This newsletter is an important opportunity for us to illustrate not only the resilience, strength, and beauty of<\/p>\n<p><a class=\"sd-more sd-all-trans\" href=\"https:\/\/www.myface.org\/es\/summer23newsletter\/#more-19152\">Leer m\u00e1s<\/a><\/p>","protected":false},"author":21,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[312],"tags":[],"class_list":["post-19152","post","type-post","status-publish","format-standard","hentry","category-newsletters"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Summer 2023 Newsletter - myFace<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.myface.org\/es\/summer23newsletter\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Summer 2023 Newsletter - myFace\" \/>\n<meta property=\"og:description\" content=\"Click here to download the PDF version of the newsletter. &nbsp; Dear Reader, We are excited to commemorate September\u2019s Craniofacial Acceptance Month through this issue of the myFace | YOUR IMPACT newsletter! This newsletter is an important opportunity for us to illustrate not only the resilience, strength, and beauty ofRead More\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.myface.org\/es\/summer23newsletter\/\" \/>\n<meta property=\"og:site_name\" content=\"myFace\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/myFaceFoundation\/\" \/>\n<meta property=\"article:published_time\" content=\"2023-09-06T02:40:38+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2023-09-27T03:30:58+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.myface.org\/wp-content\/uploads\/2020\/01\/stephanie-headshot-myFace-e1686948122216-1014x1024.jpg\" \/>\n<meta name=\"author\" content=\"Katie Bazyluk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@thisis_myface\" \/>\n<meta name=\"twitter:site\" content=\"@thisis_myface\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Katie Bazyluk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"12 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/www.myface.org\\\/summer23newsletter\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.myface.org\\\/summer23newsletter\\\/\"},\"author\":{\"name\":\"Katie Bazyluk\",\"@id\":\"https:\\\/\\\/www.myface.org\\\/#\\\/schema\\\/person\\\/8bf7668878f88ed9bdaf3cb7523995f0\"},\"headline\":\"Summer 2023 Newsletter\",\"datePublished\":\"2023-09-06T02:40:38+00:00\",\"dateModified\":\"2023-09-27T03:30:58+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/www.myface.org\\\/summer23newsletter\\\/\"},\"wordCount\":2362,\"image\":{\"@id\":\"https:\\\/\\\/www.myface.org\\\/summer23newsletter\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/www.myface.org\\\/wp-content\\\/uploads\\\/2020\\\/01\\\/stephanie-headshot-myFace-e1686948122216-1014x1024.jpg\",\"articleSection\":[\"NEWSLETTERS\"],\"inLanguage\":\"es\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/www.myface.org\\\/summer23newsletter\\\/\",\"url\":\"https:\\\/\\\/www.myface.org\\\/summer23newsletter\\\/\",\"name\":\"Summer 2023 Newsletter - 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