{"id":14363,"date":"2021-10-05T08:39:05","date_gmt":"2021-10-05T12:39:05","guid":{"rendered":"https:\/\/www.myface.org\/?p=14363"},"modified":"2023-06-20T22:58:13","modified_gmt":"2023-06-21T02:58:13","slug":"emily","status":"publish","type":"post","link":"https:\/\/www.myface.org\/es\/emily\/","title":{"rendered":"Meet Emily – A SPIRITED \u201cWARRIOR\u201d AND PASSIONATE ADVOCATE FOR THE CRANIOFACIAL COMMUNITY"},"content":{"rendered":"

Emily is not your ordinary 24-year-old. In fact, she\u2019s quite extraordinary.<\/p>\n

Emily was born with a rare craniofacial condition called S\u00edndrome de Apert<\/a> causing her facial, skull bones and digits to fuse together too early in development. She\u2019s had so many surgeries to date she doesn\u2019t even remember all of them. Emily acknowledges her life has not been easy, dealing with all the obvious physical struggles and the many psychosocial and developmental challenges as a result of her condition. However, she feels they have made her tougher and stronger, and the spirited “warrior” she is today.<\/p>\n

Emily has worked hard to get to where she is. She is currently studying at Nassau Community College earning her degree in Administrative Business Technology and works part-time at an agency that helps provide services for people with intellectual and developmental disabilities.<\/p>\n

For Emily, giving back is part of her core, and one of the reasons she has become an active part of myFace, especially through her participation in the Adult<\/i><\/b> <\/i><\/b>Support<\/i><\/b> <\/i><\/b>Group<\/i><\/b><\/a><\/span> <\/i><\/b>y myFace,<\/i><\/b> <\/i><\/b>myStory<\/i><\/b> <\/i><\/b>Broadcast<\/i><\/b> <\/i><\/b><\/span>Series<\/span><\/i><\/b><\/a>, where she has a platform to share her voice, her story, and be an advocate for others like her.<\/p>\n

Emily wants people to know that “no<\/i> <\/i>matter<\/i> <\/i>what<\/i> <\/i>kinds<\/i> <\/i>of<\/i> <\/i>obstacles<\/i> <\/i>life<\/i> <\/i>may<\/i> <\/i>throw<\/i> <\/i>at<\/i> <\/i>us,<\/i> <\/i>we<\/i> <\/i>must<\/i> <\/i>always<\/i> <\/i>remember<\/i> <\/i>to<\/i> <\/i>keep<\/i> <\/i>moving<\/i> <\/i>forward<\/i> <\/i>y<\/i> <\/i>never<\/i> <\/i>give<\/i> <\/i>up<\/i> <\/i>on<\/i> <\/i>something<\/i> <\/i>that<\/i> <\/i>we<\/i> <\/i>really<\/i> <\/i>want<\/i> <\/i>to<\/i> <\/i>see<\/i> <\/i>ourselves<\/i> <\/i>accomplish.”<\/i><\/p>\n

Bravo, all you fight for. You are an inspiration to us all!<\/p>\n

\"\"<\/p>\n

\u201cWhat I mostly admire about being a part of myFace is getting the opportunity to be an advocate for others like me by sharing my story and letting them know it\u2019s okay to embrace your differences. Because what you think about yourself is more important than what a stranger walking on the other side of the street thinks of you.\u201d<\/span><\/h3>","protected":false},"excerpt":{"rendered":"

Emily is not your ordinary 24-year-old. In fact, she\u2019s quite extraordinary. Emily was born with a rare craniofacial condition called Apert Syndrome causing her facial, skull bones and digits to fuse together too early in development. She\u2019s had so many surgeries to date she doesn\u2019t even remember all of them.<\/p>\n

Leer m\u00e1s<\/a><\/p>","protected":false},"author":21,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[30],"tags":[159,241,45,343,182,322],"class_list":["post-14363","post","type-post","status-publish","format-standard","hentry","category-spotlights","tag-apert-syndrome","tag-community","tag-craniofacial","tag-emily","tag-patient-spotlight","tag-patient-stories"],"yoast_head":"\nMeet Emily - A SPIRITED \u201cWARRIOR\u201d AND PASSIONATE ADVOCATE FOR THE CRANIOFACIAL COMMUNITY - myFace<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.myface.org\/es\/emily\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Meet Emily - A SPIRITED \u201cWARRIOR\u201d AND PASSIONATE ADVOCATE FOR THE CRANIOFACIAL COMMUNITY - myFace\" \/>\n<meta property=\"og:description\" content=\"Emily is not your ordinary 24-year-old. 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