{"id":16702,"date":"2022-08-18T19:46:39","date_gmt":"2022-08-18T23:46:39","guid":{"rendered":"https:\/\/www.myface.org\/?p=16702"},"modified":"2022-08-19T16:14:18","modified_gmt":"2022-08-19T20:14:18","slug":"summer22newsletter","status":"publish","type":"post","link":"https:\/\/www.myface.org\/es\/summer22newsletter\/","title":{"rendered":"Summer 2022 Newsletter"},"content":{"rendered":"<p><span style=\"color: #eb2b94;\"><strong><a style=\"color: #eb2b94;\" href=\"https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/myFace-Summer-2022-Your-Impact-Newsletter.pdf\">Click here to download a PDF version of the Summer 2022 Newsletter<\/a><\/strong><\/span><\/p>\n<p>&nbsp;<\/p>\n<h2><span style=\"color: #2fbed0;\"><strong>Dear Reader,<\/strong><\/span><\/h2>\n<p>As we approach the end of summer, I am so excited to share all that we have been able to accomplish, thanks to your generosity. I hope you enjoy reading this issue of the <span style=\"color: #2fbed0;\"><em><strong>YOUR IMPACT<\/strong><\/em><\/span> newsletter, and seeing all of the ways you\u2019ve helped us transform the lives of those in the craniofacial community, such as:<\/p>\n<ul>\n<li>Didi, born with Crouzon Syndrome, who attributes her confidence and bravery to her friends, family, and the myFace Community.<\/li>\n<li>The Krakowska family, who traveled 4,000 miles from Poland so their two-year-old daughter with Pfeiffer Syndrome could receive the treatment she needs while staying in the <span style=\"color: #2fbed0;\"><em><strong>Apartamentos familiares myFace<\/strong><\/em><\/span>.<\/li>\n<li>Questions and answers from the experts featured in April\u2019s <span style=\"color: #2fbed0;\"><em><strong>Transforming Lives<\/strong><\/em><\/span> webinar that explored the process of moving from pediatric to adult-centered care.<\/li>\n<li>An introduction to Dr. Leah Stock-Landis, the newest member of the myFace Family and our new Parent Support Group Facilitator, who was also born with Goldenhar Syndrome.<\/li>\n<li>A generous group of 4th graders who were inspired to choose kindness after participating in the <span style=\"color: #2fbed0;\"><em><strong>El myFace Wonder Project (Un proyecto basada el en libro \u201cWonder\u201d)<\/strong><\/em> <\/span>Assembly.<\/li>\n<li>Our <span style=\"color: #2fbed0;\"><em><strong>Kits de Cuidado Craneofacial para Reci\u00e9n Nacidos<\/strong><\/em><\/span> that provide families in need with supplies to support their baby with a cleft lip\/palate or other craniofacial condition in the first months of life.<\/li>\n<\/ul>\n<p>We are excited to be able to safely gather in person once more, and hope you will join us as we come together for the 10th Annual <em><strong><span style=\"color: #2fbed0;\">Carreras de caras<\/span><\/strong><\/em> in September! To RSVP and register today, visit <a href=\"https:\/\/racesforfaces.funraise.org\/\"><span style=\"color: #eb2b94;\"><strong>racesforfaces.org<\/strong><\/span><\/a>.<\/p>\n<p><strong><span style=\"color: #000000;\">Thank you for making what we do possible!<\/span><\/strong><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-9424\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2020\/01\/stephanie-staff-close-282x300.jpg\" alt=\"\" width=\"150\" height=\"160\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2020\/01\/stephanie-staff-close-282x300.jpg 282w, https:\/\/www.myface.org\/wp-content\/uploads\/2020\/01\/stephanie-staff-close-768x816.jpg 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2020\/01\/stephanie-staff-close-963x1024.jpg 963w, https:\/\/www.myface.org\/wp-content\/uploads\/2020\/01\/stephanie-staff-close.jpg 1856w\" sizes=\"auto, (max-width: 150px) 100vw, 150px\" \/><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p><em><span style=\"color: #000000;\"><span style=\"font-weight: 400;\">Stephanie Paul<br \/>\n<\/span><span style=\"font-weight: 400;\">Executive Director, myFace\u00a0<\/span><\/span><\/em><\/p>\n<p><strong><span style=\"color: #000000;\">P.S. <span style=\"color: #eb2b94;\"><a style=\"color: #eb2b94;\" href=\"https:\/\/www.myface.org\/es\/your-impact-summer-2022\/\">Please consider making a donation<\/a><\/span>. Your gift will provide critical education, support, and access to holistic <\/span><span style=\"color: #000000;\">comprehensive care &#8211; changing the lives of individuals and families impacted by craniofacial conditions &#8211; forever.<\/span><\/strong><\/p>\n<hr \/>\n<h3><span style=\"color: #2fbed0;\">A JOURNEY WITH CROUZON SYNDROME: How One Teen Fuels Her Happiness<\/span><\/h3>\n<div id=\"attachment_16741\" style=\"width: 415px\" class=\"wp-caption alignright\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-16741\" class=\"wp-image-16741\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/DiDi-Diallo-1024x740.png\" alt=\"\" width=\"405\" height=\"293\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/DiDi-Diallo-1024x740.png 1024w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/DiDi-Diallo-300x217.png 300w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/DiDi-Diallo-768x555.png 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/DiDi-Diallo-18x12.png 18w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/DiDi-Diallo.png 1098w\" sizes=\"auto, (max-width: 405px) 100vw, 405px\" \/><p id=\"caption-attachment-16741\" class=\"wp-caption-text\"><em>Left: Didi, post-op, age 4 \u2022 Didi today: High school grad!<\/em><\/p><\/div>\n<p>myFace has known the Diallo family for almost two decades &#8211; since their craniofacial journey began when their daughter, Didi, was born with a craniofacial condition called Crouzon Syndrome, where her facial bones and skull were prematurely fused. Didi is now 18 years old and has had more than 10 surgeries to address everything from the shape of her skull, to her vision, breathing, and feeding issues. She and her family consider themselves so fortunate to have had access to the team at the <span style=\"color: #000000;\"><em><strong>myFace Center for Craniofacial Care<\/strong><\/em><\/span> at NYU Langone Health, where they received quality comprehensive medical and psychosocial care. As Didi notes, &#8220;being born with a craniofacial condition is not only physically challenging, but mentally and emotionally challenging as well.&#8221;<\/p>\n<p>Didi attributes her confidence and bravery to her friends, family, and the myFace Community, all of whom have served as uplifting forces throughout her life &#8211; allowing her to &#8220;feel beautiful on the inside and out.&#8221;<\/p>\n<blockquote><p><strong><span style=\"color: #2fbed0;\">\u201cAt myFace, I have a whole support system who can understand what I\u2019m going through. I\u2019m not really around many people with craniofacial conditions, so it\u2019s comforting to see that there are people like me who have had very similar experiences &#8211; ultimately making me feel less alone.\u201d<\/span><\/strong><\/p><\/blockquote>\n<p>Having watched Didi blossom into a beautiful, talented, and accomplished young woman over these past 18 years is a privilege for us. Her differences never stopped her from pursuing her passion for dance; and she has impressed us all at her dance competitions in jazz, contemporary, lyrical, tap, and ballet. It\u2019s a &#8220;MAJOR&#8221; part of Didi\u2019s life, as she likes to emphasize, and an important creative outlet for her. As a recent high school graduate, Didi will be off to college at St. John\u2019s University in the fall where she plans to major in Marketing. She is also looking forward to returning to <em><strong>Carreras de caras<\/strong><\/em> in September!<\/p>\n<p>The myFace team is so proud of the young woman Didi has become. We look forward to celebrating her successes and supporting her family along their journey for years to come.<i><\/i><\/p>\n<hr \/>\n<h3><span style=\"color: #2fbed0;\"><b>THE MYFACE FAMILY APARTMENTS: A Home Away From Home For Families From Near &amp; Far<\/b><\/span><\/h3>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-16743 size-medium\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Hanna-Julita-Marik-e1660852446400-300x278.jpg\" alt=\"\" width=\"300\" height=\"278\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Hanna-Julita-Marik-e1660852446400-300x278.jpg 300w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Hanna-Julita-Marik-e1660852446400-13x12.jpg 13w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Hanna-Julita-Marik-e1660852446400-75x70.jpg 75w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Hanna-Julita-Marik-e1660852446400.jpg 481w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/p>\n<p class=\"p2\">Meet Julita and Marik Krakowska, who traveled 4,000 miles from Bydgoszcz, Poland, so that their sweet two year-old daughter Hanna, born with Pfeiffer Syndrome, could undergo Monobloc Advancement surgery at the <em><strong>myFace Center for Craniofacial Care<\/strong><\/em> at NYU Langone Health. Despite all that she has to go through, Julita shares that &#8220;Hanna is a very cheerful girl. She\u2019s very smart and physically active. She loves people and especially animals &#8211; cats and pigs are her favorite!&#8221; myFace has provided the Krakowskas with free accommodations in our Family Apartments, ensuring Julita and Marik can focus on what matters most: supporting Hanna during her extensive treatment and recovery period.<\/p>\n<blockquote>\n<p class=\"p2\"><strong><span style=\"color: #2fbed0;\">\u201cThank you from the bottom of my heart for your help. The apartment is great. The doormen and neighbors are nice. It is a huge plus to be so close to the hospital so we can easily meet with the doctors. Everyone at myFace has been wonderful, and what you do for families like ours is amazing. Thank you so much!\u201d &#8211; Julita, Hanna\u2019s mother<\/span><\/strong><\/p>\n<\/blockquote>\n<p class=\"p2\">We are so glad that myFace can be there for Julita, Marik, and Hanna during their journey; and that the <em><strong>Apartamentos familiares myFace<\/strong><\/em> can be their home away from home while they navigate this difficult time. Generous donations from the myFace community allows for families like the Krakowskas to receive the care and support that they need and deserve. Thank you for all you make possible!<\/p>\n<p>To learn more about the <em><strong>Apartamentos familiares myFace<\/strong><\/em>, visit <span style=\"color: #eb2b94;\"><strong><a style=\"color: #eb2b94;\" href=\"https:\/\/www.myface.org\/es\/travel-housing\/\">myface.org\/travel-housing<\/a><\/strong><\/span>.<\/p>\n<hr \/>\n<h3><span style=\"color: #2fbed0;\"><b>ASK THE EXPERTS<\/b><\/span><\/h3>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignright wp-image-16748\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/April-2022-Ask-the-Experts-1024x539.png\" alt=\"\" width=\"472\" height=\"248\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/April-2022-Ask-the-Experts-1024x539.png 1024w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/April-2022-Ask-the-Experts-300x158.png 300w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/April-2022-Ask-the-Experts-768x404.png 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/April-2022-Ask-the-Experts-18x9.png 18w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/April-2022-Ask-the-Experts.png 1432w\" sizes=\"auto, (max-width: 472px) 100vw, 472px\" \/><\/p>\n<p class=\"p2\">In April, myFace presented a free webinar as part of our <em><strong>Transforming Lives<\/strong><\/em> series that explored the process of moving from pediatric-centered to adult-centered care, and provided strategies to help young adults navigate this transition. Below are some of the questions posed to our speakers:<\/p>\n<p class=\"p2\"><span style=\"color: #2fbed0;\"><b>Was it challenging to transition from a pediatric team to adult services?<span class=\"Apple-converted-space\">\u00a0<\/span><\/b><\/span><\/p>\n<p class=\"p3\"><strong>Yelena Jennings:<\/strong> Yes. My parents tried to foster my independence, encouraging me to make my own healthcare appointments, for example. But I avoided doing it and so they ended up having to continue to do this for me. Another concern is that when I turned 26, I was taken off of my parents\u2019 insurance. Also, there were some things I just wasn\u2019t concerned about when I was younger \u2013 like the fact that one of my nostrils is much smaller than the other. Even as a teenager, that was the last thing on my mind. But since it does impact my breathing, I want to get that fixed now. However, I\u2019m concerned that this surgery might now be considered cosmetic, rather than medically necessary.<\/p>\n<p class=\"p2\"><span style=\"color: #2fbed0;\"><b>My child is a young adult now, but I\u2019m having trouble letting go of managing his healthcare needs. Do you have any suggestions that might help me let go of the desire to control this process &#8211; and trust him to take care of himself?<span class=\"Apple-converted-space\">\u00a0<\/span><\/b><\/span><\/p>\n<p class=\"p3\"><strong>Brenda Louw:<\/strong> All parents struggle with this to some extent. However, it may be helpful to consult with the craniofacial team social worker and\/or psychologist to discuss your changing role in supporting your child as they begin to manage their own healthcare needs.<\/p>\n<p class=\"p3\"><strong>Linda Vallino:<\/strong> I agree. You can also be open and honest with your child and say \u2018You know what &#8211; I\u2019m scared, too. It\u2019s hard for me to let go.\u2019 It helps to acknowledge this, and to share your own concerns. But then you might add \u2018But don\u2019t be afraid &#8211; we\u2019ll get through it together\u2019 to reassure them that they still have your support and that everything will work out.<\/p>\n<p class=\"p2\"><span style=\"color: #2fbed0;\"><b>What can parents do to help with keeping track and organizing all of their child\u2019s care?<span class=\"Apple-converted-space\">\u00a0<\/span><\/b><\/span><\/p>\n<p class=\"p4\"><span class=\"Apple-converted-space\"><strong>Yelena Jennings:<\/strong> My mother created a list of all 33 surgeries that I\u2019ve had. It\u2019s very detailed, and includes names of the surgeons, dates of surgeries, and the reasons for the surgeries. She carried this with her at all times, along with a list of my medications.<\/span><\/p>\n<p class=\"p1\"><span style=\"color: #2fbed0;\"><b>I\u2019m an adult, but I never really learned to advocate for myself. What can I do to build these skills now so that I can get better care??<span class=\"Apple-converted-space\">\u00a0<\/span><\/b><\/span><\/p>\n<p class=\"p2\"><span class=\"Apple-converted-space\"><strong>Yelena Jennings:<\/strong> Talking to a therapist can be a smart idea \u2013 they are there to help and guide you. Linda Vallino: You might want to take advantage of support groups as well. <\/span><\/p>\n<p>In case you missed the program, visit\u00a0 <strong><a href=\"https:\/\/www.myface.org\/es\/events-page\/transitionofcare\/\"><span style=\"color: #eb2b94;\">myface.org\/transitionofcare.\u00a0<\/span><\/a><\/strong><\/p>\n<hr \/>\n<h3><span style=\"color: #2fbed0;\"><b>INSPIRED BY THE WONDER PROJECT: Students Take an Important Lesson to Heart<\/b><\/span><\/h3>\n<p class=\"p2\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-12332 size-medium\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2020\/12\/wonder-project-title-op1-300x150.png\" alt=\"\" width=\"300\" height=\"150\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2020\/12\/wonder-project-title-op1-300x150.png 300w, https:\/\/www.myface.org\/wp-content\/uploads\/2020\/12\/wonder-project-title-op1-1024x512.png 1024w, https:\/\/www.myface.org\/wp-content\/uploads\/2020\/12\/wonder-project-title-op1-768x384.png 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2020\/12\/wonder-project-title-op1-1536x768.png 1536w, https:\/\/www.myface.org\/wp-content\/uploads\/2020\/12\/wonder-project-title-op1-16x8.png 16w, https:\/\/www.myface.org\/wp-content\/uploads\/2020\/12\/wonder-project-title-op1.png 1667w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/p>\n<p class=\"p2\">During the 2021-2022 school year, the <em><strong>El myFace Wonder Project (Un proyecto basada el en libro \u201cWonder\u201d)<\/strong><\/em> was presented to 66 schools and reached over 17,000 students, led by myFace Director of Family Programs, Dina Zuckerberg. To date, the program has reached over 70,000 students of all ages nationwide, teaching them about the importance of empathy, inclusivity, and being an Upstander against bullying.<\/p>\n<p class=\"p2\">The fourth graders at the Convent of the Sacred Heart in New York City certainly took the important lessons imparted in <em>Wonder<\/em> by R.J. Palacio and the <em><strong>El myFace Wonder Project (Un proyecto basada el en libro \u201cWonder\u201d)<\/strong> <\/em>to heart. After reading the book and participating in the virtual assembly where they learned more about craniofacial conditions and how they can respectfully approach someone with a difference, Sacred Heart students wanted to help!<\/p>\n<p class=\"p2\">Assisted by their teachers and families, the fourth graders pledged to take on a variety of chores at home to earn $10 so that they could make a donation to myFace in support of those with facial differences &#8211; like Auggie, the protagonist of <em>Wonder<\/em>. These kind-hearted and generous 10-year-olds ended up raising nearly $600 for myFace. A huge thank you to the students of the Convent of the Sacred Heart for choosing kindness!<\/p>\n<p class=\"p2\">To bring the <em><strong>El myFace Wonder Project (Un proyecto basada el en libro \u201cWonder\u201d)<\/strong><\/em> to your school, visit <span style=\"color: #eb2b94;\"><strong><a style=\"color: #eb2b94;\" href=\"https:\/\/www.myface.org\/es\/Wonder\/\">myface.org\/Wonder<\/a><\/strong><\/span>.<\/p>\n<hr \/>\n<h3><span style=\"color: #2fbed0;\"><b>THE HEALING POWER OF COMMUNITY: Welcoming Dr. Leah Stock-Landis to the myFace Family<\/b><\/span><\/h3>\n<p class=\"p2\"><img loading=\"lazy\" decoding=\"async\" class=\"alignright wp-image-16749 size-medium\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Dr.-Leah-Stock-Landis-300x300.jpg\" alt=\"\" width=\"300\" height=\"300\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Dr.-Leah-Stock-Landis-300x300.jpg 300w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Dr.-Leah-Stock-Landis-150x150.jpg 150w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Dr.-Leah-Stock-Landis-768x768.jpg 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Dr.-Leah-Stock-Landis-12x12.jpg 12w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Dr.-Leah-Stock-Landis-189x189.jpg 189w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Dr.-Leah-Stock-Landis-85x85.jpg 85w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Dr.-Leah-Stock-Landis.jpg 852w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/>We are thrilled to welcome Dr. Leah Stock-Landis to the myFace Family as the new Parent Support Group Facilitator. Dr. Stock-Landis has already been a huge asset since she began her role in June 2022, not only because she brings 27 years of expertise as a clinical psychologist and has a child who was born with a cleft lip and palate and other neurodevelopmental issues, but also because she has firsthand experience of having a craniofacial condition herself.<\/p>\n<p>Dr. Stock-Landis was born with Goldenhar Syndrome and grew up dealing with the emotional, medical, and physical issues related to living with a facial difference, but it was never a focus of her clinical work &#8211; until now.<\/p>\n<blockquote>\n<p class=\"p2\"><span style=\"color: #2fbed0;\"><strong><em>\u201cAs I have become more engaged in the facial difference community, I have been inspired by activists and educators working to increase awareness and inclusivity\u2026 With soul searching, I realized that I had a voice &#8211; as well as important training and experiences &#8211; that might be of benefit to my community and the families who love and support them.\u201d &#8211; Dr. Stock-Landis<\/em><\/strong><\/span><\/p>\n<\/blockquote>\n<p class=\"p2\">Dr. Stock-Landis has proven to be the perfect person to help myFace continue creating a safe and supportive environment where group members can benefit from the healing power of community and feel seen, heard, and understood.<\/p>\n<p>In addition to the support group for parents of a child with a facial difference, myFace also offers support groups for adults and adolescents with facial differences, as well as a support group for Spanish speakers. <strong>For more information about our <em>Virtual Support Groups<\/em> and to find the best fit for you, visit <a href=\"https:\/\/www.myface.org\/es\/online-groups\/\"><span style=\"color: #eb2b94;\">myface.org\/online-groups<\/span><\/a>.<\/strong><\/p>\n<hr \/>\n<h3><span style=\"color: #2fbed0;\"><b>MAKING LIFE EASIER FOR PARENTS IN NEED: The <em>Newborn Craniofacial Care Kit<\/em> Program Has Expanded Across the Country<\/b><\/span><\/h3>\n<div id=\"attachment_16750\" style=\"width: 393px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-16750\" class=\"wp-image-16750\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Guadalupe-Gutierrez-and-Family-Photo-e1660865401673-1024x824.jpg\" alt=\"\" width=\"383\" height=\"308\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Guadalupe-Gutierrez-and-Family-Photo-e1660865401673-1024x824.jpg 1024w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Guadalupe-Gutierrez-and-Family-Photo-e1660865401673-300x241.jpg 300w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Guadalupe-Gutierrez-and-Family-Photo-e1660865401673-768x618.jpg 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Guadalupe-Gutierrez-and-Family-Photo-e1660865401673-15x12.jpg 15w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/Guadalupe-Gutierrez-and-Family-Photo-e1660865401673.jpg 1161w\" sizes=\"auto, (max-width: 383px) 100vw, 383px\" \/><p id=\"caption-attachment-16750\" class=\"wp-caption-text\"><em>These kits have been so helpful to families like Guadalupe\u2019s, whose son was born with a cleft lip and palate.<\/em><\/p><\/div>\n<p>myFace launched a new program in February 2021 &#8211; in partnership with Welcome Baby &#8211; to provide <em><strong>Kits de Cuidado Craneofacial para Reci\u00e9n Nacidos<\/strong><\/em> to parents of babies born with a craniofacial condition. Each kit contains essential items newborns will need in the first four weeks of life, including specially designed bottles and pacifiers donated by Dr. Brown\u2019s\u00ae Medical, a nursing pillow and baby wrap to help hold the baby upright after feeding, and a swaddle to help keep the baby\u2019s hands away from their mouth after undergoing surgery. The kits also contain general newborn supplies such as diapers, baby wipes, a layette, creams, etc.<\/p>\n<p>myFace provides these Kits to partnering hospitals free-of-charge, with the hospitals then dispersing them to families in need who are expecting &#8211; or have just given birth to &#8211; a baby with a craniofacial condition.<\/p>\n<p>myFace Board Member Erin Ashayeri proposed we start this program after receiving a similar kit when her own son Greyson was born with a cleft palate, and understands firsthand what a difference it makes. myFace is currently partnering with 32 hospitals across 16 states to deliver the kits to families in need. We are so grateful to our partners and supporters for helping us make life easier for parents in the craniofacial community. <strong>If you are interested in learning more or making a donation to support this program, please visit <span style=\"color: #eb2b94;\"><a style=\"color: #eb2b94;\" href=\"https:\/\/www.myface.org\/es\/newborn-craniofacial-care-kits\/\">myface.org\/welcome-baby<\/a><\/span>.<\/strong><\/p>\n<hr \/>\n<h3><span style=\"color: #2fbed0;\"><b>THANK YOU!<\/b><\/span><\/h3>\n<p><strong>A special shout-out to <span style=\"color: #eb2b94;\"><a style=\"color: #eb2b94;\" href=\"https:\/\/coresight.com\/\">Coresight Research<\/a><\/span> for being a Leader Sponsor and walking with us in our 10th Annual <em>Carreras de caras <\/em>celebration!<\/strong><\/p>\n<p>Coresight provides research and advisory services to firms navigating the intersection of retail and tech.<\/p>\n<p style=\"text-align: center;\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-16752 size-full\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/coresight-research.png\" alt=\"\" width=\"225\" height=\"225\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/coresight-research.png 225w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/coresight-research-150x150.png 150w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/coresight-research-12x12.png 12w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/coresight-research-189x189.png 189w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/coresight-research-85x85.png 85w\" sizes=\"auto, (max-width: 225px) 100vw, 225px\" \/><\/p>\n<hr \/>\n<h3><span style=\"color: #2fbed0;\"><b>UPCOMING EVENTS: Mark your Calendars<\/b><\/span><\/h3>\n<p><strong>To RSVP and register, visit <span style=\"color: #eb2b94;\"><a style=\"color: #eb2b94;\" href=\"https:\/\/racesforfaces.funraise.org\/\">RacesforFaces.org<\/a><\/span>!<\/strong><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-16753\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/RFF-Ad-Summer-2022-Newsletter-Final-1024x328.png\" alt=\"\" width=\"829\" height=\"265\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/RFF-Ad-Summer-2022-Newsletter-Final-1024x328.png 1024w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/RFF-Ad-Summer-2022-Newsletter-Final-300x96.png 300w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/RFF-Ad-Summer-2022-Newsletter-Final-768x246.png 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/RFF-Ad-Summer-2022-Newsletter-Final-1536x492.png 1536w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/RFF-Ad-Summer-2022-Newsletter-Final-18x6.png 18w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/08\/RFF-Ad-Summer-2022-Newsletter-Final.png 2000w\" sizes=\"auto, (max-width: 829px) 100vw, 829px\" \/><\/p>\n<p>&nbsp;<\/p>\n<p><strong>To register and learn more about this upcoming webinar, visit <span style=\"color: #eb2b94;\"><a style=\"color: #eb2b94;\" href=\"https:\/\/www.myface.org\/es\/events-page\/hearingwebinar\/\">myFace.org\/hearingwebinar<\/a><\/span>.<\/strong><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-16626\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2022\/07\/Streamyard-Broadcast-Assets-Transforming-Lives-Webinar-e1660866152767-1024x602.png\" alt=\"\" width=\"579\" height=\"340\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2022\/07\/Streamyard-Broadcast-Assets-Transforming-Lives-Webinar-e1660866152767-1024x602.png 1024w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/07\/Streamyard-Broadcast-Assets-Transforming-Lives-Webinar-e1660866152767-300x176.png 300w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/07\/Streamyard-Broadcast-Assets-Transforming-Lives-Webinar-e1660866152767-768x451.png 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/07\/Streamyard-Broadcast-Assets-Transforming-Lives-Webinar-e1660866152767-1536x903.png 1536w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/07\/Streamyard-Broadcast-Assets-Transforming-Lives-Webinar-e1660866152767-18x12.png 18w, https:\/\/www.myface.org\/wp-content\/uploads\/2022\/07\/Streamyard-Broadcast-Assets-Transforming-Lives-Webinar-e1660866152767.png 1838w\" sizes=\"auto, (max-width: 579px) 100vw, 579px\" \/><\/p>","protected":false},"excerpt":{"rendered":"<p>Click here to download a PDF version of the Summer 2022 Newsletter &nbsp; Dear Reader, As we approach the end of summer, I am so excited to share all that we have been able to accomplish, thanks to your generosity. I hope you enjoy reading this issue of the YOUR<\/p>\n<p><a class=\"sd-more sd-all-trans\" href=\"https:\/\/www.myface.org\/es\/summer22newsletter\/#more-16702\">Leer m\u00e1s<\/a><\/p>","protected":false},"author":21,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[312],"tags":[385,393,64,65,392,386,84,112,391],"class_list":["post-16702","post","type-post","status-publish","format-standard","hentry","category-newsletters","tag-brenda-louw","tag-coresight-research","tag-crouzon","tag-crouzon-syndrome","tag-dr-leah-stock-landis","tag-linda-d-vallino","tag-pfeiffer-syndrome","tag-r-j-palacio","tag-yelena-jennings"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Summer 2022 Newsletter - myFace<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.myface.org\/es\/summer22newsletter\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Summer 2022 Newsletter - myFace\" \/>\n<meta property=\"og:description\" content=\"Click here to download a PDF version of the Summer 2022 Newsletter &nbsp; Dear Reader, As we approach the end of summer, I am so excited to share all that we have been able to accomplish, thanks to your generosity. I hope you enjoy reading this issue of the YOURRead More\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.myface.org\/es\/summer22newsletter\/\" \/>\n<meta property=\"og:site_name\" content=\"myFace\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/myFaceFoundation\/\" \/>\n<meta property=\"article:published_time\" content=\"2022-08-18T23:46:39+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2022-08-19T20:14:18+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.myface.org\/wp-content\/uploads\/2020\/01\/stephanie-staff-close-282x300.jpg\" \/>\n<meta name=\"author\" content=\"Katie Bazyluk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@thisis_myface\" \/>\n<meta name=\"twitter:site\" content=\"@thisis_myface\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Katie Bazyluk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"12 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.myface.org\/summer22newsletter\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.myface.org\/summer22newsletter\/\"},\"author\":{\"name\":\"Katie Bazyluk\",\"@id\":\"https:\/\/www.myface.org\/#\/schema\/person\/8bf7668878f88ed9bdaf3cb7523995f0\"},\"headline\":\"Summer 2022 Newsletter\",\"datePublished\":\"2022-08-18T23:46:39+00:00\",\"dateModified\":\"2022-08-19T20:14:18+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.myface.org\/summer22newsletter\/\"},\"wordCount\":2279,\"commentCount\":0,\"image\":{\"@id\":\"https:\/\/www.myface.org\/summer22newsletter\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.myface.org\/wp-content\/uploads\/2020\/01\/stephanie-staff-close-282x300.jpg\",\"keywords\":[\"Brenda Louw\",\"CoreSight Research\",\"crouzon\",\"Crouzon Syndrome\",\"Dr. Leah Stock-Landis\",\"Linda D. 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