{"id":10608,"date":"2020-06-01T11:48:37","date_gmt":"2020-06-01T15:48:37","guid":{"rendered":"https:\/\/www.myface.org\/?p=10608"},"modified":"2020-08-18T12:49:59","modified_gmt":"2020-08-18T16:49:59","slug":"summer-2020-newsletter","status":"publish","type":"post","link":"https:\/\/www.myface.org\/es\/summer-2020-newsletter\/","title":{"rendered":"Summer 2020 Newsletter"},"content":{"rendered":"

You can download\u00a0 a digital version of our summer newsletter here<\/a>.\u00a0<\/em><\/p>\n

Thank you for bringing Alonso’s smile to life.<\/h2>\n

\"Image<\/p>\n

Alonso is the youngest of a loving, close knit family of 5 who came to the US from the Dominican Republic in 2015 when he was just a baby. Born with Crouzon Syndrome, he was later diagnosed with Craniosynostosis – two craniofacial conditions that resulted in the bones of his face and skull not forming properly.<\/p>\n

Read the Story<\/a><\/p>\n

\"\"<\/p>\n

Join Families Across the Nation for the myFace Virtual Summer Series<\/h2>\n

On July 9th, myFace kicked off its new nationwide Virtual Summer Series with a Read Aloud Program featuring R.J. Palacio who shared her children\u2019s book We\u2019re All Wonders.<\/p>\n

This inaugural program, which has already been viewed by thousands of children and families across the country, was the first of more than a dozen live virtual events scheduled over the next 2 months.<\/p>\n

The myFace Virtual Summer Series program will help to provide compelling educational, creative,
\nand community-building content for our patients, families and greater craniofacial community, as well as the general public. Most importantly, we will offer these programs at no charge to our participants. The series includes:<\/p>\n

Read Alouds<\/strong> \u2013 Authors of popular children\u2019s books will read their books and offer a live Q&A.<\/p>\n

Virtual Family Hours<\/strong> \u2013 Interactive programs are being created featuring NYC Kids Performance Group, The Paper Bag Players and interactive presentations by a magician and an artist.<\/p>\n

Learn More<\/a><\/p>\n

Self-care in Times of COVID-19<\/h2>\n

Read our Q&A with Dr. Aileen Blitz, a team psychologist at the myFace Center for Craniofacial Care NYU Langone Health.
\n\"\"<\/p>\n

Q: After many months of isolation, what advice do you have to stay calm and optimistic?<\/h4>\n

We are all facing a challenging time but the most important thing to do is keep perspective, this will not last forever, nothing does.<\/p>\n

Reach out to friends, family, old friends you haven\u2019t spoken to, co-workers\u2014stay connected, every single day.<\/p>\n

Try to go outside if you can get some Vitamin D (sunshine) for at least 20 minutes a day.\u00a0 As Spring blooms around the country, it is wonderful to watch flowers bloom and take in the season with a whole new perspective.<\/p>\n

It is important to keep a routine \u2013 of waking up and going to bed, of exercise \u2013 even if it is light stretching or a walk around your own house, etc.<\/p>\n

Get creative: Cook, bake, maybe adult coloring books for relaxation, jigsaw puzzles, learn to draw or paint, garden if you have outdoor space or try to create an indoor herb garden, rearrange your furniture\u2014it might feel like you just redecorated<\/p>\n

Read the Full Q&A<\/a><\/p>\n

A place for patients and families to turn to when they need it most<\/h2>\n

\"\"<\/p>\n

We couldn’t provide these support groups without you. Thank you!<\/h4>\n

Psychosocial care plays such a critical role in positive outcomes for those impacted by craniofacial differences. Dina Zuckerberg, Director of Family Programs, coordinates and co-leads emotional support groups that are designed to provide guidance, counsel and community for our patients, siblings and parents<\/p>\n

Prior to the COVID19 outbreak, these myFace support groups were delivered as monthly in-person meetings. However, with the shelter-in-place restrictions in force, myFace needed to pivot and find a way to continue to provide this important resource. By quickly adapting to a virtual environment – thank
\nyou, Zoom! – everyone now has access to these groups from home or wherever they may be. In fact, attendance has almost doubled and the groups are meeting now 2-4 times a month!<\/p>\n

\u201cBeing in a group like this just feels right and being surrounded by people who know, on the same level, what it means to have a facial difference and the daily struggle that comes with that is invaluable. Thank you for welcoming me with such open arms.\u201d
\n– Kelsey, Moebius Syndrome, Alberta, Canada<\/p><\/blockquote>\n

Join an Online Group<\/a><\/p>\n

Join us for our 8th Annual Races for Faces Event<\/h2>\n

\"myface<\/p>\n

When:\u00a0 September 26, 2020, 9am EDT<\/h4>\n

Join us from wherever you are!<\/h4>\n

We weren\u2019t kidding when we said you can be anywhere for this year\u2019s Races for Faces! Team Paprik\u00e1s Csirke, led by myFace Star, Abby Rucker, is participating all the way from Romania. In fact, they are one of our Races for Faces Grand Marshals!<\/p>\n

\"\"

Abby Rucker (with hoodie) pictured with her family<\/p><\/div>\n

myFace is near and dear to the Rucker family\u2019s heart. Abby was born with a unilateral-cleft lip and palate in early 2001 and her first surgery took place in New York City on Sept. 11, 2001. Despite the chaos of the day, the myFace Center team never took their focus off Abby and her family. Now a college student, Abby is also an accomplished musician, singer and composer.<\/p>\n

Please join myFace and Team Paprik\u00e1s Csirke for this year\u2019s Races for Faces as we walk separately, but together in solidarity on September 26th.<\/p>\n

Join Us<\/a><\/p>\n

You can download\u00a0 a digital version of our summer newsletter here<\/a>.\u00a0<\/em><\/p>","protected":false},"excerpt":{"rendered":"

You can download\u00a0 a digital version of our summer newsletter here.\u00a0 Thank you for bringing Alonso’s smile to life. Alonso is the youngest of a loving, close knit family of 5 who came to the US from the Dominican Republic in 2015 when he was just a baby. Born with<\/p>\n

Leer m\u00e1s<\/a><\/p>","protected":false},"author":14,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[312],"tags":[],"class_list":["post-10608","post","type-post","status-publish","format-standard","hentry","category-newsletters"],"yoast_head":"\nSummer 2020 Newsletter - myFace<\/title>\n<meta name=\"description\" content=\"Read what's going on at myFace in our Summer 2020 Newsletter. 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