{"id":15848,"date":"2022-05-20T00:52:07","date_gmt":"2022-05-20T04:52:07","guid":{"rendered":"https:\/\/www.myface.org\/?page_id=15848"},"modified":"2022-11-08T10:19:07","modified_gmt":"2022-11-08T15:19:07","slug":"living-with","status":"publish","type":"page","link":"https:\/\/www.myface.org\/es\/craniofacial-conditions\/cleft-lip-and-or-palate\/living-with\/","title":{"rendered":"Viviendo con Labio Hendido y\/o Paladar Hendido"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"ult-spacer spacer-69d096328bded\" data-id=\"69d096328bded\" data-height=\"80\" data-height-mobile=\"80\" data-height-tab=\"80\" data-height-tab-portrait=\"\" data-height-mobile-landscape=\"50\" style=\"clear:both;display:block;\"><\/div><div id=\"ultimate-heading-181469d096328be2a\" class=\"uvc-heading ult-adjust-bottom-margin ultimate-heading-181469d096328be2a uvc-7114 \" data-hspacer=\"no_spacer\"  data-halign=\"center\" style=\"text-align:center\"><div class=\"uvc-heading-spacer no_spacer\" style=\"top\"><\/div><div class=\"uvc-main-heading ult-responsive\"  data-ultimate-target='.uvc-heading.ultimate-heading-181469d096328be2a h2'  data-responsive-json-new='{\"font-size\":\"desktop:46px;tablet:46px;tablet_portrait:46px;mobile_landscape:35px;mobile:35px;\",\"line-height\":\"\"}' ><h2 style=\"font-weight:bold;color:#ffffff;\">Living with Cleft Lip and\/or Palate<\/h2><\/div><\/div><div class=\"ult-spacer spacer-69d096328be41\" data-id=\"69d096328be41\" data-height=\"80\" data-height-mobile=\"80\" data-height-tab=\"80\" data-height-tab-portrait=\"\" data-height-mobile-landscape=\"50\" style=\"clear:both;display:block;\"><\/div><\/div><\/div><\/div><\/div><!-- Row Backgrounds --><div class=\"upb_color\" data-bg-override=\"0\" data-bg-color=\"#00a4b4\" data-fadeout=\"\" data-fadeout-percentage=\"30\" data-parallax-content=\"\" data-parallax-content-sense=\"30\" data-row-effect-mobile-disable=\"true\" data-img-parallax-mobile-disable=\"true\" data-rtl=\"false\"  data-custom-vc-row=\"\"  data-vc=\"8.0\"  data-is_old_vc=\"\"  data-theme-support=\"enable\"   data-overlay=\"false\" data-overlay-color=\"\" data-overlay-pattern=\"\" data-overlay-pattern-opacity=\"\" data-overlay-pattern-size=\"\"    ><\/div><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-8 vc_col-lg-offset-1 vc_col-lg-10 vc_col-md-offset-1 vc_col-md-10 vc_col-xs-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"vc_row wpb_row vc_inner vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-8\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\">\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<p><span style=\"text-decoration: underline;\"><a href=\"\/\"><strong>Home<\/strong><\/a><\/span> &gt; <strong><span style=\"text-decoration: underline;\"><a href=\"\/craniofacial-conditions\/\">Craniofacial Conditions<\/a><\/span><\/strong> &gt; <span style=\"text-decoration: underline;\"><a href=\"\/craniofacial-conditions\/cleft-lip-and-or-palate\/\"><strong>Cleft Lip and\/or Palate<\/strong><\/a><\/span> &gt;\u00a0<strong>Living with Cleft Lip and\/or Palate<\/strong><\/p>\n<div class=\"trp_language_switcher_shortcode\">\n<div class=\"trp-language-switcher trp-language-switcher-container\" data-no-translation >\n    <div class=\"trp-ls-shortcode-current-language\">\n        <a href=\"#\" class=\"trp-ls-shortcode-disabled-language trp-ls-disabled-language\" title=\"Espa\u00f1ol\" onclick=\"event.preventDefault()\">\n\t\t\t<img loading=\"lazy\" decoding=\"async\" class=\"trp-flag-image\" src=\"https:\/\/www.myface.org\/wp-content\/plugins\/translatepress-multilingual\/assets\/images\/flags\/es_ES.png\" width=\"18\" height=\"12\" alt=\"es_ES\" title=\"Espa\u00f1ol\"> Espa\u00f1ol\t\t<\/a>\n    <\/div>\n    <div class=\"trp-ls-shortcode-language\">\n                <a href=\"#\" class=\"trp-ls-shortcode-disabled-language trp-ls-disabled-language\"  title=\"Espa\u00f1ol\" onclick=\"event.preventDefault()\">\n\t\t\t<img loading=\"lazy\" decoding=\"async\" class=\"trp-flag-image\" src=\"https:\/\/www.myface.org\/wp-content\/plugins\/translatepress-multilingual\/assets\/images\/flags\/es_ES.png\" width=\"18\" height=\"12\" alt=\"es_ES\" title=\"Espa\u00f1ol\"> Espa\u00f1ol\t\t<\/a>\n                    <a href=\"https:\/\/www.myface.org\/es\/wp-json\/wp\/v2\/pages\/15848#TRPLINKPROCESSED\" title=\"English\">\n            <img loading=\"lazy\" decoding=\"async\" class=\"trp-flag-image\" src=\"https:\/\/www.myface.org\/wp-content\/plugins\/translatepress-multilingual\/assets\/images\/flags\/en_US.png\" width=\"18\" height=\"12\" alt=\"en_US\" title=\"English\"> English        <\/a>\n\n        <\/div>\n    <script type=\"application\/javascript\">\n        \/\/ need to have the same with set from JS on both divs. Otherwise it can push stuff around in HTML\n        var trp_ls_shortcodes = document.querySelectorAll('.trp_language_switcher_shortcode .trp-language-switcher');\n        if ( trp_ls_shortcodes.length > 0) {\n            \/\/ get the last language switcher added\n            var trp_el = trp_ls_shortcodes[trp_ls_shortcodes.length - 1];\n\n            var trp_shortcode_language_item = trp_el.querySelector( '.trp-ls-shortcode-language' )\n            \/\/ set width\n            var trp_ls_shortcode_width                                               = trp_shortcode_language_item.offsetWidth + 16;\n            trp_shortcode_language_item.style.width                                  = trp_ls_shortcode_width + 'px';\n            trp_el.querySelector( '.trp-ls-shortcode-current-language' ).style.width = trp_ls_shortcode_width + 'px';\n\n            \/\/ We're putting this on display: none after we have its width.\n            trp_shortcode_language_item.style.display = 'none';\n        }\n    <\/script>\n<\/div>\n<\/div>\n\n\t\t<\/div>\n\t<\/div>\n\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<h2>Feeding Difficulty and Other Considerations for Babies with Cleft Lip and\/or Palate<\/h2>\n<h3><span style=\"font-weight: 800;\">Caring for a child with cleft lip and\/or palate can be complex depending on the severity of the case.<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">Families should be prepared to work with a team of doctors and specialists to care for a child with a cleft even after the initial repair and reconstructive procedures have been completed. These specialists on a patient\u2019s comprehensive care team can include surgeons (who specialize in oral, plastic, and ear\/nose\/throat (ENT) surgeries), ear, nose, throat specialists (ENTs), pediatricians, orthodontists, auditory specialists, speech therapists, nutritionists, genetic counselors, social workers, and psychologists.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">During the newborn period, especially prior to surgical repair, feeding difficulty is one of the most immediate concerns. Babies with cleft lip alone can typically generate enough suction to breast-feed effectively, but those with cleft palate may have difficulty sucking during feeding.\u00a0<\/span><\/p>\n<h3><span style=\"font-weight: 800;\">Feeding Difficulty with Cleft Palate<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">Infants with a cleft in their palate may have difficulty feeding, as indicated by:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Choking, gagging, or coughing during or after feeding<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Milk coming back up through the nose<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Vomiting<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Crying, back arching, watery eyes, furrowing eyebrows during feedings<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Poor weight gain or even weight loss<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Difficulty with transitioning food types at appropriate ages (for example, unable to transition from a specialized bottle to a cup, or difficulty transitioning later to purees and table foods)<\/span><\/li>\n<\/ul>\n<p><b>To address feeding challenges, various specialized products can be used:<\/b><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Specialized bottle nipples with one-way valves<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Squeezable bottles<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Dental appliances used to cover the cleft palate<\/span><\/li>\n<\/ul>\n<p><b>Experts also recommend the following to facilitate improved feeding:<\/b><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Burp frequently (approximately every 5 minutes) to avoid nasal regurgitation and building up of intestinal gas<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Feed in a semi-upright angled position<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">After feeding, keep the baby in a semi-upright position to help him\/her keep the milk down<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Feeding time should take 30 minutes or less. If it is taking longer, it may be time to switch to a faster flow nipple.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">If the baby is not feeding well, is becoming dehydrated (no wet diapers in &gt;6 hours), or is not gaining weight appropriately, a medical provider and\/or feeding therapist should be consulted right away.<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">For additional information on recommended feeding systems\/products and techniques, please refer to the following resource:<\/span><\/p>\n<p><a href=\"https:\/\/acpa-cpf.org\/acpa-family-services\/family-resources\/feeding-your-baby\/?_ga=2.31527102.1017258773.1654632181-1425552912.1654632181\"><span style=\"font-weight: 400;\">American Cleft Palate-Craniofacial Association\u2019s \u201cFeeding Your Baby\u201d materials <\/span><\/a><a href=\"https:\/\/acpa-cpf.org\/acpa-family-services\/family-resources\/feeding-your-baby\/?_ga=2.31527102.1017258773.1654632181-1425552912.1654632181\"><span style=\"font-weight: 400;\">Post-surgery Care for Infants<\/span><\/a><\/p>\n<h3><span style=\"font-weight: 800;\">Guidance for Post-surgical Care<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">The required care post-surgery will vary depending on which procedure has been performed. After most cleft lip repairs, the surgeon may recommend applying elbow restraints to prevent the infant from touching the stitches. Another way to keep the infant\u2019s hands away from the wound is to keep them swaddled. It is also important to follow the doctor\u2019s feeding instructions following surgery to allow proper healing of the repaired area. Typically, stitches will either dissolve or be removed within five days. The surgical scar may appear to become bigger and redder for a few weeks after surgery, but this will likely fade gradually with time.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">After a cleft palate repair, an overnight stay is usually recommended to monitor the baby\u2019s airway and ability to breathe properly. Although the child may not eat or drink as much as usual immediately after surgery, it is important to follow the surgeon\u2019s advice on feeding so that the palate heals properly. For example, drinking from a nipple or using a pacifier should be avoided, and most experts recommend that the child transition to using a sippy cup without a valve post-surgery. Restraints to avoid touching of the surgical site, along with pain control using acetaminophen may also reduce the baby\u2019s discomfort in the post-surgical period.<\/span><\/p>\n<p>Caring for a child with cleft lip and\/or palate can be complex depending on the severity of the case. Families should be prepared to work with a team of doctors and specialists to care for a child with a cleft even after the initial repair and reconstructive procedures have been completed. These specialists on a patient\u2019s comprehensive care team can include surgeons (who specialize in oral, plastic, and ear\/nose\/throat (ENT) surgeries), ear, nose, throat specialists (ENTs), pediatricians, orthodontists, auditory specialists, speech therapists, nutritionists, genetic counselors, social workers, and psychologists.<\/p>\n<h4><strong><em>Special Considerations for Newborns and Infants with Cleft Lip and\/or Palate<\/em><\/strong><\/h4>\n<p>During the newborn period, especially prior to surgical repair, feeding difficulty is one of the most immediate concerns. Babies with cleft lip alone can typically generate enough suction to breast-feed effectively, but those with cleft palate may have difficulty sucking during feeding. To address feeding challenges, various specialized products can be used:<\/p>\n<ul>\n<li>Specialized bottle nipples with one-way valves<\/li>\n<li>Squeezable bottles<\/li>\n<li>Dental appliances used to cover the cleft palate<\/li>\n<\/ul>\n<p>Experts also recommend the following to facilitate improved feeding:<\/p>\n<ul>\n<li>Burp frequently (approximately every 5 minutes) to avoid nasal regurgitation and building up of intestinal gas<\/li>\n<li>Feed in a semi-upright angled position<\/li>\n<li>After feeding, keep the baby in a semi-upright position to help him\/her keep the milk down<\/li>\n<li>Feeding time should take 30 minutes or less. If it is taking longer, it may be time to switch to a faster flow nipple.<\/li>\n<\/ul>\n<p>If the baby is not feeding well, is becoming dehydrated (no wet diapers in &gt;6 hours), or is not gaining weight appropriately, a medical provider and\/or feeding therapist should be consulted right away.<\/p>\n<p>For additional information on recommended feeding systems\/products and techniques, please refer to the following resources:<\/p>\n<ul>\n<li><strong><a href=\"https:\/\/acpa-cpf.org\/acpa-family-services\/family-resources\/feeding-your-baby\/\">American Cleft Palate-Craniofacial Association\u2019s \u201cFeeding Your Baby\u201d materials<\/a><\/strong><\/li>\n<\/ul>\n\n\t\t<\/div>\n\t<\/div>\n\n\t<div class=\"wpb_video_widget wpb_content_element vc_clearfix   vc_video-aspect-ratio-169 vc_video-el-width-80 vc_video-align-center\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n\t\t\t<div class=\"wpb_video_wrapper\"><iframe loading=\"lazy\" title=\"myFace and Sandi Aubuchon for National Nutrition Month\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/yoC0lNOwl90?feature=oembed&amp;hd=1;rel=0;showinfo=0&amp;theme=light&amp;modestbranding=1\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe><\/div>\n\t\t<\/div>\n\t<\/div>\n\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<p><em>Sandi Aubuchon, President of Dr. Brown&#8217;s Medical discusses nutrition for babies with cleft and craniofacial conditions.<\/em><\/p>\n\n\t\t<\/div>\n\t<\/div>\n\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<h4><strong><em>Post-surgery Care for Infants<\/em><\/strong><\/h4>\n<p>The required care post-surgery will vary depending on which procedure has been performed. After most cleft lip repairs, the surgeon may recommend applying elbow restraints to prevent the infant from touching the stitches. Another way to keep the infant\u2019s hands away from the wound is to keep them swaddled. It is also important to follow the doctor\u2019s feeding instructions following surgery to allow proper healing of the repaired area. Typically, stitches will either dissolve or be removed within five days. The surgical scar may appear to become bigger and redder for a few weeks after surgery, but this will likely fade gradually with time.<\/p>\n<p>After a cleft palate repair, an overnight stay is usually recommended to monitor the baby\u2019s airway and ability to breathe properly. Although the child may not eat or drink as much as usual immediately after surgery, it is important to follow the surgeon\u2019s advice on feeding so that the palate heals properly. For example, drinking from a nipple or using a pacifier should be avoided, and most experts recommend that the child transition to using a sippy cup without a valve post-surgery. Restraints to avoid touching of the surgical site, along with pain control using acetaminophen may also reduce the baby\u2019s discomfort in the post-surgical period.<\/p>\n\n\t\t<\/div>\n\t<\/div>\n<\/div><\/div><\/div><div class=\"wpb_column vc_column_container vc_col-sm-4\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"ult_row_spacer\"><div class=\"ult-sticky-anchor\"><div class=\"ult-sticky-section ult-sticky \"  data-gutter= '40' data-stick_behaviour= 'stick_with_scroll_row'  data-sticky_position= 'top' data-mobile='no' data-support='no'>\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<h3 style=\"color: #d8007e;\">Resources for the Craniofacial Community<\/h3>\n<p>myFace provides individuals and families living with a facial difference access to holistic comprehensive care, psychosocial services, education, resources and support that pave the way for better outcomes.<\/p>\n<h4><span style=\"text-decoration: underline;\"><a href=\"\/events\">Upcoming Events<\/a><\/span><\/h4>\n<h4><span style=\"text-decoration: underline;\"><a href=\"\/civa\">3D Surgery Simulators<\/a><\/span><\/h4>\n<h4><span style=\"text-decoration: underline;\"><a href=\"\/parent-guides\">Parent Guides<\/a><\/span><\/h4>\n<h4><span style=\"text-decoration: underline;\"><a href=\"\/online-groups\">Support Groups<\/a><\/span><\/h4>\n\n\t\t<\/div>\n\t<\/div>\n<\/div><div class=\"ult-space\"><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><\/div><\/div><\/div><\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"<p><a class=\"sd-more sd-all-trans\" href=\"https:\/\/www.myface.org\/es\/craniofacial-conditions\/cleft-lip-and-or-palate\/living-with\/#more-15848\">Leer m\u00e1s<\/a><\/p>","protected":false},"author":21,"featured_media":0,"parent":15821,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"full-width-page.php","meta":{"footnotes":""},"class_list":["post-15848","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - 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