{"id":11235,"date":"2020-10-07T15:02:48","date_gmt":"2020-10-07T19:02:48","guid":{"rendered":"https:\/\/www.myface.org\/?page_id=11235"},"modified":"2025-04-28T18:53:12","modified_gmt":"2025-04-28T22:53:12","slug":"sindrome-de-beckwith-wiedemann","status":"publish","type":"page","link":"https:\/\/www.myface.org\/es\/craniofacial-conditions\/beckwith-wiedemann-syndrome\/","title":{"rendered":"S\u00edndrome de Beckwith-Wiedemann"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"container\"><div class=\"sd-centered-wrapper\"><div class=\"wpb_column vc_column_container vc_col-sm-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\">\n\t<div class=\"wpb_raw_code wpb_raw_html wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<script type=\"application\/ld+json\">\n{\n        \"@context\": \"https:\/\/schema.org\/\",\n        \"@type\": \"MedicalCondition\",\n                \"name\":\"Beckwith-Wiedemann Syndrome\",\n                \"alternateName\":\"BWS\",\n                \"associatedAnatomy\":{\n                      \"@type\": \"AnatomicalStructure\",\n                      \"name\": \"head\"},\n                \"description\":\"BWS, a rare genetic disorder, may be characterized by a wide spectrum of symptoms and physical features that vary in range and severity from case to case.\",\n                \"url\":\"https:\/\/www.myface.org\/craniofacial-conditions\/beckwith-wiedermann-syndrome\/\",\n                \"sameAs\" : \"https:\/\/en.wikipedia.org\/wiki\/Beckwith%E2%80%93Wiedemann_syndrome\",\n                \"signOrSymptom\":[\"Gigantism\",\"Macroglossia\",\"Visceromegaly\"]\n}\n<\/script>\n\t\t<\/div>\n\t<\/div>\n<div class=\"ult-spacer spacer-69def2045442b\" data-id=\"69def2045442b\" data-height=\"80\" data-height-mobile=\"50\" data-height-tab=\"\" data-height-tab-portrait=\"\" data-height-mobile-landscape=\"\" style=\"clear:both;display:block;\"><\/div><div id=\"ultimate-heading-978769def2045445e\" class=\"uvc-heading ult-adjust-bottom-margin ultimate-heading-978769def2045445e uvc-4133 \" data-hspacer=\"no_spacer\"  data-halign=\"center\" style=\"text-align:center\"><div class=\"uvc-heading-spacer no_spacer\" style=\"top\"><\/div><div class=\"uvc-main-heading ult-responsive\"  data-ultimate-target='.uvc-heading.ultimate-heading-978769def2045445e h2'  data-responsive-json-new='{\"font-size\":\"desktop:46px;tablet:46px;tablet_portrait:46px;mobile_landscape:35px;mobile:35px;\",\"line-height\":\"\"}' ><h2 style=\"font-weight:bold;color:rgba(255,255,255,0.68);\">Beckwith-Wiedemann Syndrome<\/h2><\/div><\/div><div class=\"ult-spacer spacer-69def20454475\" data-id=\"69def20454475\" data-height=\"80\" data-height-mobile=\"50\" data-height-tab=\"\" data-height-tab-portrait=\"\" data-height-mobile-landscape=\"\" style=\"clear:both;display:block;\"><\/div><\/div><\/div><\/div><\/div><\/div><\/div><!-- Row Backgrounds --><div class=\"upb_color\" data-bg-override=\"0\" data-bg-color=\"#2fbdd0\" data-fadeout=\"\" data-fadeout-percentage=\"30\" data-parallax-content=\"\" data-parallax-content-sense=\"30\" data-row-effect-mobile-disable=\"true\" data-img-parallax-mobile-disable=\"true\" data-rtl=\"false\"  data-custom-vc-row=\"\"  data-vc=\"8.0\"  data-is_old_vc=\"\"  data-theme-support=\"enable\"   data-overlay=\"false\" data-overlay-color=\"\" data-overlay-pattern=\"\" data-overlay-pattern-opacity=\"\" data-overlay-pattern-size=\"\"    ><\/div><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-10 vc_col-lg-offset-1\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\">\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<p><strong><a href=\"\/craniofacial-conditions\/\">Craniofacial Conditions<\/a> &gt; Beckwith-Wiedemann Syndrome<\/strong><\/p>\n\n\t\t<\/div>\n\t<\/div>\n<\/div><\/div><\/div><\/div><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-10 vc_col-lg-offset-3 vc_col-lg-6 vc_col-md-offset-1 vc_col-md-10 vc_col-xs-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"ult-spacer spacer-69def2045477b\" data-id=\"69def2045477b\" data-height=\"15\" data-height-mobile=\"0\" data-height-tab=\"15\" data-height-tab-portrait=\"15\" data-height-mobile-landscape=\"15\" style=\"clear:both;display:block;\"><\/div><div class=\"vc_row wpb_row vc_inner vc_row-fluid\"><\/div><div class=\"wpb_column vc_column_container vc_col-sm-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><\/div><\/div><\/div>\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<div class=\"trp_language_switcher_shortcode\">\n<div class=\"trp-language-switcher trp-language-switcher-container\" data-no-translation >\n    <div class=\"trp-ls-shortcode-current-language\">\n        <a href=\"#\" class=\"trp-ls-shortcode-disabled-language trp-ls-disabled-language\" title=\"Espa\u00f1ol\" onclick=\"event.preventDefault()\">\n\t\t\t<img loading=\"lazy\" decoding=\"async\" class=\"trp-flag-image\" src=\"https:\/\/www.myface.org\/wp-content\/plugins\/translatepress-multilingual\/assets\/images\/flags\/es_ES.png\" width=\"18\" height=\"12\" alt=\"es_ES\" title=\"Espa\u00f1ol\"> Espa\u00f1ol\t\t<\/a>\n    <\/div>\n    <div class=\"trp-ls-shortcode-language\">\n                <a href=\"#\" class=\"trp-ls-shortcode-disabled-language trp-ls-disabled-language\"  title=\"Espa\u00f1ol\" onclick=\"event.preventDefault()\">\n\t\t\t<img loading=\"lazy\" decoding=\"async\" class=\"trp-flag-image\" src=\"https:\/\/www.myface.org\/wp-content\/plugins\/translatepress-multilingual\/assets\/images\/flags\/es_ES.png\" width=\"18\" height=\"12\" alt=\"es_ES\" title=\"Espa\u00f1ol\"> Espa\u00f1ol\t\t<\/a>\n                    <a href=\"https:\/\/www.myface.org\/es\/wp-json\/wp\/v2\/pages\/11235#TRPLINKPROCESSED\" title=\"English\">\n            <img loading=\"lazy\" decoding=\"async\" class=\"trp-flag-image\" src=\"https:\/\/www.myface.org\/wp-content\/plugins\/translatepress-multilingual\/assets\/images\/flags\/en_US.png\" width=\"18\" height=\"12\" alt=\"en_US\" title=\"English\"> English        <\/a>\n\n        <\/div>\n    <script type=\"application\/javascript\">\n        \/\/ need to have the same with set from JS on both divs. Otherwise it can push stuff around in HTML\n        var trp_ls_shortcodes = document.querySelectorAll('.trp_language_switcher_shortcode .trp-language-switcher');\n        if ( trp_ls_shortcodes.length > 0) {\n            \/\/ get the last language switcher added\n            var trp_el = trp_ls_shortcodes[trp_ls_shortcodes.length - 1];\n\n            var trp_shortcode_language_item = trp_el.querySelector( '.trp-ls-shortcode-language' )\n            \/\/ set width\n            var trp_ls_shortcode_width                                               = trp_shortcode_language_item.offsetWidth + 16;\n            trp_shortcode_language_item.style.width                                  = trp_ls_shortcode_width + 'px';\n            trp_el.querySelector( '.trp-ls-shortcode-current-language' ).style.width = trp_ls_shortcode_width + 'px';\n\n            \/\/ We're putting this on display: none after we have its width.\n            trp_shortcode_language_item.style.display = 'none';\n        }\n    <\/script>\n<\/div>\n<\/div>\n<h1><b>What is Beckwith-Wiedemann Syndrome (BWS)?<\/b><\/h1>\n<p><span style=\"font-weight: 400;\">Beckwith-Wiedemann Syndrome (BWS) is a rare congenital disorder that arises during fetal development, affecting various aspects of growth and development. It is typically caused by genetic abnormalities affecting chromosome 11, leading to disruptions in normal growth regulation processes.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The underlying genetic and molecular mechanisms of BWS result in complex clinical manifestations, necessitating comprehensive medical management and ongoing support for affected individuals and their families.<\/span><\/p>\n\n\t\t<\/div>\n\t<\/div>\n\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n\t\t<\/div>\n\t<\/div>\n<\/div><\/div><\/div><\/div><!-- Row Backgrounds --><div class=\"upb_color\" data-bg-override=\"0\" data-bg-color=\"\" data-fadeout=\"\" data-fadeout-percentage=\"30\" data-parallax-content=\"\" data-parallax-content-sense=\"30\" data-row-effect-mobile-disable=\"true\" data-img-parallax-mobile-disable=\"true\" data-rtl=\"false\"  data-custom-vc-row=\"\"  data-vc=\"8.0\"  data-is_old_vc=\"\"  data-theme-support=\"enable\"   data-overlay=\"false\" data-overlay-color=\"\" data-overlay-pattern=\"\" data-overlay-pattern-opacity=\"\" data-overlay-pattern-size=\"\"    ><\/div><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-12 vc_col-lg-offset-3 vc_col-lg-6 vc_col-md-offset-3 vc_col-md-6 vc_col-xs-offset-1 vc_col-xs-10 vc_col-has-fill\"><div class=\"vc_column-inner vc_custom_1708640251224\"><div class=\"wpb_wrapper\"><div class=\"vc_row wpb_row vc_inner vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-6\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"ult-spacer spacer-69def20454c7e\" data-id=\"69def20454c7e\" data-height=\"40\" data-height-mobile=\"0\" data-height-tab=\"40\" data-height-tab-portrait=\"40\" data-height-mobile-landscape=\"40\" style=\"clear:both;display:block;\"><\/div>\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<h3><b>Beckwith-Wiedemann Syndrome (BWS)<\/b><\/h3>\n<p><b>Prevalence:<\/b><span style=\"font-weight: 400;\"> BWS affects between 1 in 10,000 to 1 in 13,700 live births globally.<\/span><\/p>\n<p><b>Causes:<\/b><span style=\"font-weight: 400;\"> The majority of BWS cases occur sporadically, with no clear familial inheritance pattern, but in some instances, it may be inherited in an autosomal dominant fashion.<\/span><\/p>\n<p><b>Developmental Effects:<\/b><span style=\"font-weight: 400;\"> BWS can cause gigantism, enlarged tongue, abdominal organ enlargement, umbilical hernia, adrenal gland enlargement, neonatal hypoglycemia, advanced bone age, distinctive facial features, and increased cancer risk.<\/span><\/p>\n<p><b>Treatment:<\/b><span style=\"font-weight: 400;\"> Treatment options include surgical intervention, such as amputation or reconstructive surgery, tailored to address specific needs, with multidisciplinary care teams collaborating to provide comprehensive support.<\/span><\/p>\n\n\t\t<\/div>\n\t<\/div>\n<\/div><\/div><\/div><div class=\"wpb_column vc_column_container vc_col-sm-6 vc_col-has-fill\"><div class=\"vc_column-inner vc_custom_1708640151407\"><div class=\"wpb_wrapper\">\n\t<div  class=\"wpb_single_image wpb_content_element vc_align_center wpb_content_element\">\n\t\t\n\t\t<figure class=\"wpb_wrapper vc_figure\">\n\t\t\t<div class=\"vc_single_image-wrapper   vc_box_border_grey\"><img loading=\"lazy\" decoding=\"async\" width=\"856\" height=\"714\" src=\"https:\/\/www.myface.org\/wp-content\/uploads\/2024\/07\/unnamed.png\" class=\"vc_single_image-img attachment-large\" alt=\"\" title=\"unnamed\" srcset=\"https:\/\/www.myface.org\/wp-content\/uploads\/2024\/07\/unnamed.png 856w, https:\/\/www.myface.org\/wp-content\/uploads\/2024\/07\/unnamed-300x250.png 300w, https:\/\/www.myface.org\/wp-content\/uploads\/2024\/07\/unnamed-768x641.png 768w, https:\/\/www.myface.org\/wp-content\/uploads\/2024\/07\/unnamed-14x12.png 14w\" sizes=\"auto, (max-width: 856px) 100vw, 856px\" \/><\/div>\n\t\t<\/figure>\n\t<\/div>\n\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<h4 style=\"text-align: center;\">Lateralized Growth<\/h4>\n\n\t\t<\/div>\n\t<\/div>\n<\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-12 vc_col-lg-offset-3 vc_col-lg-6 vc_col-md-offset-3 vc_col-md-6 vc_col-xs-offset-1 vc_col-xs-10\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"vc_empty_space\"   style=\"height: 32px\"><span class=\"vc_empty_space_inner\"><\/span><\/div>\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t\n\t\t<\/div>\n\t<\/div>\n<\/div><\/div><\/div><\/div><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-12 vc_col-lg-offset-3 vc_col-lg-6 vc_col-md-offset-3 vc_col-md-6 vc_col-xs-offset-1 vc_col-xs-10\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"vc_row wpb_row vc_inner vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\">\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<h3 style=\"text-align: center;\"><strong>Helps us transform the lives of children and adults with facial differences.<\/strong><\/h3>\n\n\t\t<\/div>\n\t<\/div>\n<div class=\" ubtn-ctn-center \"><a class=\"ubtn-link ult-adjust-bottom-margin ubtn-center ubtn-large \" href=\"\/donate\" ><button type=\"button\" id=\"ubtn-5173\"  class=\"ubtn ult-adjust-bottom-margin ult-responsive ubtn-large ubtn-no-hover-bg  none  ubtn-center   tooltip-69def20455448\"  data-hover=\"\" data-border-color=\"\" data-bg=\"#d8007e\" data-hover-bg=\"\" data-border-hover=\"\" data-shadow-hover=\"\" data-shadow-click=\"none\" data-shadow=\"\" data-shd-shadow=\"\"  data-ultimate-target='#ubtn-5173'  data-responsive-json-new='{\"font-size\":\"desktop:18px;\",\"line-height\":\"\"}'  style=\"font-weight:normal;border:none;background: #d8007e;color: #ffffff;\"><span class=\"ubtn-hover\" style=\"background-color:\"><\/span><span class=\"ubtn-data ubtn-text \" >Donate Today<\/span><\/button><\/a><\/div><\/div><\/div><\/div><div class=\"wpb_column vc_column_container vc_col-sm-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\">\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<h3><span style=\"font-weight: 800;\">How does Beckwith-Wiedemann Syndrome affect a child\u2019s development?<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">Beckwith-Wiedemann Syndrome can have a profound impact on a child&#8217;s development and overall well-being. The physical features and associated medical conditions associated with BWS may present challenges in infancy and childhood, including feeding difficulties, speech delays, and surgical interventions. Additionally, the potential for developmental delays, learning disabilities, and psychosocial challenges may require early intervention and ongoing support from healthcare professionals, educators, and caregivers.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Despite the challenges posed by BWS, many individuals affected by the condition lead fulfilling lives with appropriate medical care, supportive interventions, and access to resources that promote optimal development and quality of life. Ongoing research into the underlying genetic mechanisms and clinical management strategies for BWS holds promise for further improvements in diagnosis, treatment, and outcomes for affected individuals and their families.<\/span><\/p>\n<h4><span style=\"font-weight: 900;\">Prevalence and Rarity<\/span><\/h4>\n<p><span style=\"font-weight: 400;\">Beckwith-Wiedemann Syndrome is considered a rare disorder, with an estimated prevalence of approximately 1 in 13,700 births worldwide. However, the true incidence may be higher due to underdiagnosis or misdiagnosis of milder cases. BWS affects individuals of all ethnicities and has no known gender predilection.<\/span><\/p>\n<p>&nbsp;<\/p>\n<h3><span style=\"font-weight: 800;\">Characteristics of Beckwith-Wiedemann Syndrome (BWS)<\/span><\/h3>\n<h4><span style=\"font-weight: 900;\">In many individuals with the disorder, associated symptoms may include:<\/span><\/h4>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>Gigantism \u2013 <\/b><span style=\"font-weight: 400;\">excessive size and height<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>Macroglossia \u2013 <\/b><span style=\"font-weight: 400;\">an unusually large tongue<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>Visceromegaly \u2013<\/b><span style=\"font-weight: 400;\"> enlargement of abdominal organs, such as the liver and spleen (<\/span><b>hepatosplenomegaly<\/b><span style=\"font-weight: 400;\">)<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>Umbilical hernia [exomphalos] or Omphalocele \u2013<\/b><span style=\"font-weight: 400;\"> protrusion of part of the intestines through a defect in the abdominal wall at the umbilicus or navel<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>Adrenocortical cytomegaly<\/b> <b>\u2013<\/b><span style=\"font-weight: 400;\"> enlargement of cells within the outer layer of the adrenal glands<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">Additional features may include low blood sugar levels within the first days of life (neonatal hypoglycemia); advanced bone age, particularly up to age four; the presence of distinctive linear grooves within the ear lobes and\/or other abnormalities of the head and facial area; and\/or an increased predisposition to certain childhood cancers.\u00a0<\/span><\/p>\n<p><a href=\"https:\/\/rarediseases.org\/rare-diseases\/beckwith-wiedemann-syndrome\/\"><span style=\"font-weight: 400;\">(National Organization for Rare Disorders, Inc, 2000)<\/span><\/a><\/p>\n<p>&nbsp;<\/p>\n<h3><span style=\"font-weight: 800;\">Causes of Beckwith-Wiedemann Syndrome<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">Beckwith-Wiedemann Syndrome (BWS) is primarily caused by genetic abnormalities affecting a specific region of chromosome 11. Most cases of BWS occur sporadically, meaning they are not inherited from a parent but arise from spontaneous genetic changes during early development. However, in a minority of cases, BWS may be inherited in an autosomal dominant pattern, meaning that a child has a 50% chance of inheriting the genetic mutation from an affected parent.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The majority of BWS cases are associated with alterations in a region of chromosome 11 known as 11p15.5. These alterations can involve changes in DNA methylation, chromosomal duplications or deletions, or mutations in specific genes within the region, including the KCNQ1OT1, CDKN1C, and IGF2 genes. These genetic changes disrupt normal growth regulation processes during fetal development, leading to the characteristic features of BWS.<\/span><\/p>\n<p>&nbsp;<\/p>\n<h3><span style=\"font-weight: 800;\">Treatment Options<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">Treatment for Beckwith-Wiedemann Syndrome is primarily focused on managing the specific symptoms and associated medical conditions that may arise in affected individuals. Multidisciplinary care teams, including pediatricians, geneticists, endocrinologists, surgeons, and other specialists, collaborate to provide comprehensive care tailored to each patient&#8217;s needs.<\/span><\/p>\n<h4><span style=\"font-weight: 900;\">Treatment interventions for BWS may include:<\/span><\/h4>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>Monitoring and Management of Associated Conditions:<\/b><span style=\"font-weight: 400;\"> Regular screening and surveillance for conditions such as neonatal hypoglycemia, abdominal organ enlargement, and childhood cancers are essential for early detection and intervention.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>Surgical Correction:<\/b><span style=\"font-weight: 400;\"> Surgical intervention may be necessary to address complications such as umbilical hernias, omphaloceles, or tongue reduction surgeries to alleviate symptoms associated with macroglossia.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>Hormonal Therapy:<\/b><span style=\"font-weight: 400;\"> In some cases, hormone replacement therapy may be recommended to address endocrine abnormalities associated with BWS, such as growth hormone deficiency or adrenal insufficiency.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><b>Genetic Counseling:<\/b><span style=\"font-weight: 400;\"> For families affected by BWS, genetic counseling can provide information about the underlying genetic cause of the condition, recurrence risks, and family planning options.<\/span><\/li>\n<\/ul>\n\n\t\t<\/div>\n\t<\/div>\n<\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><!-- Row Backgrounds --><div class=\"upb_color\" data-bg-override=\"0\" data-bg-color=\"\" data-fadeout=\"\" data-fadeout-percentage=\"30\" data-parallax-content=\"\" data-parallax-content-sense=\"30\" data-row-effect-mobile-disable=\"true\" data-img-parallax-mobile-disable=\"true\" data-rtl=\"false\"  data-custom-vc-row=\"\"  data-vc=\"8.0\"  data-is_old_vc=\"\"  data-theme-support=\"enable\"   data-overlay=\"false\" data-overlay-color=\"\" data-overlay-pattern=\"\" data-overlay-pattern-opacity=\"\" data-overlay-pattern-size=\"\"    ><\/div><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-12 vc_col-lg-offset-2 vc_col-lg-8 vc_col-md-offset-1 vc_col-md-10 vc_col-xs-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"vc_empty_space\"   style=\"height: 32px\"><span class=\"vc_empty_space_inner\"><\/span><\/div><div class=\"vc_row wpb_row vc_inner vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\">\n\t<div class=\"wpb_text_column wpb_content_element white-text\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<p>For nearly 70 years, myFace has worked with patients and families to provide comprehensive care and support. In addition to providing access to state-of-the-art medical care, myFace provides other important services such as emotional support groups, workshops and educational webinars that offer guidance, counsel and resources for patients, families and the greater craniofacial community across the country.<\/p>\n\n\t\t<\/div>\n\t<\/div>\n<div class=\" ubtn-ctn-center \"><a class=\"ubtn-link ult-adjust-bottom-margin ubtn-center ubtn-large \" href=\"\/donate\" ><button type=\"button\" id=\"ubtn-8181\"  class=\"ubtn ult-adjust-bottom-margin ult-responsive ubtn-large ubtn-no-hover-bg  none  ubtn-center   tooltip-69def2045583b\"  data-hover=\"\" data-border-color=\"\" data-bg=\"#d8007e\" data-hover-bg=\"\" data-border-hover=\"\" data-shadow-hover=\"\" data-shadow-click=\"none\" data-shadow=\"\" data-shd-shadow=\"\"  data-ultimate-target='#ubtn-8181'  data-responsive-json-new='{\"font-size\":\"desktop:18px;\",\"line-height\":\"\"}'  style=\"font-weight:normal;border:none;background: #d8007e;color: #ffffff;\"><span class=\"ubtn-hover\" style=\"background-color:\"><\/span><span class=\"ubtn-data ubtn-text \" >Donate Today<\/span><\/button><\/a><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><!-- Row Backgrounds --><div class=\"upb_color\" data-bg-override=\"0\" data-bg-color=\"#2fbed0\" data-fadeout=\"\" data-fadeout-percentage=\"30\" data-parallax-content=\"\" data-parallax-content-sense=\"30\" data-row-effect-mobile-disable=\"true\" data-img-parallax-mobile-disable=\"true\" data-rtl=\"false\"  data-custom-vc-row=\"\"  data-vc=\"8.0\"  data-is_old_vc=\"\"  data-theme-support=\"enable\"   data-overlay=\"false\" data-overlay-color=\"\" data-overlay-pattern=\"\" data-overlay-pattern-opacity=\"\" data-overlay-pattern-size=\"\"    ><\/div><div class=\"vc_row wpb_row vc_row-fluid\"><div class=\"wpb_column vc_column_container vc_col-sm-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"ult-spacer spacer-69def20455993\" data-id=\"69def20455993\" data-height=\"25\" data-height-mobile=\"0\" data-height-tab=\"0\" data-height-tab-portrait=\"0\" data-height-mobile-landscape=\"0\" style=\"clear:both;display:block;\"><\/div><\/div><\/div><\/div><\/div><!-- Row Backgrounds --><div class=\"upb_color\" data-bg-override=\"0\" data-bg-color=\"#2fbed0\" data-fadeout=\"\" data-fadeout-percentage=\"30\" data-parallax-content=\"\" data-parallax-content-sense=\"30\" data-row-effect-mobile-disable=\"true\" data-img-parallax-mobile-disable=\"true\" data-rtl=\"false\"  data-custom-vc-row=\"\"  data-vc=\"8.0\"  data-is_old_vc=\"\"  data-theme-support=\"enable\"   data-overlay=\"false\" data-overlay-color=\"\" data-overlay-pattern=\"\" data-overlay-pattern-opacity=\"\" data-overlay-pattern-size=\"\"    ><\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"<p><a class=\"sd-more sd-all-trans\" href=\"https:\/\/www.myface.org\/es\/craniofacial-conditions\/beckwith-wiedemann-syndrome\/#more-11235\">Leer m\u00e1s<\/a><\/p>","protected":false},"author":14,"featured_media":0,"parent":11228,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"full-width-page.php","meta":{"footnotes":""},"class_list":["post-11235","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Beckwith-Wiedemann Syndrome | myFace<\/title>\n<meta name=\"description\" content=\"BWS, a rare genetic disorder, may be characterized by a wide spectrum of symptoms and physical features that vary in range and severity from case to case.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.myface.org\/es\/craniofacial-conditions\/sindrome-de-beckwith-wiedemann\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Beckwith-Wiedemann Syndrome | myFace\" \/>\n<meta property=\"og:description\" content=\"BWS, a rare genetic disorder, may be characterized by a wide spectrum of symptoms and physical features that vary in range and severity from case to case.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.myface.org\/es\/craniofacial-conditions\/sindrome-de-beckwith-wiedemann\/\" \/>\n<meta property=\"og:site_name\" content=\"myFace\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/myFaceFoundation\/\" \/>\n<meta property=\"article:modified_time\" content=\"2025-04-28T22:53:12+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@thisis_myface\" \/>\n<meta name=\"twitter:label1\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data1\" content=\"5 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/www.myface.org\\\/craniofacial-conditions\\\/beckwith-wiedemann-syndrome\\\/\",\"url\":\"https:\\\/\\\/www.myface.org\\\/craniofacial-conditions\\\/beckwith-wiedemann-syndrome\\\/\",\"name\":\"Beckwith-Wiedemann Syndrome | myFace\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.myface.org\\\/#website\"},\"datePublished\":\"2020-10-07T19:02:48+00:00\",\"dateModified\":\"2025-04-28T22:53:12+00:00\",\"description\":\"BWS, a rare genetic disorder, may be characterized by a wide spectrum of symptoms and physical features that vary in range and severity from case to case.\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/www.myface.org\\\/craniofacial-conditions\\\/beckwith-wiedemann-syndrome\\\/#breadcrumb\"},\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/www.myface.org\\\/craniofacial-conditions\\\/beckwith-wiedemann-syndrome\\\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/www.myface.org\\\/craniofacial-conditions\\\/beckwith-wiedemann-syndrome\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/www.myface.org\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Craniofacial Conditions\",\"item\":\"https:\\\/\\\/www.myface.org\\\/craniofacial-conditions\\\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Beckwith-Wiedemann Syndrome\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/www.myface.org\\\/#website\",\"url\":\"https:\\\/\\\/www.myface.org\\\/\",\"name\":\"myFace\",\"description\":\"We are the National Model for Craniofacial Care and Treatment.\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/www.myface.org\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"S\u00edndrome de Beckwith-Wiedemann | myFace","description":"El s\u00edndrome de Beckwith-Wiedemann (SBW), un trastorno gen\u00e9tico poco com\u00fan, puede caracterizarse por una amplia variedad de s\u00edntomas y rasgos f\u00edsicos que var\u00edan en alcance y gravedad de un caso a otro.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.myface.org\/es\/craniofacial-conditions\/sindrome-de-beckwith-wiedemann\/","og_locale":"es_ES","og_type":"article","og_title":"Beckwith-Wiedemann Syndrome | myFace","og_description":"BWS, a rare genetic disorder, may be characterized by a wide spectrum of symptoms and physical features that vary in range and severity from case to case.","og_url":"https:\/\/www.myface.org\/es\/craniofacial-conditions\/sindrome-de-beckwith-wiedemann\/","og_site_name":"myFace","article_publisher":"https:\/\/www.facebook.com\/myFaceFoundation\/","article_modified_time":"2025-04-28T22:53:12+00:00","twitter_card":"summary_large_image","twitter_site":"@thisis_myface","twitter_misc":{"Tiempo de lectura":"5 minutos"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/www.myface.org\/craniofacial-conditions\/beckwith-wiedemann-syndrome\/","url":"https:\/\/www.myface.org\/craniofacial-conditions\/beckwith-wiedemann-syndrome\/","name":"S\u00edndrome de Beckwith-Wiedemann | myFace","isPartOf":{"@id":"https:\/\/www.myface.org\/#website"},"datePublished":"2020-10-07T19:02:48+00:00","dateModified":"2025-04-28T22:53:12+00:00","description":"El s\u00edndrome de Beckwith-Wiedemann (SBW), un trastorno gen\u00e9tico poco com\u00fan, puede caracterizarse por una amplia variedad de s\u00edntomas y rasgos f\u00edsicos que var\u00edan en alcance y gravedad de un caso a otro.","breadcrumb":{"@id":"https:\/\/www.myface.org\/craniofacial-conditions\/beckwith-wiedemann-syndrome\/#breadcrumb"},"inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.myface.org\/craniofacial-conditions\/beckwith-wiedemann-syndrome\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/www.myface.org\/craniofacial-conditions\/beckwith-wiedemann-syndrome\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.myface.org\/"},{"@type":"ListItem","position":2,"name":"Craniofacial Conditions","item":"https:\/\/www.myface.org\/craniofacial-conditions\/"},{"@type":"ListItem","position":3,"name":"Beckwith-Wiedemann Syndrome"}]},{"@type":"WebSite","@id":"https:\/\/www.myface.org\/#website","url":"https:\/\/www.myface.org\/","name":"de myFace","description":"Somos el Modelo Nacional de Atenci\u00f3n y Tratamiento Craneofacial.","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.myface.org\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es"}]}},"_links":{"self":[{"href":"https:\/\/www.myface.org\/es\/wp-json\/wp\/v2\/pages\/11235","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.myface.org\/es\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.myface.org\/es\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.myface.org\/es\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.myface.org\/es\/wp-json\/wp\/v2\/comments?post=11235"}],"version-history":[{"count":17,"href":"https:\/\/www.myface.org\/es\/wp-json\/wp\/v2\/pages\/11235\/revisions"}],"predecessor-version":[{"id":21419,"href":"https:\/\/www.myface.org\/es\/wp-json\/wp\/v2\/pages\/11235\/revisions\/21419"}],"up":[{"embeddable":true,"href":"https:\/\/www.myface.org\/es\/wp-json\/wp\/v2\/pages\/11228"}],"wp:attachment":[{"href":"https:\/\/www.myface.org\/es\/wp-json\/wp\/v2\/media?parent=11235"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}