{"id":11237,"date":"2020-10-07T15:06:40","date_gmt":"2020-10-07T19:06:40","guid":{"rendered":"https:\/\/www.myface.org\/?page_id=11237"},"modified":"2024-08-27T15:28:56","modified_gmt":"2024-08-27T19:28:56","slug":"asociacion-sindrome-charge","status":"publish","type":"page","link":"https:\/\/www.myface.org\/es\/craniofacial-conditions\/charge-syndrome-association\/","title":{"rendered":"S\u00edndrome\/Asociaci\u00f3n CHARGE"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"container\"><div class=\"sd-centered-wrapper\"><div class=\"wpb_column vc_column_container vc_col-sm-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"ult-spacer spacer-69def0f3afbf1\" data-id=\"69def0f3afbf1\" data-height=\"80\" data-height-mobile=\"50\" data-height-tab=\"\" data-height-tab-portrait=\"\" data-height-mobile-landscape=\"\" style=\"clear:both;display:block;\"><\/div><div id=\"ultimate-heading-395869def0f3afc16\" class=\"uvc-heading ult-adjust-bottom-margin ultimate-heading-395869def0f3afc16 uvc-4376 \" data-hspacer=\"no_spacer\"  data-halign=\"center\" style=\"text-align:center\"><div class=\"uvc-heading-spacer no_spacer\" style=\"top\"><\/div><div class=\"uvc-main-heading ult-responsive\"  data-ultimate-target='.uvc-heading.ultimate-heading-395869def0f3afc16 h2'  data-responsive-json-new='{\"font-size\":\"desktop:46px;tablet:46px;tablet_portrait:46px;mobile_landscape:35px;mobile:35px;\",\"line-height\":\"\"}' ><h2 style=\"font-weight:bold;color:rgba(255,255,255,0.68);\">CHARGE Syndrome\/Association<\/h2><\/div><\/div><div class=\"ult-spacer spacer-69def0f3afc2f\" data-id=\"69def0f3afc2f\" data-height=\"80\" data-height-mobile=\"50\" data-height-tab=\"\" data-height-tab-portrait=\"\" data-height-mobile-landscape=\"\" style=\"clear:both;display:block;\"><\/div><\/div><\/div><\/div><\/div><\/div><\/div><!-- Row Backgrounds --><div class=\"upb_color\" data-bg-override=\"0\" data-bg-color=\"#2fbdd0\" data-fadeout=\"\" data-fadeout-percentage=\"30\" data-parallax-content=\"\" data-parallax-content-sense=\"30\" data-row-effect-mobile-disable=\"true\" data-img-parallax-mobile-disable=\"true\" data-rtl=\"false\"  data-custom-vc-row=\"\"  data-vc=\"8.0\"  data-is_old_vc=\"\"  data-theme-support=\"enable\"   data-overlay=\"false\" data-overlay-color=\"\" data-overlay-pattern=\"\" data-overlay-pattern-opacity=\"\" data-overlay-pattern-size=\"\"    ><\/div><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-10 vc_col-lg-offset-1\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\">\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<p><strong><a href=\"\/craniofacial-conditions\/\">Craniofacial Conditions<\/a> &gt; CHARGE Syndrome\/Association<br \/>\n<\/strong><\/p>\n\n\t\t<\/div>\n\t<\/div>\n<div class=\"ult-spacer spacer-69def0f3afe00\" data-id=\"69def0f3afe00\" data-height=\"15\" data-height-mobile=\"0\" data-height-tab=\"15\" data-height-tab-portrait=\"15\" data-height-mobile-landscape=\"15\" style=\"clear:both;display:block;\"><\/div><\/div><\/div><\/div><\/div><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-12 vc_col-lg-offset-3 vc_col-lg-6 vc_col-md-offset-3 vc_col-md-6 vc_col-xs-offset-1 vc_col-xs-10\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\">\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<div class=\"trp_language_switcher_shortcode\">\n<div class=\"trp-language-switcher trp-language-switcher-container\" data-no-translation >\n    <div class=\"trp-ls-shortcode-current-language\">\n        <a href=\"#\" class=\"trp-ls-shortcode-disabled-language trp-ls-disabled-language\" title=\"Espa\u00f1ol\" onclick=\"event.preventDefault()\">\n\t\t\t<img loading=\"lazy\" decoding=\"async\" class=\"trp-flag-image\" src=\"https:\/\/www.myface.org\/wp-content\/plugins\/translatepress-multilingual\/assets\/images\/flags\/es_ES.png\" width=\"18\" height=\"12\" alt=\"es_ES\" title=\"Espa\u00f1ol\"> Espa\u00f1ol\t\t<\/a>\n    <\/div>\n    <div class=\"trp-ls-shortcode-language\">\n                <a href=\"#\" class=\"trp-ls-shortcode-disabled-language trp-ls-disabled-language\"  title=\"Espa\u00f1ol\" onclick=\"event.preventDefault()\">\n\t\t\t<img loading=\"lazy\" decoding=\"async\" class=\"trp-flag-image\" src=\"https:\/\/www.myface.org\/wp-content\/plugins\/translatepress-multilingual\/assets\/images\/flags\/es_ES.png\" width=\"18\" height=\"12\" alt=\"es_ES\" title=\"Espa\u00f1ol\"> Espa\u00f1ol\t\t<\/a>\n                    <a href=\"https:\/\/www.myface.org\/es\/wp-json\/wp\/v2\/pages\/11237#TRPLINKPROCESSED\" title=\"English\">\n            <img loading=\"lazy\" decoding=\"async\" class=\"trp-flag-image\" src=\"https:\/\/www.myface.org\/wp-content\/plugins\/translatepress-multilingual\/assets\/images\/flags\/en_US.png\" width=\"18\" height=\"12\" alt=\"en_US\" title=\"English\"> English        <\/a>\n\n        <\/div>\n    <script type=\"application\/javascript\">\n        \/\/ need to have the same with set from JS on both divs. Otherwise it can push stuff around in HTML\n        var trp_ls_shortcodes = document.querySelectorAll('.trp_language_switcher_shortcode .trp-language-switcher');\n        if ( trp_ls_shortcodes.length > 0) {\n            \/\/ get the last language switcher added\n            var trp_el = trp_ls_shortcodes[trp_ls_shortcodes.length - 1];\n\n            var trp_shortcode_language_item = trp_el.querySelector( '.trp-ls-shortcode-language' )\n            \/\/ set width\n            var trp_ls_shortcode_width                                               = trp_shortcode_language_item.offsetWidth + 16;\n            trp_shortcode_language_item.style.width                                  = trp_ls_shortcode_width + 'px';\n            trp_el.querySelector( '.trp-ls-shortcode-current-language' ).style.width = trp_ls_shortcode_width + 'px';\n\n            \/\/ We're putting this on display: none after we have its width.\n            trp_shortcode_language_item.style.display = 'none';\n        }\n    <\/script>\n<\/div>\n<\/div>\n<h2><span style=\"font-weight: 800;\">What is CHARGE Syndrome?<\/span><\/h2>\n<p><span style=\"font-weight: 400;\">CHARGE Syndrome is a rare and complex genetic disorder that affects multiple organ systems, leading to a range of health challenges. The acronym &#8220;CHARGE&#8221; stands for:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>C<\/b><span style=\"font-weight: 400;\">oloboma of the eye: A hole in one of the structures of the eye, often affecting vision.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>H<\/b><span style=\"font-weight: 400;\">eart defects: Congenital heart issues, including abnormal connections between heart chambers or blood vessels.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>A<\/b><span style=\"font-weight: 400;\">tresia of the choanae: A blockage of the nasal passages, making breathing difficult.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>R<\/b><span style=\"font-weight: 400;\">etardation of growth and development: Delayed physical and cognitive development.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>G<\/b><span style=\"font-weight: 400;\">enital and urinary anomalies: Abnormalities in the reproductive and urinary organs.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>E<\/b><span style=\"font-weight: 400;\">ar anomalies: Malformations of the outer, middle, or inner ear, often leading to hearing loss.<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">A confirmed diagnosis of CHARGE Syndrome typically requires the presence of at least four of these key features.<\/span><\/p>\n\n\t\t<\/div>\n\t<\/div>\n<\/div><\/div><\/div><\/div><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-12 vc_col-lg-offset-3 vc_col-lg-6 vc_col-md-offset-3 vc_col-md-6 vc_col-xs-offset-1 vc_col-xs-10 vc_col-has-fill\"><div class=\"vc_column-inner vc_custom_1708640251224\"><div class=\"wpb_wrapper\"><div class=\"vc_row wpb_row vc_inner vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-6\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"ult-spacer spacer-69def0f3b03b8\" data-id=\"69def0f3b03b8\" data-height=\"40\" data-height-mobile=\"0\" data-height-tab=\"40\" data-height-tab-portrait=\"40\" data-height-mobile-landscape=\"40\" style=\"clear:both;display:block;\"><\/div>\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<p><b>CHARGE Syndrome\/Association<\/b><\/p>\n<p><b>Overview:<\/b><span style=\"font-weight: 400;\"> CHARGE Syndrome is a rare genetic disorder characterized by a set of congenital anomalies affecting multiple organ systems, including the eyes, heart, ears, and more.<\/span><\/p>\n<p><b>Prevalence:<\/b><span style=\"font-weight: 400;\"> CHARGE Syndrome occurs in approximately 1 in every 10,000 births.<\/span><\/p>\n<p><b>Causes:<\/b><span style=\"font-weight: 400;\"> Caused primarily by mutations in the CHD7 gene.<\/span><\/p>\n<p><b>Diagnosis:<\/b><span style=\"font-weight: 400;\"> Diagnosis typically involves clinical evaluation and genetic testing to confirm CHD7 mutations.<\/span><\/p>\n<p><b>Common Characteristics:<\/b><span style=\"font-weight: 400;\"> Coloboma of the eye, heart defects, growth retardation, genital and urinary anomalies, and ear abnormalities.<\/span><\/p>\n\n\t\t<\/div>\n\t<\/div>\n<\/div><\/div><\/div><div class=\"wpb_column vc_column_container vc_col-sm-6 vc_col-has-fill\"><div class=\"vc_column-inner vc_custom_1708640151407\"><div class=\"wpb_wrapper\">\n\t<div  class=\"wpb_single_image wpb_content_element vc_align_center wpb_content_element\">\n\t\t\n\t\t<figure class=\"wpb_wrapper vc_figure\">\n\t\t\t<div class=\"vc_single_image-wrapper   vc_box_border_grey\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"879\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2024\/08\/23472-CHARGE-syndrome.jpg\" class=\"vc_single_image-img attachment-large\" alt=\"\" title=\"23472-CHARGE-syndrome\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2024\/08\/23472-CHARGE-syndrome.jpg 800w, https:\/\/www.myface.org\/wp-content\/uploads\/2024\/08\/23472-CHARGE-syndrome-273x300.jpg 273w, https:\/\/www.myface.org\/wp-content\/uploads\/2024\/08\/23472-CHARGE-syndrome-768x844.jpg 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2024\/08\/23472-CHARGE-syndrome-11x12.jpg 11w\" sizes=\"auto, (max-width: 800px) 100vw, 800px\" \/><\/div>\n\t\t<\/figure>\n\t<\/div>\n<\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-12 vc_col-lg-offset-3 vc_col-lg-6 vc_col-md-offset-3 vc_col-md-6 vc_col-xs-offset-1 vc_col-xs-10\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"vc_empty_space\"   style=\"height: 32px\"><span class=\"vc_empty_space_inner\"><\/span><\/div>\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<h3><span style=\"font-weight: 800;\">Additional Characteristics of CHARGE Syndrome<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">In addition to the core features, individuals with CHARGE Syndrome may exhibit a variety of other physical and developmental characteristics:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>Facial Features:<\/b><span style=\"font-weight: 400;\"> Characteristic facial appearance, including a broad forehead, flat midface, and sometimes a prominent nasal bridge.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><a href=\"https:\/\/www.myface.org\/craniofacial-conditions\/cleft-lip-and-or-palate\/\"><b>Cleft Lip\/Palate<\/b><\/a><b>:<\/b><span style=\"font-weight: 400;\"> Some children with CHARGE have cleft lip and\/or palate, which can affect feeding and speech development.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>Facial Palsy:<\/b><span style=\"font-weight: 400;\"> Paralysis of facial muscles on one or both sides, impacting facial expressions and sometimes feeding.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>Tracheoesophageal Fistula:<\/b><span style=\"font-weight: 400;\"> An abnormal connection between the trachea and esophagus, which can lead to breathing and feeding difficulties.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>Renal Malformations:<\/b><span style=\"font-weight: 400;\"> Abnormal kidney development, which can affect kidney function.<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">The wide range of symptoms and their severity can vary greatly among individuals, making each case of CHARGE Syndrome unique.<\/span><\/p>\n\n\t\t<\/div>\n\t<\/div>\n<\/div><\/div><\/div><\/div><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-12 vc_col-lg-offset-3 vc_col-lg-6 vc_col-md-offset-3 vc_col-md-6 vc_col-xs-offset-1 vc_col-xs-10\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"vc_row wpb_row vc_inner vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\">\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<h3 style=\"text-align: center;\">myFace is pleased to offer these resources to help families and parents navigate the everyday issues.<\/h3>\n\n\t\t<\/div>\n\t<\/div>\n<div class=\" ubtn-ctn-center \"><a class=\"ubtn-link ult-adjust-bottom-margin ubtn-center ubtn-large \" href=\"\/parent-guides\/\" ><button type=\"button\" id=\"ubtn-3150\"  class=\"ubtn ult-adjust-bottom-margin ult-responsive ubtn-large ubtn-no-hover-bg  none  ubtn-center   tooltip-69def0f3b0b5e\"  data-hover=\"\" data-border-color=\"\" data-bg=\"#d8007e\" data-hover-bg=\"\" data-border-hover=\"\" data-shadow-hover=\"\" data-shadow-click=\"none\" data-shadow=\"\" data-shd-shadow=\"\"  data-ultimate-target='#ubtn-3150'  data-responsive-json-new='{\"font-size\":\"desktop:18px;\",\"line-height\":\"\"}'  style=\"font-weight:normal;border:none;background: #d8007e;color: #ffffff;\"><span class=\"ubtn-hover\" style=\"background-color:\"><\/span><span class=\"ubtn-data ubtn-text \" >Learn More with our Parent Guides<\/span><\/button><\/a><\/div><\/div><\/div><\/div><div class=\"wpb_column vc_column_container vc_col-sm-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\">\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<h3><span style=\"font-weight: 800;\">Causes of CHARGE Syndrome<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">The majority of CHARGE Syndrome cases are caused by mutations in the <\/span><b>CHD7<\/b><span style=\"font-weight: 400;\"> gene, which plays a crucial role in early embryonic development. These mutations typically occur sporadically, meaning they are not inherited from parents but rather arise as new mutations in the affected individual. Genetic testing can confirm the presence of CHD7 mutations, aiding in the diagnosis of CHARGE Syndrome.<\/span><\/p>\n<h3><span style=\"font-weight: 800;\">Diagnosis and Management<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">Diagnosing CHARGE Syndrome involves a comprehensive evaluation, including physical examination, imaging studies, and genetic testing. Due to the complex nature of the syndrome, a multidisciplinary team of specialists is often required to address the various medical, developmental, and educational needs of the individual.<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>Medical Management:<\/b><span style=\"font-weight: 400;\"> Treatment may involve surgeries to correct heart defects, choanal atresia, or other physical anomalies. Ongoing medical care is essential to manage hearing loss, vision problems, and other health issues.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>Developmental Support:<\/b><span style=\"font-weight: 400;\"> Early intervention with physical therapy, occupational therapy, speech therapy, and special education services can significantly improve outcomes for children with CHARGE Syndrome.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>Family Support:<\/b><span style=\"font-weight: 400;\"> Counseling and support groups are invaluable resources for families navigating the challenges of CHARGE Syndrome. Connecting with other families through organizations can provide emotional support and practical advice.<\/span><\/li>\n<\/ul>\n<p><a href=\"https:\/\/www.myface.org\/online-groups\/\"><b>Learn more about myFace\u2019s Support Group Options<\/b><\/a><\/p>\n<h3><span style=\"font-weight: 800;\">Treatment for CHARGE Syndrome<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">Treatment for CHARGE Syndrome involves a multifaceted approach tailored to address the specific symptoms and challenges each individual faces. It typically includes medical and surgical interventions to correct congenital defects, such as heart issues or choanal atresia. Ongoing care from specialists like cardiologists and ophthalmologists is crucial for monitoring and managing health concerns. Developmental therapies, including physical, occupational, and speech therapy, support motor and cognitive development. Additionally, educational support through individualized programs and family counseling provides essential resources and emotional guidance for both the individual and their family.<\/span><\/p>\n<h3><span style=\"font-weight: 800;\">Living with CHARGE Syndrome<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">While CHARGE Syndrome presents significant challenges, many individuals with the condition lead fulfilling lives with the right support and interventions. Early diagnosis and a proactive approach to medical care, education, and social integration are key to optimizing quality of life.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">For nearly 70 years, myFace has worked with patients and families to provide comprehensive care and support. In addition to providing access to state-of-the-art medical care, myFace provides other important services such as emotional support groups, workshops and educational webinars that offer guidance, counsel and resources for patients, families and the greater craniofacial community across the country.<\/span><\/p>\n<p style=\"text-align: center;\"><strong><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/books\/NBK559199\/\">Learn more about CHARGE Syndrome through NIH<\/a><\/strong><\/p>\n\n\t\t<\/div>\n\t<\/div>\n<div class=\"vc_empty_space\"   style=\"height: 32px\"><span class=\"vc_empty_space_inner\"><\/span><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><!-- Row Backgrounds --><div class=\"upb_color\" data-bg-override=\"0\" data-bg-color=\"\" data-fadeout=\"\" data-fadeout-percentage=\"30\" data-parallax-content=\"\" data-parallax-content-sense=\"30\" data-row-effect-mobile-disable=\"true\" data-img-parallax-mobile-disable=\"true\" data-rtl=\"false\"  data-custom-vc-row=\"\"  data-vc=\"8.0\"  data-is_old_vc=\"\"  data-theme-support=\"enable\"   data-overlay=\"false\" data-overlay-color=\"\" data-overlay-pattern=\"\" data-overlay-pattern-opacity=\"\" data-overlay-pattern-size=\"\"    ><\/div><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-12 vc_col-lg-offset-2 vc_col-lg-8 vc_col-md-offset-1 vc_col-md-10 vc_col-xs-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"vc_empty_space\"   style=\"height: 32px\"><span class=\"vc_empty_space_inner\"><\/span><\/div><\/div><\/div><\/div><\/div><!-- Row Backgrounds --><div class=\"upb_color\" data-bg-override=\"0\" data-bg-color=\"#2fbed0\" data-fadeout=\"\" data-fadeout-percentage=\"30\" data-parallax-content=\"\" data-parallax-content-sense=\"30\" data-row-effect-mobile-disable=\"true\" data-img-parallax-mobile-disable=\"true\" data-rtl=\"false\"  data-custom-vc-row=\"\"  data-vc=\"8.0\"  data-is_old_vc=\"\"  data-theme-support=\"enable\"   data-overlay=\"false\" data-overlay-color=\"\" data-overlay-pattern=\"\" data-overlay-pattern-opacity=\"\" data-overlay-pattern-size=\"\"    ><\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"<p><a class=\"sd-more sd-all-trans\" href=\"https:\/\/www.myface.org\/es\/craniofacial-conditions\/charge-syndrome-association\/#more-11237\">Leer m\u00e1s<\/a><\/p>","protected":false},"author":14,"featured_media":0,"parent":11228,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"full-width-page.php","meta":{"footnotes":""},"class_list":["post-11237","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>What is CHARGE Syndrome? | myFace<\/title>\n<meta name=\"description\" content=\"Learn about CHARGE Syndrome, a rare genetic disorder affecting multiple organ systems. 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