{"id":8818,"date":"2019-07-23T11:36:34","date_gmt":"2019-07-23T15:36:34","guid":{"rendered":"http:\/\/www.myface.org\/?page_id=8818"},"modified":"2019-07-23T16:51:33","modified_gmt":"2019-07-23T20:51:33","slug":"organizations-align-increase-awareness-cleft-craniofacial","status":"publish","type":"page","link":"https:\/\/www.myface.org\/es\/organizations-align-increase-awareness-cleft-craniofacial\/","title":{"rendered":"ORGANIZATIONS ALIGN TO INCREASE AWARENESS ABOUT CLEFT AND CRANIOFACIAL CONDITIONS"},"content":{"rendered":"
<\/div>

ORGANIZATIONS ALIGN TO INCREASE AWARENESS ABOUT CLEFT AND CRANIOFACIAL CONDITIONS<\/h2><\/div><\/div>\n\t
\n\t\t
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FOR IMMEDIATE DISTRIBUTION<\/p>\n

Unprecedented effort to educate public about one of the world\u2019s most common birth defects, and the growing number of treatment options available.<\/em><\/p>\n

CHAPEL HILL, N.C. \/ July 9, 2019 \u2013 This year, more than 7,000 babies will be born in the
\nUnited States with a cleft lip and\/or palate or other serious craniofacial condition. But the
\nprospects have never been better for these patients to thrive due to advanced medical
\ntreatments and interdisciplinary supporting care.<\/p>\n

Four leading non-profit organizations that serve these patients and their families — the American
\nCleft-Palate-Craniofacial Association (ACPA), Children\u2019s Craniofacial Association, myFace and
\nSmile Train — are joining forces to educate the public during national Cleft and Craniofacial
\nAwareness Month in July.<\/p>\n

\u201cACPA is excited to join our peer agencies in this unprecedented collaboration to raise
\nawareness about cleft and craniofacial conditions and the remarkable progress we are making
\nin their treatment,\u201d said Bernard J. Costello, DMD, MD, FACS, ACPA president. \u201cDuring Cleft
\nand Craniofacial Awareness Month, our collective goal is to spread the word about facial
\ndifference and the diverse needs and experiences of our patients and the professionals who
\nserve them. Please join ACPA on social media to join the awareness movement.\u201d<\/p>\n

\u201cChildren’s Craniofacial Association celebrates this month by sharing photos and stories from
\nour families, including those who recently attended our Annual Family Retreat & Educational
\nSymposium that was held June 27-30,\u201d said Erica Mossholder, executive director of Children\u2019s
\nCraniofacial Association. \u201cMany children with clefts and craniofacial conditions attend this
\nRetreat for support, education, and networking and throughout July we will share highlights of
\nthe event, because we truly believe that “more shares leads to fewer stares; and in turn greater
\npublic acceptance of facial and physical differences.\u201d<\/p>\n

“As someone who was born with a cleft lip, hearing loss, and no vision in one eye, I was often
\nteased and excluded as a child.\u00a0 I know first-hand what it’s like to live with a craniofacial
\ndifference,\u201d said Dina Zuckerberg from myFace. “By serving as Director of Family Programs at
\nmyFace, my mission is to raise awareness, educate and give hope to the patients we treat and
\ntheir families. \u00a0myFace has launched its 7th Annual Races for Faces (www.racesforfaces), a
\nwalk and carnival, on Sunday, September 15 in New York City where hundreds will come
\ntogether to show their support for the craniofacial community.”<\/p>\n

\u201cTo show our support for children with clefts and help raise awareness, Smile Train will be
\nparticipating in many activities throughout the month of July including: our #SmileMaker social
\nmedia campaign encouraging followers to update their Facebook profile photos with our special
\nframe, our partnership video with BIG Talk promoting deeper conversations about cleft, and our
\npersonal stories of impact from our patients and local medical partners around the world,\u201d said
\nShannon Lambert, Smile Train\u2019s Vice President &amp; Regional Director, Americas & Europe.
\n\u201cWe\u2019ve also created a dedicated landing page for the month with helpful information about our
\nefforts which can be found at: smiletrain.org\/nccapm.\u201d<\/p>\n

According to the Centers for Disease Control and Prevention, cleft lip and cleft palate occur
\nwhen a baby\u2019s lip or mouth do not form properly during pregnancy. Clefts are one of the most
\ncommon types of birth defects in the United States and globally, occurring in about 1 in 700
\nbirths overall. The causes are not always known, although some cases are linked to genetics
\nand\/or environmental factors such as substances that the mother ingests or comes in contact
\nwith during pregnancy.<\/p>\n

A baby born with a cleft will need surgery within the first year to ensure the best possible
\noutcomes. Otherwise, she may have trouble eating, sleeping, breathing or speaking. Children
\nwith more complicated conditions or related syndromes may need numerous surgeries
\nthroughout infancy, childhood and possibly into young adulthood.<\/p>\n

A typical cleft lip or cleft palate normally can be repaired with one or two procedures. The child\u2019s
\nhearing, speech and dental needs may require additional specialty treatment. Later in life,
\nbraces, mouth appliances and additional surgery may be required.<\/p>\n

The needs of patients with cleft and craniofacial conditions are complex and make
\ninterdisciplinary, coordinated care essential. In addition to a surgeon, treatment may be required
\nfrom a variety of medical and other specialists including an audiologist, pediatric dentist,
\northodontist, geneticist, nurse, otolaryngologist (ENT), pediatrician, psychologist, speech-
\nlanguage pathologist and other health care providers as needed.<\/p>\n

A team-oriented approach ensures that care is provided in a coordinated and consistent
\nmanner, with the proper sequencing of evaluations and treatments within the framework of the
\npatient\u2019s overall developmental, medical, and psychological needs.
\nFor more information about cleft and craniofacial conditions and to find resources and care in
\nyour community:<\/p>\n

CONTACTS & INFORMATION:<\/strong><\/span>
\nAmerican Cleft Palate-Craniofacial Association – acpa-cpf.org<\/a><\/strong>
\nAssociation of interested individuals and healthcare professionals representing more than 30
\ndisciplines who treat and\/or perform research on oral cleft and craniofacial conditions.
\nContact: Alyssa Kirkman; (919) 933-9044; alyssa.kirkman@acpa-cpf.com
\nChildren\u2019s Craniofacial Association – ccakids.org
\nChildren’s Craniofacial Association, a 501(c)(3) nonprofit based in Dallas, Texas, serves over
\n20,000 families per year. CCA’s mission is empowering and giving hope to individuals and
\nfamilies affected by facial differences. CCA envisions a world where all people are accepted for
\nwho they are, not how they look.
\nContact: Erica Mossholder; 214-570-9099; emossholder@ccakids.com<\/p>\n

myFace – myface.org<\/a><\/strong>
\nmyFace is a non-profit organization dedicated to transforming the lives of patients with
\ncraniofacial differences. With a special focus on children and their families, myFace funds
\nmedical, surgical, dental, speech and psychosocial services at the myFace Center for
\nCraniofacial Care at NYU Langone Health, as well as research and public awareness.
\nContact: \u00a0Dina Zuckerberg; 917-720-4701; info@myface.org<\/p>\n

Smile Train – smiletrain.org<\/a><\/strong>
\nEmpowers local medical professionals with training, funding, and resources to provide free cleft
\nsurgery and comprehensive cleft care to children globally. They advance a sustainable solution
\nand scalable global health model for cleft treatment, drastically improving children\u2019s lives,
\nincluding their ability to eat, breathe, speak, and ultimately thrive.
\nContact: Shari Mason, VP Communications; 212.689,9316; smason@smiletrain.org<\/p>\n\n\t\t<\/div>\n\t<\/div>\n<\/div><\/div><\/div><\/div><\/div><\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"

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